Season 2 Teaser: An Introduction to Rare Voices, Relatable Stories

S2E6: "The Hardest Punch I Ever Took", FSGS with Marc Coronel

Tamara and Mike are joined by Marc Coronel, the founder of Lifestyle Athletics, a former amateur professional boxer and a TEDx speaker [https://tedxlogancircle.com/marc-coronel/]. He is living with focal segmental glomerulosclerosis (FSGS) — a rare type of kidney disease that causes scarring on the glomeruli (the filters in your kidneys) — and is a kidney transplant recipient. The three talk about how surprised he was to learn he had kidney disease, and Marc explains how his training as a boxer has provided a framework for helping him push through the day-to-day challenges.  They discuss his drive to get all the information he could about his health, how he went through the stages of grief after his diagnosis and how vital it is to find people who can relate in a way that no one else can (even your loved ones). Marc shares advice for others living with chronic illnesses like his and encourages them to be vocal, because silence nearly cost him everything. More resources:  * Focal segmental glomerulosclerosis (FSGS) [https://www.kidneyfund.org/all-about-kidneys/other-kidney-diseases/focal-segmental-glomerulosclerosis-fsgs-symptoms-causes-and-treatment-0]  * Genetic testing and counseling for kidney disease [https://www.kidneyfund.org/all-about-kidneys/tests/genetic-testing-and-counseling]  * AKF Ambassador network [https://www.kidneyfund.org/government-affairs-advocacy/join-our-advocacy-network]  * Become a Kidney Health Coach [https://www.kidneyfund.org/get-involved/kidney-health-coach]  * Mental health and kidney disease [https://www.kidneyfund.org/living-kidney-disease/mental-health-and-kidney-disease]  * Kidney biopsy [https://www.kidneyfund.org/all-about-kidneys/tests-for-kidney-disease/kidney-biopsy]

S2E5: "This is My Second Life", PKD with Tamara Walker

Tamara Walker joins Tamara and Mike for a conversation about polycystic kidney disease (PKD), a genetic condition that causes many cysts to grow inside your kidneys and can lead to kidney failure. Tamara shares how she was surprisingly diagnosed by her OBGYN after giving birth to her second son, the challenges she experienced with insurance coverage and how PKD factored into the difficult decision of moving from Virginia to Georgia. They also talk about how Tamara has become one of the most active patient advocates, as an AKF Ambassador and Kidney Health Coach, a speaker at AKF’s Unknown Causes of Kidney Disease Summit and recipient of one of AKF’s first-ever Ambassador Community Engagement grants—all of which earned her the 2025 Hero of Hope award.  Tamara gives the audience advice on navigating PKD, dealing with dismissive doctors and getting involved in kidney disease advocacy.   More Resources: * Polycystic kidney disease [https://www.kidneyfund.org/all-about-kidneys/types-kidney-diseases/polycystic-kidney-disease]  * Kidney cancer [https://www.kidneyfund.org/all-about-kidneys/other-kidney-problems/kidney-cancer]  * AKF Ambassador network [https://www.kidneyfund.org/government-affairs-advocacy/join-our-advocacy-network]  * Become a Kidney Health Coach [https://www.kidneyfund.org/get-involved/kidney-health-coach]  * Genetic testing and counseling for kidney disease [https://www.kidneyfund.org/all-about-kidneys/tests/genetic-testing-and-counseling]  * Insurance and costs for dialysis [https://www.kidneyfund.org/resource/insurance-and-costs-dialysis]  * PKD Foundation  [https://pkdcure.org/]

S2E4: "Our Voices Need to Be Heard", IgAN with Malkia White

Malkia White, an AKF Ambassador and member of AKF's Rare Kidney Disease Action Network (RKDAN), joins this episode of The Kidney Collective™ [https://www.kidneyfund.org/podcast] to talk about her journey living with IgA nephropathy (IgAN). Malkia shares how she was diagnosed with "Berger's disease" (what IgAN was previously called) as a child but did not understand her disease until adulthood. After learning she was in kidney failure, she did extensive research on the subject and became a vocal advocate for herself and others. She explains how her strong will to live and to fight to survive helped her persevere through the challenges of dialysis and waiting for a kidney transplant. She also tells Tamara and Mike how she started her social media campaign #ThatGirlNeedsAKidney while leaning on her village through it all, including family, friends and members of the rare kidney disease community. She emphasizes that "this illness has no face or look to it," and someone may look like the "picture of health" when they are struggling.   More Resources: * 'A Step Ahead of IgA Nephropathy' [https://www.kidneyfund.org/all-about-kidneys/other-kidney-diseases/iga-nephropathy]  * 'We go through a lot': Life with a rare kidney disease [https://www.kidneyfund.org/article/we-go-through-lot-life-rare-kidney-disease]  * Kidney donation and transplant [https://www.kidneyfund.org/kidney-donation-and-transplant]  * Life after transplant: Rejection prevention and healthy tips [https://www.kidneyfund.org/kidney-donation-and-transplant/life-after-transplant-rejection-prevention-and-healthy-tips]   * Kidney health research and innovations [https://www.kidneyfund.org/kidney-health-innovations]  * Mental health and kidney disease [https://www.kidneyfund.org/living-kidney-disease/mental-health-and-kidney-disease]  * Rare Kidney Disease Action Network [https://www.kidneyfund.org/rare-kidney-disease-action-network]  * Unknown Causes of Kidney Disease Project [https://www.kidneyfund.org/professionals-and-research/unknown-causes-kidney-disease-project]  * IgA Nephropathy Foundation  [https://igan.org/]

