Kansikuva näyttelystä The Zebra Chronicles

The Zebra Chronicles

Podcast by Kathaleen and Henry Deane

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The Zebra Chronicles is a podcast created to shine light on the challenges the chronic illness and rare disease community face on a day to day basis. Hosted by Kathaleen Deane and her husband Henry Deane, the pair share stories of her life with chronic illness and what it is like to be a significant other with a spouse who is chronically ill. The pair also interview others to share their stories about diagnosis, treatment, daily struggles, and more.

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10 jaksot

jakson Ep.10 - Life with Type 1 Diabetes kansikuva

Ep.10 - Life with Type 1 Diabetes

On this episode Julia outlines her journey with Type 1 Diabetes. From a scary start to learning how to live a life with a defective pancreas. Julia shares an honest look at her chronic illness and how it effects her every day life. Use this link for more information on Type 1 Diabetes:  https://www.diabetes.org/diabetes/type-1 [https://www.diabetes.org/diabetes/type-1] If you are looking for support, check out Beyond Type 1: https://beyondtype1.org/ [https://beyondtype1.org/]  If you are looking for affordable insulin, Beyond Type 1 has created a website to help: https://getinsulin.org/ [https://getinsulin.org/]   Individuals can also go to the manufacturer of the insulin they take:  ie:  Lilly or Novo Nordisk or Sanofi or Viatris.   Julia uses an insulin pump made by Tandem. The technology is called Control IQ along with the CGM (continuous glucose monitor) to create an "artificial pancreas"    For more information on this technology, follow these links:  https://www.tandemdiabetes.com/landing-pages/x2-pediatric/?utm_source=BeyondType1&utm_medium=dgital_ad&utm_campaign=pediatric&utm_term=ML-1007983_A&utm_content= [https://www.tandemdiabetes.com/landing-pages/x2-pediatric/?utm_source=BeyondType1&utm_medium=dgital_ad&utm_campaign=pediatric&utm_term=ML-1007983_A&utm_content=]    and https://www.dexcom.com/continuous-glucose-monitoring?utm_source=adwords&utm_campaign=b&sfc=701f3000000athzAAA&gclid=CjwKCAjw4qCKBhAVEiwAkTYsPLZmi5-J2ncv0flpYREscgo3NWy5gBpfM150k5AhOR26Cq2TxSMKEBoCIHgQAvD_BwE [https://www.dexcom.com/continuous-glucose-monitoring?utm_source=adwords&utm_campaign=b&sfc=701f3000000athzAAA&gclid=CjwKCAjw4qCKBhAVEiwAkTYsPLZmi5-J2ncv0flpYREscgo3NWy5gBpfM150k5AhOR26Cq2TxSMKEBoCIHgQAvD_BwE] If you would like to reach out to Julia, please contact the zebrachronicles via Instagram @ zebra_pod or via email at  kathaleen.d@gmail.com

16. marras 2021 - 51 min
jakson Ep. 6 - A Zebra Searching for Answers kansikuva

Ep. 6 - A Zebra Searching for Answers

This episode we speak with Heather. She was diagnosed with PoTS after years of symptoms that were exacerbated after giving birth. She also faced misdiagnosis of Gitelman Syndrome and progressive symptoms relating to HSD, gastroparesis, cyclical vomiting syndrome, chronic idiopathic hives, Raynaud’s, an a yet to be diagnosed autoimmune disease. For more information on these chronic illnesses, check the links below: Gitleman Syndrome: https://rarediseases.org/rare-diseases/gitelman-syndrome/ [https://rarediseases.org/rare-diseases/gitelman-syndrome/] HSD: https://www.ehlers-danlos.com/what-is-hsd/ [https://www.ehlers-danlos.com/what-is-hsd/] Cyclical Vomiting Syndrome: https://rarediseases.org/rare-diseases/cyclic-vomiting-syndrome/ [https://rarediseases.org/rare-diseases/cyclic-vomiting-syndrome/] PoTS: http://www.dysautonomiainternational.org/page.php?ID=30 [http://www.dysautonomiainternational.org/page.php?ID=30] Gastroparesis: https://rarediseases.org/rare-diseases/gastroparesis/ [https://rarediseases.org/rare-diseases/gastroparesis/] Raynaud’s: https://www.mayoclinic.org/diseases-conditions/raynauds-disease/symptoms-causes/syc-20363571 [https://www.mayoclinic.org/diseases-conditions/raynauds-disease/symptoms-causes/syc-20363571] Chronic Idiopathic Hives: https://www.webmd.com/skin-problems-and-treatments/hives-diagnosis [https://www.webmd.com/skin-problems-and-treatments/hives-diagnosis]

19. loka 2021 - 53 min
Loistava design ja vihdoin on helppo löytää podcasteja, joista oikeasti tykkää
Loistava design ja vihdoin on helppo löytää podcasteja, joista oikeasti tykkää
Kiva sovellus podcastien kuunteluun, ja sisältö on monipuolista ja kiinnostavaa
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