In Dreams I Stride: Adjusting to life with aggressive multiple sclerosis

My diagnosis with multiple sclerosis took a lot less time than I know many people have to wait and I'm grateful for that. Even so, it wasn't officially diagnosed until several months after it was first raised as a possibility. In this episode, I talk about that a little bit more and how diagnosis led to starting a disease modifying therapy but, despite it stopping new brain activity (inflammation and lesions), I continued to deteriorate. Visit my blog at indreamsistride.com [https://anchor.fm/dashboard/episode/indreamsistride.com] and email me at donna@indreamsistride.com [https://anchor.fm/dashboard/episode/donna@indreamsistride.com] if you have a question you’d like me to answer in the podcast. For the transcript of this episode, visit https://indreamsistride.com/podcast/multiple-sclerosis-diagnosis/ [https://indreamsistride.com/podcast/when-was-the-onset-of-my-multiple-sclerosis/] --- Send in a voice message: https://anchor.fm/indreamsistride/message

I often get asked about when my multiple sclerosis began and the honest answer is, nobody is really too sure. The best answer seems to be 2016, when a noticeable decline in coordination began and a general feeling of being "not quite right". However, it would only become obvious that there was something more going on in January 2018, when 12 days of struggling to walk properly culminated in the fall that led to me being hospitalised and fast-tracked investigations that would uncover suspected multiple sclerosis... Visit my blog at indreamsistride.com [indreamsistride.com] and email me at donna@indreamsistride.com [donna@indreamsistride.com] if you have a question you’d like me to answer in the podcast. For the transcript of this episode, visit https://indreamsistride.com/podcast/when-was-the-onset-of-my-multiple-sclerosis/ [https://indreamsistride.com/podcast/when-was-the-onset-of-my-multiple-sclerosis/] --- Send in a voice message: https://anchor.fm/indreamsistride/message

"I told you, “They believe I have multiple sclerosis.” And oh how your ears pricked up. Because you know everything about multiple sclerosis. You knew, for example, with a cast iron certainty I don’t think I’ve witnessed in anyone before, that I would get over it." Find the full post with images, video and readalong narration at bit.ly/getoverms (Please note, the narration is auto-generated to give people extra ways to access my blog. I appreciate this style might not work for everyone but hopefully offering this audio content will be of help to some!)

On 31/12/2017, I would take my first Couch to 5K run. Less than 2 weeks later, I was struggling to walk properly. As of October 2019, I am a full timer powerchair user, requiring full time care. Learn about my multiple sclerosis journey so far. Find the full post with images, video and readalong narration at http://bit.ly/clumsyms (Please note, the narration is auto-generated to give people extra ways to access my blog. I appreciate this style might not work for everyone but hopefully offering this audio content will be of help to some!)