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Parents Unheard

Podcast by Joe and Kayleigh

English

Family

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About Parents Unheard

For parents of profoundly autistic children

All episodes

20 episodes

episode Ronnie's Lab Results with Alan Lee artwork

Ronnie's Lab Results with Alan Lee

What do Ronnie's blood results actually mean? A functional medicine deep dive Most parents of autistic children have heard the same thing from their GP: "The results are normal. There's nothing to worry about." But what if normal isn't the same as healthy? In this episode, Joe sits down with Alan Lee, functional medicine practitioner and Ronnie's own clinician, to walk through Ronnie's blood panel in real time. Alan trained in osteopathic medicine before spending decades studying functional neurology and the neurochemistry of autism, including at the Carrick Institute of Neurological Sciences in America. His approach couldn't be more different from mainstream medicine. They cover: * Why NHS reference ranges are far too wide, and what "normal" actually hides * What Ronnie's protein markers, cholesterol levels, and iron results reveal about his gut and brain health * Hypochlorhydria: the little-known digestive issue that could be driving everything downstream * The gut-brain connection, secretory IgA, leaky gut, and why endotoxemia matters for behaviour and mood * Why brain health requires stabilising oxygen delivery and blood sugar above everything else * The Greggs story that will change how you think about ultra-processed food forever * Supplements that are making a real difference for Ronnie right now * Alan's take on melatonin dosing, and why the NHS guidelines may be wildly off This one is full of practical insight for any parent trying to understand what's really going on beneath the surface.

22 May 2026 - 1 h 11 min
episode Neuroadaptive Therapies with Erinn Askin artwork

Neuroadaptive Therapies with Erinn Askin

What if the therapy system isn't failing your child — it's just starting in the wrong place? Erinn Askin is an occupational therapist and founder of OTEAM, a clinic that layers advanced neurotechnology onto traditional OT and speech therapy. She calls it neuroadaptive therapy, and the core argument is simple: most children are being handed a top-down approach before their brain and nervous system are ready to receive it. We cover why intensive therapy leverages neuroplasticity in ways weekly sessions can't, how a five-minute brain map can detect anxiety and depression in a nonverbal child, and what cold laser therapy actually does at a cellular level. We also get honest about the NHS, and why some UK families have faced consequences for seeking help elsewhere. Erinn shares two case studies that are hard to forget, and offers a genuinely different way of thinking about where to start. Find Erinn at oteam.com

15 May 2026 - 1 h 0 min
episode Childhood Apraxia of Speech Demystified: Alonna Bondar artwork

Childhood Apraxia of Speech Demystified: Alonna Bondar

If your child is minimally verbal or non-speaking, there's a question that almost nobody in the system will ask — and it might be the most important one of all. Could it be apraxia? In this episode, we speaks with New York-based speech-language pathologist Alonna Bondar, who has spent 25 years specialising in childhood apraxia of speech (CAS) — a motor planning disorder that research suggests may affect up to two thirds of autistic children, yet remains almost entirely absent from mainstream speech therapy practice, particularly in the UK. Alonna breaks down what apraxia actually is, why it's so routinely missed, and why years of traditional language-based therapy can fail children who need motor speech intervention instead. She also explains the difference between approaches like PROMPT, DTTC, and the REST programme, how to find the right therapist, what parents can do at home, and why AAC should never be a last resort. If your child has ever seemed to "pop out" a word or phrase and then never said it again, this episode is essential listening. Topics covered: * What childhood apraxia of speech is and how it differs from language delay * Why autistic children are excluded from most CAS research — and what that means for diagnosis * "Ghost words" and gestalt language processing * Why telling a child to "just say it" can cause more harm than good * PROMPT, DTTC, REST — what they are and which children they suit * Why oral motor tools like whistles and vibrating devices won't help * The state of apraxia awareness in the UK vs the US * How to access Alonna's consultations, courses, and parent coaching

19 Apr 2026 - 1 h 4 min
episode How to Actually Build Your Child's Brain: Lara Barnes artwork

How to Actually Build Your Child's Brain: Lara Barnes

What if the 'autism' label was getting in the way of actually helping your child? In this episode, Joe and Kayleigh sit down with Lara Barnes, founder of Brain Development UK, who spent years navigating her son Archie's developmental challenges before discovering a root-cause approach that changed everything. Lara walks us through her son's early signs — a back-to-back birth, a weak latch, skipped crawling milestones, repetitive ear infections, delayed speech, and sensory overwhelm — and how she was eventually led to the work of Dr. Robert Melillo and the science of primitive reflex integration. What followed was a remarkable journey: monthly trips to Barcelona, a TENS machine, vibration therapy, dietary overhaul, photobiomodulation, and a child who began speaking, playing with Lego, and thriving in ways the conventional system had written off as unlikely. In a conversation that covers an extraordinary amount of ground, Lara explains the pyramid of learning, why retained primitive reflexes hold children in a lower level of brain function, how the gut and brain are inseparable in this work, and why mould exposure, fluoride, processed food, and even cereal could be quietly undermining your child's development. We also get into photobiomodulation and why buying a laser without guidance could make things worse. Plus — the vibration plate tip that helped a mum transform her child's anxiety in two weeks for £15. Resources mentioned: * braindevelopment.co.uk * Disconnected Kids by Dr. Robert Melillo * ION gut supplement * Citri Drops nasal spray * Vicky Finlayson / Happy Healthy Unicorn

13 Apr 2026 - 1 h 0 min
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