Hyperparathyroidism: A Patient's Perspective

Episode 10: Finding the Right Support Group for Hyperparathyroidism Patient to Patient Supprt

In this episode, Lisa Marie discusses the importance of patient-to-patient support groups, but more importantly, choosing the right support group. Lisa Marie shares insight on how to choose the right support group and what might be helpful to consider when choosing to join a relevant support group. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism Support & Information - Patient-to-Patient Support Group https://www.facebook.com/groups/406980976340533 [https://www.facebook.com/groups/406980976340533] DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Episode 9: Post Surgery Tips and Expectations Relating to Hyperparathyroidism

Lisa Marie discusses post-surgery tips, getting prepared ahead of your surgery, relevant contact numbers for your surgeon or medical specialists and approved medications for use post-surgery. This episode also explores post-surgery expectations, potential recovery times, and the importance of giving yourself time to heal. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ [https://www.nhs.uk/conditions/hyperparathyroidism/] Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/] Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 [https://www.facebook.com/groups/406980976340533] NICE Guidelines https://www.nice.org.uk/guidance/ng132 [https://www.nice.org.uk/guidance/ng132] DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Episode 8: Helpful Tips for Navigating a Diagnosis of Hyperparathyroidism

In this episode, Lisa Marie shares valuable insights and tips for navigating your way to a diagnosis of hyperparathyroidism. The importance of being prepared ahead of any appointments you may need, is also advantageous. Asking informed questions and even getting a second opinion where possible. ABBREVIATIONS: HPT - Hyperparathyroidism. nHPT - Normocalcemic Hyperparathyroidism. PTH - Parathyroid Hormone Level. ng/L - Blood chemistry measurement. MP - Member of Parliament - UK CLARIFICATIONS: Hyperplasia verses single adenoma. Hyperplasia affects all four glands and the glands become enlarged. A single adenoma usually a benign (non-cancerous) tumour of the gland. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ [https://www.nhs.uk/conditions/hyperparathyroidism/] Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/] Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 [https://www.facebook.com/groups/406980976340533] NICE Guidelines https://www.nice.org.uk/guidance/ng132 [https://www.nice.org.uk/guidance/ng132] Fibromyalgia https://www.nhs.uk/conditions/fibromyalgia/symptoms/ [https://www.nhs.uk/conditions/fibromyalgia/symptoms/] https://www.fmauk.org/ [https://www.fmauk.org/] Menopause https://www.nhs.uk/conditions/menopause/ [https://www.nhs.uk/conditions/menopause/] https://www.newsonhealth.co.uk/ [https://www.newsonhealth.co.uk/] Thyroid Function https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/ [https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/] https://www.btf-thyroid.org/what-is-thyroid-disorder [https://www.btf-thyroid.org/what-is-thyroid-disorder] DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Episode 7: Crossover Symptoms and Hyperparathyroidism

Lisa Marie shares a few health conditions that can be very similar, if not the same to those of hyperparathyroidism. Most importantly she discusses the need to be aware of the symptoms that can cross over and those that are different so that you can identify which symptom pool relates to which health concern or condition. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ [https://www.nhs.uk/conditions/hyperparathyroidism/] Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/] Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 [https://www.facebook.com/groups/406980976340533] NICE Guidelines https://www.nice.org.uk/guidance/ng132 [https://www.nice.org.uk/guidance/ng132] Fibromyalgia https://www.nhs.uk/conditions/fibromyalgia/symptoms/ [https://www.nhs.uk/conditions/fibromyalgia/symptoms/] https://www.fmauk.org/ [https://www.fmauk.org/] Menopause https://www.nhs.uk/conditions/menopause/ [https://www.nhs.uk/conditions/menopause/] https://www.newsonhealth.co.uk/ [https://www.newsonhealth.co.uk/] Thyroid Function https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/ [https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/] https://www.btf-thyroid.org/what-is-thyroid-disorder [https://www.btf-thyroid.org/what-is-thyroid-disorder] DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Episode 6: Dental Issues and Hyperparathyroidism

In episode 5 Lisa Marie Shares her humiliating and traumatic visits to the dentist and specialist dental hospital, highlighting once again dismissive attitudes and making Lisa Marie feel entirely responsible for her dental issues. Importantly Lisa Marie highlights the need to be aware of the relationship between hyperparathyroidism and how early intervention may be the key to preserving long-term dental health. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. THE JOURNAL OF THE BRITISH ASSOCIATION OF DENTAL NURSES https://bdnj.co.uk/2021/05/06/hyperparathyroidism-what-to-know/ [https://bdnj.co.uk/2021/05/06/hyperparathyroidism-what-to-know/] DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.