Invisible Strength

From Life Support to Lupus Warrior: How Semi Found Strength, Self-Advocacy & Hope | Invisible Strength Podcast

45 min · 20. maj 2026
episode From Life Support to Lupus Warrior: How Semi Found Strength, Self-Advocacy & Hope | Invisible Strength Podcast cover

Beskrivelse

From life support to lupus advocacy, Semi shares her raw journey with lupus — the grief, the isolation, self-advocacy wins, lifestyle shifts, and how she created a children’s book to help kids understand the disease. A must-listen for anyone navigating autoimmune conditions who needs hope and real talk. Resources & Links:• Semi’s Children’s Book: Luna and the Tiny Superhero → https://amzn.to/4cs1sGY [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbm5lTXkzR2lEUHR0WU5lTVptVklnSWVqRU94d3xBQ3Jtc0ttcm1OWjdhTHZRbkM3TkVkYW9qN052VFQxV2lEa0xCTTEzMnBiRzBWYXFWdDJRTFJJUV9hazJOUmNreUl4dktoN2xjX1BDMklTWWZseTN4Y1Z6ZHZ0bmdGVkg5N2JJNkN2UndpdDZXZ1lodmlJb3ZoMA&q=https%3A%2F%2Famzn.to%2F4cs1sGY&v=ky2k8bfiBaw]• Join our free community: https://invigorateyourjourney.com/ [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqa1IwS2RqX0JVUzhucEQzSE1kdzRGRjJLanJ1d3xBQ3Jtc0trSXdyeDFQaWdPeGRkTkt1NWowaW5SbC0weTNSMDd3anZUTnFudDFoSFR0UjBNNWs2c0xCYTV2bmRNVUg5UWpkQlc1OHMxb0tMT0NkTVJLRnNZU1FYczYyZ2hPRGRfeXYtNWI2R0dSUjBaYUhrbmUzSQ&q=https%3A%2F%2Finvigorateyourjourney.com%2F&v=ky2k8bfiBaw]#LupusWarrior #InvisibleIllness #Autoimmune #ChronicIllnessSupport ⚠️ Disclaimer: This content is for education and shared experiences only and is not medical advice. Always consult your healthcare team before making changes. This page contains affiliate links that won’t change your price but will share some commission. As an Amazon Associate, we earn from qualifying purchases.

Kommentarer

0

Vær den første til at kommentere

Tilmeld dig nu og bliv en del af Invisible Strength-fællesskabet!

Kom i gang

1 måned kun 9 kr.

Derefter 99 kr. / måned · Opsig når som helst.

  • Podcasts kun på Podimo
  • 20 lydbogstimer pr. måned
  • Gratis podcasts

Alle episoder

78 episoder

episode Two in a Million: Webb Kosich on Aplastic Anemia, a Sister's Bone Marrow, and Fighting His Way Back to D1 Soccer | Invisible Strength Podcast cover

Two in a Million: Webb Kosich on Aplastic Anemia, a Sister's Bone Marrow, and Fighting His Way Back to D1 Soccer | Invisible Strength Podcast

