Parenting a Child With Chronic Illness

Living With Chronic Illness as a Teen

In this episode of Partner Perspectives, host Leah E. Martin sits down with Lily, a teenager living with a rare autoinflammatory disease, to share her perspective growing up with chronic illness. Lily opens up about her earliest memories of being sick—frequent fevers, hospital visits, and years of unanswered questions before finally receiving a diagnosis in middle school. She reflects on what it was like to feel different from her peers, missing out on activities like gymnastics and school events, and navigating friendships while deciding when and how to share her illness with others. The conversation explores the daily reality of living with chronic illness as a teenager, including constant symptoms, managing flares, and the emotional challenge of wanting to feel “normal.” Lily shares how she copes on difficult days through writing, comfort routines, and staying connected with friends, while also acknowledging the temptation to push herself too far on the days she feels well. Lily also discusses her evolving independence—learning to advocate for herself while still relying on her mom for support, especially in medical settings. Inspired by her journey, she shares the story behind an app she is developing to help kids track symptoms, predict flares, and connect with others facing similar conditions. This episode is an honest and inspiring look at resilience, identity, and growing up with chronic illness, reminding listeners that while illness may shape your life, it does not define who you are.

Parenting a Child With Chronic Illness

In this episode of Partner Perspectives, host Leah E. Martin sits down with Lindsay, a lifelong caregiver and the mother of a teenage daughter living with a rare autoinflammatory disease. Lindsay shares the years-long struggle to get her daughter Lily properly diagnosed after recurring fevers, severe swelling, hives, and debilitating pain were repeatedly dismissed or misdiagnosed. She opens up about the frustration of being told nothing was wrong, the self-doubt that comes from fighting for answers, and the relief of finally finding a specialist who could finally put a name to what Lily was experiencing. The conversation explores what it means to parent a child with chronic illness: balancing the desire to create a normal childhood with the reality of limitations, helping a child learn to advocate for herself, and navigating the push and pull between independence and protection. Lindsay reflects on the moments Lily missed—from years of Halloween trick-or-treating to giving up competitive gymnastics—and the resilience that has emerged in spite of those losses. Today, Lily is channeling her experience into purpose by creating an app for children with autoinflammatory diseases and dreaming of becoming a pediatric rheumatologist. Lindsay also shares how caregiving has shaped every part of her life. Having cared for grandparents, parents, and now her daughter, she discusses the importance of support systems, carving out even a single hour for yourself, and trusting your instincts when you know something is wrong. She also talks about the company she founded to help other families prepare for long-term care and avoid crisis-driven decisions. Topics Covered - The long road to diagnosing a rare autoinflammatory disease - Medical gaslighting and trusting your instincts as a parent - Parenting a child with chronic illness - Balancing protection, independence, and normalcy - Helping children learn self-advocacy in healthcare - Grief over missed milestones and changing expectations - Caregiver burnout, support systems, and self-care - Turning adversity into purpose and advocacy - Planning for long-term care and aging parents Learn more about LTCareNav: https://ltcarenav.com

Supporting a Spouse With Multiple Sclerosis

In this episode of Partner Perspectives, host Leah E. Martin speaks with Will, the husband of Katie, whose story of living with multiple sclerosis was featured in the previous episode. Will shares what it was like to receive the phone call that changed their lives and how he navigated the uncertainty that followed Katie’s diagnosis. As a former television journalist himself, Will reflects on supporting Katie while she continued her demanding career as a morning news anchor. He opens up about learning what multiple sclerosis meant for their future, attending medical appointments to better understand the disease, and figuring out how to provide support without taking away Katie’s independence. Will also discusses how their relationship adapted over time, from managing energy and social commitments to making decisions about family life and long-term plans. Through it all, he emphasizes the importance of communication, asking questions, and maintaining the routines and experiences that brought them joy. This conversation highlights the often-overlooked partner perspective when chronic illness enters a relationship and offers insight for others navigating life alongside a loved one with MS. Topics Covered - Receiving and processing a multiple sclerosis diagnosis as a partner - Supporting a spouse with a chronic illness - Balancing a demanding career and health challenges - Navigating uncertainty and future planning - Maintaining normalcy and routines in a relationship - The importance of education, advocacy, and asking questions

Katie's Story: A News Anchor Living With Multiple Sclerosis

In this insightful episode of Partner Perspectives, host Leah E. Martin speaks with Katie Collett about living with multiple sclerosis (MS) and how a chronic, unpredictable illness reshapes identity, relationships, and partnership. Katie shares her journey from early symptoms and diagnosis to navigating the daily realities of MS, including fatigue, uncertainty, and the emotional weight of a condition with no clear roadmap. She opens up about advocating for herself in medical settings, managing fear about the future, and learning to accept help while maintaining independence. This conversation also highlights the partner perspective: how MS impacts communication, roles within a relationship, and long-term planning. Katie reflects on grief for the life she once imagined, resilience in the face of change, and the importance of empathy, flexibility, and honesty in sustaining a strong partnership while living with chronic illness. Topics Covered: - Recognizing early MS symptoms and diagnosis - Living with chronic illness and uncertainty - Navigating healthcare, self-advocacy, and treatment - How multiple sclerosis affects relationships - Redefining independence, identity, and partnership - Emotional resilience and life planning with MS Connect with Katie: https://www.instagram.com/katiecolletttv https://www.facebook.com/KatieCollettTV

How Brian's Wife Helped Him Survive Cancer

In this episode of Partner Perspectives host Leah E. Martin sits down with Brian, a testicular cancer survivor, to hear his side of the journey after previously hearing his wife's perspective — from diagnosis and treatment to survivorship, advocacy, and purpose. Brian shares the moment he discovered a lump, the fear of the unknown, and how quickly life shifted from routine to crisis. He walks listeners through the realities of testicular cancer treatment, including orchiectomy, chemotherapy, and major abdominal surgery, offering an unfiltered look at both the physical toll and the mental weight of cancer. Beyond treatment, Brian opens up about anxiety, depression, masculinity, and the difficulty many men face when asking for help. He reflects on the critical role Jamie played as his partner and caregiver, and how their communication and relationship evolved through fear, uncertainty, and recovery. This episode also explores the life-changing impact of community. Brian discusses finding connection and purpose through the Testicular Cancer Awareness Foundation and men’s cancer support groups, where shared experience, humor, and honesty help survivors feel less alone. Today, advocacy, mentorship, and mental health support have become central to Brian’s post-cancer life. Topics Covered: - Testicular cancer diagnosis and early warning signs - Orchiectomy, chemotherapy, and long-term recovery - Mental health, anxiety, and depression after cancer - The role of partners and caregivers during treatment - Men’s health stigma and asking for help - Finding community, advocacy, and purpose after cancer Follow the show: https://www.instagram.com/partnerperspectivespod/