All Things Adrenal

"My Day Won't Look Like Everyone Else's" - Interview with AJ Connor

Vanessa sits down with NADF's Pennsylvania Support Group leader AJ Connor to talk about how his teenage Addison's disease diagnosis played out, how it inspired his nursing career, and what advantages there are to being both a patient and a health care professional when it comes to advocacy for adrenal diseases. AJ offers helpful tips on using patient advocates in hospital settings and mindfulness in managing adrenal insufficiency symptoms. AJ Addison's Disease Journey - YouTube [https://youtu.be/cDyU-DMV4D8?si=Q8kjnlPZ3YMHalZP] Watch AJ's presentation [https://www.nadf.us/connor25] from Navigating Adrenal Health 2025 [https://www.nadf.us/videos#nah25] Support groups are for everyone! Learn more and sign up at NADF.us/support-groups [https://www.NADF.us/support-groups] 'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation [https://www.nadf.us/] and Neurocrine [https://www.neurocrine.com/].  NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.  NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice. April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details. [https://www.nadf.us/aadam] Follow us on social media: Bluesky [https://bsky.app/] - Facebook [https://www.facebook.com/nadf.us] - Instagram [https://www.instagram.com/nadf_adrenal] - Threads [https://www.threads.net/@nadf_adrenal] - TikTok [https://www.tiktok.com/@nadf_adrenal] - X [https://x.com/NADF_Adrenal]

"One Share Could Save A Life" - NADF Celebrates AADAM2026

Vanessa sits down with Meg Zinky, NADF's interactive media designer, to talk about all the plans falling into place for Adrenal Disease Awareness Month. From online conferences to social media challenges to getting proclamations issued, find out how you can join in the activities online, on your couch, and in your community. Follow us on social media: Bluesky [https://bsky.app/] - Facebook [https://www.facebook.com/nadf.us] - Instagram [https://www.instagram.com/nadf_adrenal] - Threads [https://www.threads.net/@nadf_adrenal] - TikTok [https://www.tiktok.com/@nadf_adrenal] - X [https://x.com/NADF_Adrenal] NADF.us/AADAM [https://NADF.us/AADAM] for information on Light Up for Adrenal, proclamation template letters, conference registration [https://events.zoom.us/ev/AghGXZNfFo81uMXnhxQ25CFawMv7BtemtqXRdaI2Yns64aJNrrdJ~AgSkArHqqKEFBqnRY2s3cOP19MuwzYNQvb-AEf4v_OZwVd8oWv8MCbjeFw], and more.  NADF.us/April7 [https://NADF.us/April7] for information on international celebrations, the AAES webinar registration [https://us02web.zoom.us/webinar/register/WN_gMBR4dRqT2-qtkIa3ZzZsA], and the IAC's incredible work. We are excited to raise awareness with you! 'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation [https://www.nadf.us/] and Neurocrine [https://www.neurocrine.com/].  NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.  NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice. April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details. [https://www.nadf.us/aadam] Follow us on social media: Bluesky [https://bsky.app/] - Facebook [https://www.facebook.com/nadf.us] - Instagram [https://www.instagram.com/nadf_adrenal] - Threads [https://www.threads.net/@nadf_adrenal] - TikTok [https://www.tiktok.com/@nadf_adrenal] - X [https://x.com/NADF_Adrenal]

"Grief Is Exhausting and Addison's Adds a Layer" - Interview with Lesley Myrvold

Vanessa and her friend (and NADF's newest employee) Lesley Myrvold get in deep with a discussion about grief and adrenal insufficiency. Along the way they chat about Lesley's teenage diagnosis with Addison's, the importance of true friendship, and how Lesley balances a full work life, weekend volunteer work, and her PAI diagnosis. A friendly reminder from Vanessa and Lesley: It's ok to stress dose when you feel like you need it! Click here for NADF's Stress Dosing Guidelines [https://www.nadf.us/patient-resources#protocols] 'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation [https://www.nadf.us/] and Neurocrine [https://www.neurocrine.com/].  NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.  NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice. April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details. [https://www.nadf.us/aadam] Follow us on social media: Bluesky [https://bsky.app/] - Facebook [https://www.facebook.com/nadf.us] - Instagram [https://www.instagram.com/nadf_adrenal] - Threads [https://www.threads.net/@nadf_adrenal] - TikTok [https://www.tiktok.com/@nadf_adrenal] - X [https://x.com/NADF_Adrenal]

"We Can Do It As Long As We Start" - Interview with Dr. Elizabeth Regan

Dr. Elizabeth Regan joins Vanessa to discuss how her skills as a researcher and her adrenal insufficiency diagnosis combined to motivate her to create the MyAI registry and be a medical detective in her own healthcare. They also lay out a vision for how the whole community can come together to further adrenal insufficiency research. Watch Dr. Regan's presentation on the MyAI registry >> [https://www.nadf.us/videos#nah25] Learn more about the MyAI registry >> [https://www.nadf.us/myai] 'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation [https://www.nadf.us/] and Neurocrine [https://www.neurocrine.com/].  NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.  NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice. April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details. [https://www.nadf.us/aadam] Follow us on social media: Bluesky [https://bsky.app/] - Facebook [https://www.facebook.com/nadf.us] - Instagram [https://www.instagram.com/nadf_adrenal] - Threads [https://www.threads.net/@nadf_adrenal] - TikTok [https://www.tiktok.com/@nadf_adrenal] - X [https://x.com/NADF_Adrenal]

"Addison's Is A Constant Cycle" - Interview with Heidi Engelhardt

Come be a fly on the wall as Vanessa chats with her friend Heidi Engelhardt about living an active life with Addison's disease, what it's like to receive a diagnosis at a young age, and the importance of stress dosing for emotional stress and grief. Plus Heidi and Vanessa share their words of advice for teens and young adults living with adrenal disease. Heidi is the NADF Colorado Support Group leader. Are you part of our network of support groups? We want to connect you with people who understand what you're going through, whether as a patient or a caregiver. Check out our list of regional and specialized support groups and get signed up today. [https://www.nadf.us/support-groups.html] Reach out to NADF for support with your adrenal disease: NADFSupport@NADF.us [nadfsupport@nadf.us] 'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation [https://www.nadf.us/] and Neurocrine [https://www.neurocrine.com/].  NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.  NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice. April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details. [https://www.nadf.us/aadam] Follow us on social media: Bluesky [https://bsky.app/] - Facebook [https://www.facebook.com/nadf.us] - Instagram [https://www.instagram.com/nadf_adrenal] - Threads [https://www.threads.net/@nadf_adrenal] - TikTok [https://www.tiktok.com/@nadf_adrenal] - X [https://x.com/NADF_Adrenal]