Imagine being a 19-year-old college freshman, playing in every game of your first Division 1 soccer season — and then, over a single winter break, watching your body start to fail. Unexplained bruises. Out of breath after a few steps. Sores that wouldn't heal. For Webb Kosich, that was the beginning of a months-long fight against aplastic anemia, a rare bone marrow failure disease that strikes roughly two people in a million each year. In this episode, Webb takes Karin and Chris back through the whole journey: the terrifying weeks of waiting for a diagnosis, being helicoptered to Johns Hopkins, nine straight days of chemotherapy, and the bone marrow transplant from his sister — his "perfect match." He's honest about the darkest moments too: dropping out of school, quitting the sport that defined him, losing 40 pounds, and watching his own father cry for the first time. But this is ultimately a story about what carried him through — family, a tight group of friends, faith, and the stubborn goal he wrote down next to his hospital bed: get back on the field. Whether you're newly diagnosed, supporting someone who is, or just need a reminder that the little things matter more than we think, Webb's perspective will stay with you. Hit play and hear how he found his way back. Listen now, then take our free 2-minute quiz at invigorateyourjourney.com [invigorateyourjourney.com] to find the support that meets you where you are. * Symptoms can sneak up disguised as nothing. Webb brushed off early bruising and fatigue as a rash or being out of shape — a reminder to take persistent, unexplained changes seriously. * The waiting can be harder than the diagnosis. Sometimes a diagnosis, even a scary one, brings a strange relief because you finally have one answer to work with. * You can't do it alone — and you shouldn't try. Webb credits his survival to his parents staying by his hospital bed every single night and a friend group that took seven back-to-back calls the night he was diagnosed. * Goals are fuel. Writing down concrete goals (start, make all-conference, score goals, live normally again) gave Webb something to fight toward on his hardest days. * Vulnerability is strength, not weakness. Especially for young men and athletes, letting people see you struggle deepens relationships and actually strengthens leadership. * "Stack up little wins." A walk outside, sitting in the sun, a call to grandparents — small actions add up and boost morale when the big picture feels impossible. * You are more than your worst season — or your diagnosis. Webb learned his identity isn't soccer, and that letting go of that single definition was its own kind of freedom. Chapters: * 00:00 — Welcome and introductions * 01:46 — What soccer gave Webb beyond the game * 03:55 — The first strange symptoms over winter break * 05:43 — The fear of the unknown and the weeks of waiting * 07:16 — What aplastic anemia actually is * 08:47 — Receiving the news: leukemia or aplastic anemia * 12:42 — The first time stepping back on the pitch * 19:40 — How faith became part of the journey * 21:34 — Suffering, compassion, and showing up for others * 23:29 — Feeling alone even with a great support system * 30:43 — A new chapter: transferring to GW for a final season * 35:25 — What "invisible strength" means to Webb * 36:50 — Advice for anyone in the thick of it right now * 40:12 — Where to follow Webb + closing 🌐Resources and FREE quiz: https://www.invigorateyourjourney.com [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqa1VLNm1XZFlIWGc5YmVUUnMwYlM1N3NLNFRiZ3xBQ3Jtc0ttWlpNV1RwUVJxZXpFdWx1bWJCbmRVNzR4Z3pvc3JCZUczczBBcHV5b1kyTjB5US1IX3VHQjJ4WDdKYTBvRGRUQUVWM0Nna3ctdTR1ajdpcVdRYThlbTMyMlZfbmlxY2VkZE5HOEREOTVVWEhSdTQ3dw&q=https%3A%2F%2Fwww.invigorateyourjourney.com%2F&v=3dJSD7RRQKg] 📲 Follow Webb on Instagram @webb.kosich11 ⚠️ Disclaimer: This content is for education and shared experiences only and is not medical advice. Always consult your healthcare team before making changes.

17. juni 202632 min
episode Chasing Goals, Not Ghosts: Mireille Siné on Running 200 Miles with Lupus cover

