Rare Mamas Rising

RARE MAMAS RISING- EPISODE 49 Holding On To Our Identity with Rare Mama Nikki McIntosh In this empowering Mother’s Day episode of Rare Mamas Rising, host Nikki invites listeners into a raw, tender conversation about what it means to hold on to your identity while parenting a child with a rare disease. From personal reflections to stories from fellow rare moms, this episode explores the invisible shifts in identity and small but powerful ways to reconnect with who you are. Because this Mother’s Day, we’re celebrating the whole you— not just the caregiver, but the creative, the dreamer, the friend, the person. This episode is a tribute to the woman behind the diagnosis — a celebration of who you are, who you were, and who you’re becoming.     CONNECT WITH NIKKI   Facebook [https://www.facebook.com/RareMamas1/] https://www.facebook.com/RareMamas1/ [https://www.facebook.com/RareMamas1/] Instagram [https://www.instagram.com/Rare_Mamas/] https://www.instagram.com/Rare_Mamas/ [https://www.instagram.com/Rare_Mamas/] Website [https://raremamas.com/] https://raremamas.com/ [https://raremamas.com/] Email [info@raremamas.com] info@raremamas.com [info@raremamas.com]     PODCAST INFO podcast@raremamas.com [podcast@raremamas.com]

RARE MAMAS RISING- EPISODE 48 Spring Cleaning: Letting Go of Things That No Longer Serve Us with Rare Mama Nikki McIntosh   In this uplifting episode of Rare Mamas Rising, Nikki invites you to embrace spring’s renewal by letting go of what no longer serves you—draining digital habits, old stress loops, unhelpful routines, and even relationships or thoughts that weigh you down. With personal insights and actionable steps, she guides Rare Mamas through clearing the clutter—mental, emotional, and physical—to make space for peace and strength. Tune in to discover how shedding these burdens can lighten your load and lift you up, because as spring blooms, so can we.       CONNECT WITH NIKKI   Facebook [https://www.facebook.com/RareMamas1/] https://www.facebook.com/RareMamas1/ [https://www.facebook.com/RareMamas1/] Instagram [https://www.instagram.com/Rare_Mamas/] https://www.instagram.com/Rare_Mamas/ [https://www.instagram.com/Rare_Mamas/] Website [https://raremamas.com/] https://raremamas.com/ [https://raremamas.com/] Email [info@raremamas.com] info@raremamas.com [info@raremamas.com]   PODCAST INFO podcast@raremamas.com [podcast@raremamas.com]

RARE MAMAS RISING- EPISODE 47 Tackling Therapy Burnout with Rare Mama Nikki McIntosh   In this episode, Nikki dives into the all-too-real challenge of therapy burnout—when the endless cycle of PT, OT, and more leaves both Rare Mamas and their kids feeling overwhelmed. Explore how to spot the signs of burnout, practical ways to lighten the load with help from therapists, and when to hit pause for a much-needed reset. It's all about staying attuned to our kids’ and our own emotional well-being, empowering us to find strength even in the toughest moments.     CONNECT WITH NIKKI   Facebook [https://www.facebook.com/RareMamas1/] https://www.facebook.com/RareMamas1/ [https://www.facebook.com/RareMamas1/] Instagram [https://www.instagram.com/Rare_Mamas/] https://www.instagram.com/Rare_Mamas/ [https://www.instagram.com/Rare_Mamas/] Website [https://raremamas.com/] https://raremamas.com/ [https://raremamas.com/] Email [info@raremamas.com] info@raremamas.com [info@raremamas.com]   PODCAST INFO podcast@raremamas.com [podcast@raremamas.com]

RARE MAMAS RISING- EPISODE 46 Sharing Our Stories to Create Change     In this special Rare Disease Day episode of Rare Mamas Rising, host Nikki McIntosh explores the power of storytelling in the rare disease community. She shares why speaking up—whether through advocacy, education, or personal connection—can drive awareness, inspire action, and create lasting change. From helping newly diagnosed families feel less alone to influencing policies that improve care, our voices matter more than ever. Tune in to be encouraged, empowered, and reminded that together, we can make a difference.     CONNECT WITH NIKKI   Facebook [https://www.facebook.com/RareMamas1/] https://www.facebook.com/RareMamas1/ [https://www.facebook.com/RareMamas1/] Instagram [https://www.instagram.com/Rare_Mamas/] https://www.instagram.com/Rare_Mamas/ [https://www.instagram.com/Rare_Mamas/] Website [https://raremamas.com/] https://raremamas.com/ [https://raremamas.com/] Email [info@raremamas.com] info@raremamas.com [info@raremamas.com]     PODCAST INFO podcast@raremamas.com [podcast@raremamas.com]

RARE MAMAS RISING- EPISODE 45 Building Endurance for the New Year   In this episode of Rare Mamas Rising, we’re diving into strategies behind building endurance for the year ahead. From balancing effort with recovery and planning for moments of rejuvenation, this episode is packed with practical tips to help you avoid burnout and sustain your energy. We explore how to align your actions with your capacity, the importance of creating a rhythm of effort and restoration, and why saying no is essential. As you consider your goals and plans for the new year, this episode is your guide to building endurance to see them through and creating lasting strength all year long. Tune in to refuel and rise!        CONNECT WITH NIKKI   Facebook [https://www.facebook.com/RareMamas1/] https://www.facebook.com/RareMamas1/ [https://www.facebook.com/RareMamas1/] Instagram [https://www.instagram.com/Rare_Mamas/] https://www.instagram.com/Rare_Mamas/ [https://www.instagram.com/Rare_Mamas/] Website [https://raremamas.com/] https://raremamas.com/ [https://raremamas.com/] Email [info@raremamas.com] info@raremamas.com [info@raremamas.com] PODCAST INFO podcast@raremamas.com [podcast@raremamas.com]