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The Zebra Chronicles

Podcast de Kathaleen and Henry Deane

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Historias personales y conversaciones

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The Zebra Chronicles is a podcast created to shine light on the challenges the chronic illness and rare disease community face on a day to day basis. Hosted by Kathaleen Deane and her husband Henry Deane, the pair share stories of her life with chronic illness and what it is like to be a significant other with a spouse who is chronically ill. The pair also interview others to share their stories about diagnosis, treatment, daily struggles, and more.

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10 episodios

episode Ep.10 - Life with Type 1 Diabetes artwork

Ep.10 - Life with Type 1 Diabetes

On this episode Julia outlines her journey with Type 1 Diabetes. From a scary start to learning how to live a life with a defective pancreas. Julia shares an honest look at her chronic illness and how it effects her every day life. Use this link for more information on Type 1 Diabetes:  https://www.diabetes.org/diabetes/type-1 [https://www.diabetes.org/diabetes/type-1] If you are looking for support, check out Beyond Type 1: https://beyondtype1.org/ [https://beyondtype1.org/]  If you are looking for affordable insulin, Beyond Type 1 has created a website to help: https://getinsulin.org/ [https://getinsulin.org/]   Individuals can also go to the manufacturer of the insulin they take:  ie:  Lilly or Novo Nordisk or Sanofi or Viatris.   Julia uses an insulin pump made by Tandem. The technology is called Control IQ along with the CGM (continuous glucose monitor) to create an "artificial pancreas"    For more information on this technology, follow these links:  https://www.tandemdiabetes.com/landing-pages/x2-pediatric/?utm_source=BeyondType1&utm_medium=dgital_ad&utm_campaign=pediatric&utm_term=ML-1007983_A&utm_content= [https://www.tandemdiabetes.com/landing-pages/x2-pediatric/?utm_source=BeyondType1&utm_medium=dgital_ad&utm_campaign=pediatric&utm_term=ML-1007983_A&utm_content=]    and https://www.dexcom.com/continuous-glucose-monitoring?utm_source=adwords&utm_campaign=b&sfc=701f3000000athzAAA&gclid=CjwKCAjw4qCKBhAVEiwAkTYsPLZmi5-J2ncv0flpYREscgo3NWy5gBpfM150k5AhOR26Cq2TxSMKEBoCIHgQAvD_BwE [https://www.dexcom.com/continuous-glucose-monitoring?utm_source=adwords&utm_campaign=b&sfc=701f3000000athzAAA&gclid=CjwKCAjw4qCKBhAVEiwAkTYsPLZmi5-J2ncv0flpYREscgo3NWy5gBpfM150k5AhOR26Cq2TxSMKEBoCIHgQAvD_BwE] If you would like to reach out to Julia, please contact the zebrachronicles via Instagram @ zebra_pod or via email at  kathaleen.d@gmail.com

16 de nov de 2021 - 51 min
episode Ep. 6 - A Zebra Searching for Answers artwork

Ep. 6 - A Zebra Searching for Answers

This episode we speak with Heather. She was diagnosed with PoTS after years of symptoms that were exacerbated after giving birth. She also faced misdiagnosis of Gitelman Syndrome and progressive symptoms relating to HSD, gastroparesis, cyclical vomiting syndrome, chronic idiopathic hives, Raynaud’s, an a yet to be diagnosed autoimmune disease. For more information on these chronic illnesses, check the links below: Gitleman Syndrome: https://rarediseases.org/rare-diseases/gitelman-syndrome/ [https://rarediseases.org/rare-diseases/gitelman-syndrome/] HSD: https://www.ehlers-danlos.com/what-is-hsd/ [https://www.ehlers-danlos.com/what-is-hsd/] Cyclical Vomiting Syndrome: https://rarediseases.org/rare-diseases/cyclic-vomiting-syndrome/ [https://rarediseases.org/rare-diseases/cyclic-vomiting-syndrome/] PoTS: http://www.dysautonomiainternational.org/page.php?ID=30 [http://www.dysautonomiainternational.org/page.php?ID=30] Gastroparesis: https://rarediseases.org/rare-diseases/gastroparesis/ [https://rarediseases.org/rare-diseases/gastroparesis/] Raynaud’s: https://www.mayoclinic.org/diseases-conditions/raynauds-disease/symptoms-causes/syc-20363571 [https://www.mayoclinic.org/diseases-conditions/raynauds-disease/symptoms-causes/syc-20363571] Chronic Idiopathic Hives: https://www.webmd.com/skin-problems-and-treatments/hives-diagnosis [https://www.webmd.com/skin-problems-and-treatments/hives-diagnosis]

19 de oct de 2021 - 53 min
Muy buenos Podcasts , entretenido y con historias educativas y divertidas depende de lo que cada uno busque. Yo lo suelo usar en el trabajo ya que estoy muchas horas y necesito cancelar el ruido de al rededor , Auriculares y a disfrutar ..!!
Muy buenos Podcasts , entretenido y con historias educativas y divertidas depende de lo que cada uno busque. Yo lo suelo usar en el trabajo ya que estoy muchas horas y necesito cancelar el ruido de al rededor , Auriculares y a disfrutar ..!!
Fantástica aplicación. Yo solo uso los podcast. Por un precio módico los tienes variados y cada vez más.
Me encanta la app, concentra los mejores podcast y bueno ya era ora de pagarles a todos estos creadores de contenido

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