Chasing Goals, Not Ghosts: Mireille Siné on Running 200 Miles with Lupus

Lupus put her in the ICU in college. She came back to run 14 marathons, 5 ultras, and 200 miles from Boston to NYC. Run coach Mireille Siné on training with autoimmune disease — flares, fatigue, and the mindset shift that changes everything. In this episode of Invisible Strength, Karin and Chris talk with Mireille Siné — certified run coach, AIP nutrition coach, and the first Black woman to run 200 miles from Boston to New York City. Mireille shares her full story: the college stress that preceded her lupus diagnosis, the blood clot that took three ER visits to catch, chemotherapy and medical leave, and the slow, deliberate comeback that started with a quarter-mile run. We get practical: how Mireille structures training around flares with her stoplight protocol, why sleep is her non-negotiable recovery anchor, how she approaches nutrition and meal prep for inflammation, and how to tell normal training fatigue from the start of a flare. Plus the mental game — why "you're not gonna get anywhere chasing a ghost," and what invisible strength means to her. ✨ FREE QUIZ: Not sure where to start on your own health journey? Take our free quiz → https://invigorateyourjourney.com/quiz/ [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbFpLR0EzaUNGYWJ1R0tWZ3luWDFlMndybE9SZ3xBQ3Jtc0trTzN5bjZiYjNMdW1TQ2o3bWZtMEJ6dHFadENoVG1jdUFPMHR3bUYtUUMxaUx0SURZUkkwSlBZMkxWNDF5d3hVTzE2aGlWTW5BTFlyc0Etamk5RmJER1Nkb1pXQ285eldQOUYtLURGRFJFNkpDelBZYw&q=https%3A%2F%2Finvigorateyourjourney.com%2Fquiz%2F&v=fnp8lXrLig8] ⏱️ CHAPTERS 00:02 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=2s] Meet Mireille 02:02 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=122s] Training with compassion 04:08 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=248s] The lupus diagnosis story 09:14 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=554s] Coming back: the first mile 13:04 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=784s] Self-doubt and setbacks 16:01 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=961s] The marathon that means the most 22:01 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=1321s] Sleep, nutrition, community 26:54 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=1614s] Coaching autoimmune athletes 30:23 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=1823s] The stoplight protocol for flares 34:14 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=2054s] Fatigue vs. flare: how to tell 35:39 [https://www.youtube.com/watch?v=fnp8lXrLig8&t=2139s] "Chasing a ghost" — the mindset shift40:44 What invisible strength means42:25 What's next for Mireille 🌱 Community, resources & coaching: https://www.invigorateyourjourney.com [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbGdoaE9rXzlCbWhac1JXS1Q5aDVPRG9MaEJuQXxBQ3Jtc0tuT0w1Yk9fbDdsQWJPTVdySWd5cjMwczBSS1pHWnQtbU9TZzcya09DWmtfYWZPVVJ6NFh0eXVFZEFmZnRvLVBKX0daR1pZZ0tROGNLbWRXbENYRGpGOTFLSzdjZ01jdFFSaWpLVW5FMlA3TDB0SE9YQQ&q=https%3A%2F%2Fwww.invigorateyourjourney.com%2F&v=fnp8lXrLig8] 🏃🏾‍♀️ Mireille: ‪@heycoachmireille‬ [https://www.youtube.com/@heycoachmireille] and https://www.coachedbymireille.com/ [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbGlsUXJHckF1YVRCV1V3ekx3UHJWS19rSXdIUXxBQ3Jtc0tsOHREOGl3eUF0a21ELXdNcVAxbGEybXIyQk44SjVURjg4R0Uwd1Z0NFVuWm43TXdESUkyY21fX2pUZFVwWWZMNWhYbFFUWmtIU2ZZOGFWa3l2TFI3OEFMUXh2aHFvTnJ3OUR4bFJiQW5oMHJzLTExZw&q=https%3A%2F%2Fwww.coachedbymireille.com%2F&v=fnp8lXrLig8] 🎧 Subscribe for real conversations around: Lupus, autoimmune disease, chronic illness, healing, fatigue, mindset, movement, resilience, and invisible illness support. 💬 COMMENT BELOW: What's something people don't understand about living with chronic illness? #Lupus [https://www.youtube.com/hashtag/lupus] #ChronicIllness [https://www.youtube.com/hashtag/chronicillness] #AutoimmuneDisease [https://www.youtube.com/hashtag/autoimmunedisease] #InvisibleIllness [https://www.youtube.com/hashtag/invisibleillness] #LupusWarrior [https://www.youtube.com/hashtag/lupuswarrior] #LupusAwareness [https://www.youtube.com/hashtag/lupusawareness] #HealingJourney [https://www.youtube.com/hashtag/healingjourney] #ChronicFatigue [https://www.youtube.com/hashtag/chronicfatigue] #ChronicIllnessSupport [https://www.youtube.com/hashtag/chronicillnesssupport] #AutoimmuneSupport [https://www.youtube.com/hashtag/autoimmunesupport] #InvisibleStrengthPodcast [https://www.youtube.com/hashtag/invisiblestrengthpodcast] ⚠️ Disclaimer: This content is for education and shared experiences only and is not medical advice. Always consult your healthcare team before making changes.

