RARENETIC

Rare Disease Words and Phrases (that you'll hear me use a lot)

8 min · 15. maj 2022
episode Rare Disease Words and Phrases (that you'll hear me use a lot) cover

Beskrivelse

Hey Guys! Thanks for listening to RARENETIC! Today's episode definitely has a lot of info in it, but make sure to follow us on Instagram to get the link. SOCIALS: Instagram [//instagram.com/rareneticpod] Twitter [//twitter.com/rareneticpod] LinkTree [//linktree.com/rarenetic] rareneticpod@gmail.com

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episode What are Rare Diseases and What Does Being Undiagnosed Mean? cover

What are Rare Diseases and What Does Being Undiagnosed Mean?

Hey! It's our first episode, all about rare disease specifics, being undiagnosed, and a Q&A at the end! I promised the website links to the resources I mentioned in the episode, so they're down below. Enjoy the episode! RESOURCE LINKS * Genetic and Rare Disease Information Center [https://rarediseases.info.nih.gov/] * Rare Disease Clinical Network [https://www.rarediseasesnetwork.org/] * National Organization for Rare Disorders [https://rarediseases.org/] * Rare Diseases International [ https://www.rarediseasesinternational.org/] * Rare Undiagnosed Network [https://rareundiagnosed.org/] * Undiagnosed Diseases Network [https://undiagnosed.hms.harvard.edu/] * Undiagnosed Diseases Network International [https://www.udninternational.org/] SOCIALS * Instagram [//instagram.com/rareneticpod] * Twitter [//twitter.com/rareneticpod]

29. apr. 202210 min