Adult Special Needs Caregiving | Find Adult Special Needs Resources, Caregiver Community Support, Disabilities Care, Special Needs Parenting, Life-long Carer, Special Needs Advocates
11 | When an Adult Sibling Becomes the Caregiver: conversation with Stefanie Hennes about Ralph’s Law and Advocacy In this episode of Adult Special Needs Caregiving, host Jenny Olson sits down with Stefanie Hennes, a sibling caregiver who stepped up to care for her brother Ralph, who has autism and an intellectual disability. Stefanie shares what it was really like moving Ralph across state lines to live with her family after their mom passed away suddenly and their dad could no longer provide care. If you're a caregiver dealing with Medicaid waivers, waiting lists, or state disability services, this episode is packed with real talk and practical tips. Stefanie walks through the frustrating legal roadblocks she hit when Ralph's Medicaid waiver services didn't transfer between states, and how that fight led her to work with Maryland lawmakers to pass "Ralph's Law," legislation designed to help other families avoid the same struggle. You'll also hear how she prepared her own kids and husband for a major family change, tips on organizing important documents and disability records, and heartfelt stories about what it's really like to be both a sibling and a full time caregiver. Whether you're a parent, a sibling caregiver, or planning for the future of a loved one with special needs, this conversation offers hope, honesty, and advice. Follow and subscribe to the podcast! We'd also love ratings and reviews to help more people discover the show. Thank you for listening! Follow Stefanie and Ralph: https://www.instagram.com/spreadingjoywithralphieboy/ [https://www.instagram.com/spreadingjoywithralphieboy/] Follow the podcast: https://www.instagram.com/adult.special.needs.caregiving/ [https://www.instagram.com/adult.special.needs.caregiving/]
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