10. juni 202636 min
episode From the Soccer Field to the Doctor's Office: Baylee Simmelink on Growing Up with Celiac Disease cover

From the Soccer Field to the Doctor's Office: Baylee Simmelink on Growing Up with Celiac Disease

When Baylee Simmelink was nine years old, she was sick every night before bed — stomach cramps, vomiting, real pain. For a while, the adults around her thought she was just trying to avoid bedtime. Sound familiar? For so many people living with chronic and invisible illness, getting someone to believe you is half the battle. In this episode of Invisible Strength, Karin sits down with Baylee — a college soccer player at Northwest Missouri State University and elementary education major — who was diagnosed with celiac disease at age 9. Baylee shares what it was like growing up gluten-free before there were options, navigating birthday parties and school snacks with a “special drawer” her mom arranged with the teacher, and pushing through the intimidating world of college dining halls as a Division II athlete. Her mom also has celiac, which gave Baylee something most newly diagnosed people don’t have: someone who truly gets it. This one is for anyone who has ever cried in a restaurant because there was nothing on the menu they could eat. Anyone raising a child with celiac. Anyone who has had to advocate for themselves when they were terrified to do it. Baylee’s journey — from a tearful nine-year-old in a doctor’s office to a college soccer player managing her condition with confidence — is a reminder that the hard things we’re forced to go through often become the things that shape us most. Listen and hit subscribe now! Start here ➡ Take the free 2-min Your Journey Quiz [https://form.typeform.com/to/IyQPAqvM?typeform-source=invigorateyourjourney.com] 🌐 Check out Community Resources HERE [https://www.invigorateyourjourney.com]. ⚠️ Disclaimer: This content is for education and shared experiences only and is not medical advice. Always consult your healthcare team before making changes.

3. juni 202622 min
episode Can You Live a Full Life With Lupus? Emma's Honest Answer | Invisible Strength Podcast cover

Can You Live a Full Life With Lupus? Emma's Honest Answer | Invisible Strength Podcast

