401 - A BA Journey - Kasai Only to Adult Transplant

BARE IT ALL Coffee Talk: Episode 3 - Guiding Through the Storm: The Role of Pediatric Liver Social Workers with Katie Sclafani, LCSW, CCTSW

In this episode of BARE IT ALL Coffee Talk, we welcome Katie Sclafani, Licensed Clinical Social Worker and Certified Clinical Transplant Social Worker with the Sala Institute for Child & Family Centered Care at NYU Langone’s Hassenfeld Children’s Hospital. Katie walks us through the invaluable role social workers play in the pediatric liver disease journey — from diagnosis through transplant and every step in between. As part of the care team, social workers help ensure families are informed, connected to resources, and supported as they navigate complex medical decisions and transitions. Whether you're a caregiver, healthcare provider, or advocate, this conversation offers an important look into how social workers guide and empower families during some of their most challenging moments. Links for organizations mentioned. * Ronald McDonald House Charities | RMHC [https://rmhc.org/] * Harboring Hearts [https://www.harboringhearts.org/] * Friends of Karen - Friends of Karen [https://www.friendsofkaren.org/]Lend-A-Hand: Bare Inc. [https://www.bareinc.org/s-projects-side-by-side] If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, please don't hesitate to contact us at contactus@bareinc.org. Let's amplify our voices and foster understanding together." Connect with us: • ⁠⁠⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠⁠⁠ [https://www.bareinc.org/] • ⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠ [https://www.instagram.com/bareinc_org/] • ⁠⁠⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠⁠⁠ [https://x.com/BAREInc_org] • ⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠ [https://www.facebook.com/profile.php?id=100081124818113] • ⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠⁠ [https://www.youtube.com/@bareinc.2022] If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association, or COTA.  The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant, and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠⁠⁠ [https://www.cota.org/getstarted] to learn more about how they can help. Music by ⁠⁠⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠⁠⁠ [https://pixabay.com/users/magnetic_trailer-27466606/?utm_source=link-attribution&utm_medium=referral&utm_campaign=music&utm_content=111907] from ⁠⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠⁠ [https://pixabay.com/music//?utm_source=link-attribution&utm_medium=referral&utm_campaign=music&utm_content=111907] Listen now on Spotify, Apple Podcasts, or wherever you get your shows.#BiliaryAtresia #KasaiProcedure #MedicalJourney #Parenting #BAREItAll #CoffeeTalk

BARE It All Coffee Talk – Episode 3: Special Edition Update with Rachel Perez

In this heartfelt special edition, we sit down once again with Rachel Perez for an extraordinary update following her emotional meeting with her donor family — a rare and powerful moment that few get to experience. Rachel shares her raw, personal reflections from this deeply meaningful encounter, giving listeners an intimate glimpse into a story of life, loss, gratitude, and connection. This episode is more than an update; it’s a reminder of the human stories that live behind every donation and every second chance. Grab your coffee, your tissues, and join us for a conversation that is as rare as it is unforgettable. Listen now on all major platforms

🎙️ BARE It All Coffee Talk with Rachel: Life as an Adult Biliary Atresia Survivor

This week on BARE It All Coffee Talk, Stephanie sits down with the incredible Rachel, an adult survivor of Biliary Atresia, for a raw, heartfelt, and eye-opening conversation. What is it really like navigating adulthood with a rare pediatric liver disease? Rachel shares her journey, the challenges and triumphs, and what she wishes more people understood. 🌟 Whether you're part of the BA community or just discovering it, this episode is a must-listen. PLUS: Don’t miss this one — a powerful and riveting update from Rachel drops next week. Trust us, you’ll want to be caught up. 🎧 Grab your coffee and tune in now 🎧

401 - A BA Journey - Kasai Only to Adult Transplant

🎧 Season Premiere – BARE It All Coffee Talk ☕ Welcome to a brand-new season of BARE It All Coffee Talk! We're kicking things off with powerful conversations and exciting updates—we're now streaming on all major podcast platforms and on YouTube! In this emotional and eye-opening episode, we sit down with Brooks, an adult living with biliary atresia. Brooks shares his deeply personal journey, the medical challenges he's faced, and the mindset that helps him keep moving forward. Whether you’re navigating a rare condition yourself or just want to hear an incredible story of resilience and hope, this episode is a must-listen. 🔔 Don’t forget to subscribe, rate, and share to help us spread awareness and inspire others. Topics Covered: * Living with biliary atresia as an adult * Facing chronic illness with courage * Finding strength through community and conversation #BAREItAllCoffeeTalk #BiliaryAtresia #PatientStories #PodcastSeasonPremiere #ChronicIllnessAwareness #HealthJourney #Resilience

Coffee Talk with Sarah & Dan

On this BARE It All Coffee Talk episode, Stephanie sits down with Sarah and Dan to share their journey with Biliary Atresia. They open up about their experience raising a child who’s had a Kasai procedure and offers insight into the emotional and physical challenges of navigating such a medical journey. Tune in to hear about their unique perspectives on this life-changing experience from mom and dad. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠⁠contactus@bareinc.org⁠⁠⁠⁠ [contactus@bareinc.org]. Let's amplify our voices and foster understanding together." Connect with us: • ⁠⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠⁠ [https://www.bareinc.org/] • ⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠ [https://www.instagram.com/bareinc_org/] • ⁠⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠⁠ [https://x.com/BAREInc_org] • ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠ [https://www.facebook.com/profile.php?id=100081124818113] • ⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠ [https://www.youtube.com/@bareinc.2022] If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠⁠ [https://www.cota.org/getstarted] to learn more about how they can help. Music by ⁠⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠⁠ [https://pixabay.com/users/magnetic_trailer-27466606/?utm_source=link-attribution&utm_medium=referral&utm_campaign=music&utm_content=111907] from ⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠ [https://pixabay.com/music//?utm_source=link-attribution&utm_medium=referral&utm_campaign=music&utm_content=111907] #BiliaryAtresia #KasaiProcedure #MedicalJourney #Parenting #BAREItAll #CoffeeTalk