S2E3: "I'm Not Just Here for Basketball", AMKD with Alonzo Mourning

In honor of APOL1-Mediated Kidney Disease (AMKD) Awareness Day, this special episode of The Kidney Collective [https://www.kidneyfund.org/podcast]™ features a conversation between AKF President and CEO LaVarne A. Burton and Basketball Hall-of-Famer Alonzo Mourning. After they discuss the Miami Heat’s impressive showing on March 10, the two discuss his journey with kidney disease. They talk about how he pushed through symptoms to win a gold medal and Olympic Basketball Player of the Year at the Summer Olympics in Syndey, Australia; how his strong family ties led to a second cousin donating his kidney to Alonzo; and how the relationship of trust he built with his nephrologist led to him participating in a study that ultimately found the connection between APOL1 gene variants and kidney disease like his. Alonzo emphasizes how he believes the struggles he has gone through with kidney disease showed him he was “not just here for basketball” and gave him the amazing opportunity to help others through service and education. LaVarne and Alonzo discuss his work on the Power Forward [https://www.powerforwardtogether.com/] campaign with Vertex Pharmaceuticals, and how he wants to encourage others facing kidney disease not to blame themselves, but to be proactive in their health journeys.   This episode is sponsored by Vertex Pharmaceuticals, Inc.  More resources: * AMKD Awareness Day [https://www.kidneyfund.org/amkd-awareness-day]  * APOL1-Mediated Kidney Disease [https://www.kidneyfund.org/all-about-kidneys/other-kidney-diseases/apol1-mediated-kidney-disease]  * APOL1 genetic counselor guide [https://www.kidneyfund.org/apol1-genetic-counselor-guide]  * Focal segmental glomerulosclerosis (FSGS) [https://www.kidneyfund.org/all-about-kidneys/other-kidney-diseases/focal-segmental-glomerulosclerosis-fsgs-symptoms-causes-and-treatment]

S2E2: "You're Not Alone", CAKUT with Vincent Ko

The Kidney Collective™ [https://www.kidneyfund.org/podcast] co-hosts Tamara Ruggiero and Mike Spigler are joined by Vincent Ko, founder of KidneyFuture (formerly the CAKUT Foundation), to discuss congenital abnormalities of the kidneys and urinary tract (CAKUT). As a parent of a child living with CAKUT, Vincent shares how he felt learning about his daughter's diagnosis before she was even born and how he has used his personal experiences to create KidneyFuture [https://kidneyfuture.org/].  The three discuss how CAKUT differs from other types of kidney diseases and the unique challenges people living with CAKUT face, including navigating the transition from being a pediatric kidney patient to an adult patient. Vincent also shares how he discovered the two greatest desires of pediatric nephrologists and of CAKUT patients/parents are aligned: (1) a better understanding of whose CAKUT progresses and whose doesn't and (2) more therapies that are safe and effective for children living with CAKUT. He also explains to Tamara and Mike how the kidney community may not be too far off from those goals. More resources:  * Congenital Abnormalities of the Kidneys and Urinary Tract (CAKUT) [https://www.kidneyfund.org/all-about-kidneys/other-kidney-diseases/cakut]  * Caring for someone with kidney disease [https://www.kidneyfund.org/living-kidney-disease/care-providers]  * Kidney disease in children [https://www.kidneyfund.org/all-about-kidneys/kidney-disease-children]  * Camp Connections [https://www.kidneyfund.org/get-involved/camp-connections] * Kidney Kitchen® [https://kitchen.kidneyfund.org/]  * Genetic testing and counseling for kidney disease [https://www.kidneyfund.org/all-about-kidneys/tests/genetic-testing-and-counseling]