Dementia Caregiving, Estate Planning & End-of-Life Conversations: What Families Need to Know

The One Where They Tried to Cancel the Podcast

Just days after sharing a positive update about our mom's dementia care, everything changed. In this episode of Your Brain on Mom, we discuss a shocking conversation with a social worker who told us the nursing home was unhappy about our podcast and wanted us to stop talking about our experiences. The problem? The person making the accusations admitted they had never actually listened to the show. We dive into the challenges families face when advocating for loved ones living with dementia, the fear of speaking out about long-term care, and why so many caregivers feel pressured to stay quiet. We also share a series of frustrating incidents involving a room camera, communication breakdowns, and ongoing concerns about accountability inside the nursing home system. Along the way, we discuss our mom's pseudo-bulbar affect, the realities of comfort care versus behavioral care, and the emotional complexity of trying to ensure dignity, safety, and happiness for a parent living with dementia. If you've ever felt dismissed, questioned, or labeled as "difficult" simply for advocating for someone you love, this conversation will feel very familiar. About the Podcast Your Brain on Mom is a podcast hosted by siblings Wendy and Barry as they navigate the challenges, heartbreak, humor, and unexpected moments of caring for their mother living with dementia. Through candid conversations and real-life stories, they explore caregiving, dementia advocacy, family dynamics, long-term care, and the realities of supporting an aging parent. Learn more about your ad choices. Visit megaphone.fm/adchoices [https://megaphone.fm/adchoices]

The One Meeting That Didn't Make Us Angry

Caregiving often feels like an endless series of meetings, phone calls, care plans, and crisis management. But occasionally, a meeting leaves you feeling hopeful. In this episode of Your Brain on Mom, Wendy and Barry share a surprisingly positive experience after meeting with a new care team member at their mom's long-term care facility. For the first time in a long time, the conversation wasn't about managing complaints or defending their concerns—it was about improving their mom's quality of life. They discuss the challenges of navigating dementia care, advocating for a loved one in a nursing home, and the importance of collaboration between families and healthcare professionals. Along the way, they share stories about their mom's latest adventures, Barry's upcoming career change, and the unexpected ways caregiving has strengthened their sibling relationship. This episode explores the reality of dementia caregiving, family advocacy, long-term care, and finding moments of connection and hope during one of life's most difficult journeys. If you're caring for a parent with dementia, supporting a loved one in long-term care, or navigating the complexities of the healthcare system, this episode will remind you that even in difficult circumstances, meaningful connections can still emerge. Learn more about your ad choices. Visit megaphone.fm/adchoices [https://megaphone.fm/adchoices]

Back in the Nursing Home: Now What? Navigating Dementia Care, Medication Changes, and a Healthcare System No One Explains

This Is Your Brain on Mom picks up right where the chaos left off: Mom is back at the nursing home after a month in the hospital — restrained, overmedicated, medically cleared, psychiatrically cleared… and somehow still stuck in the middle of a system that no one seems able to explain. In this episode, Wendy and Barry unpack the exhausting reality of dementia care when doctors, hospitals, long-term care facilities, and families are all speaking different languages. From endless medication changes to unanswered questions, they share the frustration of trying to advocate for someone you love while navigating a healthcare system that often feels reactive instead of supportive. Through stories about Mom yelling at Murder, She Wrote, arguing with The Price Is Right, and terrifying nurses with her volume level, this episode balances heartbreak, frustration, and humor in the way only real caregivers can. If you’re supporting a parent with Alzheimer’s, dementia, or cognitive decline — or trying to navigate nursing homes, hospitals, and impossible decisions — this episode will remind you that you are not alone. Produced by Aflalo Communications Inc. (www.aflalo.com) Learn more about your ad choices. Visit megaphone.fm/adchoices [https://megaphone.fm/adchoices]

Dementia Caregiving, Estate Planning & End-of-Life Conversations: What Families Need to Know

What happens when the person who helps families plan for death becomes a dementia caregiver herself? In this episode of This Is Your Brain on Mom, Wendy and Barry speak with Canadian funeral director, educator, and author Minnelle Williams, founder of Ending Well with Minnelle Ending Well with Minnelle. What starts as a conversation about funeral planning quickly becomes deeply personal when Minnelle’s father is diagnosed with dementia—shifting everything she thought she knew about being “prepared.” Suddenly, estate planning isn’t theoretical. Advance directives aren’t paperwork. And end-of-life conversations aren’t optional—they’re urgent. Minnelle shares how her lived experience reshaped her work, leading her to focus on helping families navigate end-of-life planning with more clarity, less fear, and earlier conversations. She also discusses her book Plan Well. Live Well, a practical guide to documenting wishes and reducing crisis-driven decision-making. This is a conversation about what no one prepares you for—not just death, but the long emotional road leading up to it. If you’re caring for a loved one with dementia or trying to make sense of caregiving decisions before crisis hits, this episode will change how you think about planning. 🎧 Listen now and subscribe to This Is Your Brain on Mom for honest conversations about dementia, caregiving, grief, and the reality families live every day. Learn more about your ad choices. Visit megaphone.fm/adchoices [https://megaphone.fm/adchoices]

When Dementia Changes the Person You Know | Mixed Dementia & Caregiver Grief

In this episode of This Is Your Brain on Mom, Wendy and Barry talk about one of the hardest parts of dementia caregiving: the moment your parent still recognizes you, but you no longer fully recognize them. After their mother’s diagnosis shifted from Alzheimer’s disease to mixed dementia — including Frontotemporal Dementia (FTD) and vascular dementia — they began facing personality changes, emotional outbursts, constant yelling, and the painful reality that dementia affects far more than memory. The siblings open up about caregiver guilt, hospital life, behavioral changes, and the complicated emotions that come with trying to stay connected to someone who feels different every day. Raw, funny, heartbreaking, and painfully honest, this episode captures the reality of living with dementia as a family — beyond the movie version people expect. This Is Your Brain on Mom is a podcast about dementia caregiving, family dynamics, advocacy, humor, and surviving the chaos of caring for a parent with cognitive decline. Learn more about your ad choices. Visit megaphone.fm/adchoices [https://megaphone.fm/adchoices]