Lupus nearly took everything from Emma in her early 20s.She was hospitalized, struggling to walk, losing her hair, and unsure what her future would look like. Doctors didn’t know if life would ever feel “normal” again.23 years later?She’s a mom, works full-time, runs for her mental health, and has learned how to live WITH lupus instead of constantly fighting against her body.In this episode, Emma gets brutally honest about: * What lupus REALLY feels like * The invisible side of chronic illness nobody sees * Why “pushing through” made things worse * Her biggest lupus flare-up triggers * The mental battle of looking “fine” when you’re not * Running, movement, and rebuilding trust with her body * The grief, fear, and resilience that come with autoimmune disease If you’re living with lupus, chronic illness, autoimmune disease, fatigue, burnout, or invisible illness… this conversation will make you feel less alone.⏱️ WATCH IF YOU’VE EVER:✔️ Wondered if life can still be meaningful after diagnosis✔️ Felt misunderstood because you “don’t look sick”✔️ Struggled with flare-ups, exhaustion, or body changes✔️ Tried to balance health, work, relationships, and goals✔️ Needed hope from someone who truly gets it💜 FREE RESOURCES & SUPPORTTake your journey quiz, download a free guide, explore top community picks, and shop Invisible Strength merch:https://www.invigorateyourjourney.com [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqa295SkpMYW81eUJvOEwxaXp6aklENkFfUWgwUXxBQ3Jtc0trS2ZrSkNOdHFDTmlGOWhRM2Y1RE5uZHExUl8wM3JSQ3pCbWgta3dQTzU0UExaZEQyVkJNLWRRYVRtMXBiODFscEpQd3Z2ZzlWX2JaN2pDUjVxYTRLQ1RkT09iWldUOFY2QklDOFBFOVNJRjdXV2F0aw&q=https%3A%2F%2Fwww.invigorateyourjourney.com%2F&v=DRhpB9PfnRA]🎧 Subscribe for real conversations around:Lupus, autoimmune disease, chronic illness, healing, fatigue, mindset, movement, resilience, and invisible illness support.💬 COMMENT BELOW:What’s something people don’t understand about living with chronic illness?#Lupus [https://www.youtube.com/hashtag/lupus] #ChronicIllness [https://www.youtube.com/hashtag/chronicillness] #AutoimmuneDisease [https://www.youtube.com/hashtag/autoimmunedisease] #InvisibleIllness [https://www.youtube.com/hashtag/invisibleillness] #LupusWarrior [https://www.youtube.com/hashtag/lupuswarrior] #LupusAwareness [https://www.youtube.com/hashtag/lupusawareness] #HealingJourney [https://www.youtube.com/hashtag/healingjourney] #ChronicFatigue [https://www.youtube.com/hashtag/chronicfatigue] #ChronicIllnessSupport [https://www.youtube.com/hashtag/chronicillnesssupport] #AutoimmuneSupport [https://www.youtube.com/hashtag/autoimmunesupport] #InvisibleStrengthPodcast [https://www.youtube.com/hashtag/invisiblestrengthpodcast]⚠️ Disclaimer: This content is for education and shared experiences only and is not medical advice. Always consult your healthcare team before making changes.

27. maj 202639 min
episode From Life Support to Lupus Warrior: How Semi Found Strength, Self-Advocacy & Hope | Invisible Strength Podcast cover

From Life Support to Lupus Warrior: How Semi Found Strength, Self-Advocacy & Hope | Invisible Strength Podcast

From life support to lupus advocacy, Semi shares her raw journey with lupus — the grief, the isolation, self-advocacy wins, lifestyle shifts, and how she created a children’s book to help kids understand the disease. A must-listen for anyone navigating autoimmune conditions who needs hope and real talk. Resources & Links:• Semi’s Children’s Book: Luna and the Tiny Superhero → https://amzn.to/4cs1sGY [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbm5lTXkzR2lEUHR0WU5lTVptVklnSWVqRU94d3xBQ3Jtc0ttcm1OWjdhTHZRbkM3TkVkYW9qN052VFQxV2lEa0xCTTEzMnBiRzBWYXFWdDJRTFJJUV9hazJOUmNreUl4dktoN2xjX1BDMklTWWZseTN4Y1Z6ZHZ0bmdGVkg5N2JJNkN2UndpdDZXZ1lodmlJb3ZoMA&q=https%3A%2F%2Famzn.to%2F4cs1sGY&v=ky2k8bfiBaw]• Join our free community: https://invigorateyourjourney.com/ [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqa1IwS2RqX0JVUzhucEQzSE1kdzRGRjJLanJ1d3xBQ3Jtc0trSXdyeDFQaWdPeGRkTkt1NWowaW5SbC0weTNSMDd3anZUTnFudDFoSFR0UjBNNWs2c0xCYTV2bmRNVUg5UWpkQlc1OHMxb0tMT0NkTVJLRnNZU1FYczYyZ2hPRGRfeXYtNWI2R0dSUjBaYUhrbmUzSQ&q=https%3A%2F%2Finvigorateyourjourney.com%2F&v=ky2k8bfiBaw]#LupusWarrior #InvisibleIllness #Autoimmune #ChronicIllnessSupport ⚠️ Disclaimer: This content is for education and shared experiences only and is not medical advice. Always consult your healthcare team before making changes. This page contains affiliate links that won’t change your price but will share some commission. As an Amazon Associate, we earn from qualifying purchases.

20. maj 202645 min