Remarkable: Life with Rett Syndrome

Kati's daughter Kendall is 4 and is living with Rett Syndrome. This was my first talk with another Rett Syndrome family for the Remarkable podcast and I knew that I was about to learn so much from the other families with the same diagnosis as we have. It's my joy to introduce you to their family today. To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast. GET IN TOUCH! Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. FACEBOOK https://www.facebook.com/remarkablepodcast [https://www.facebook.com/remarkablepodcast] INSTAGRAM https://www.instagram.com/remarkablepodcast [https://www.instagram.com/remarkablepodcast] Thanks so much for listening, Tracey teamjovie.com [http://www.teamjovie.com] --- Send in a voice message: https://anchor.fm/remarkablepodcast/message

This is Part 2 of my talk with Caroline. I know it took alot of courage to say what Caroline has said - but we know that there are other families out there going through the same challenges and the advice and encouragement from Caroline is so powerful. Thank you again to Caroline for sharing your story. To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast [http://www.teamjovie.com/podcast]. GET IN TOUCH! Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. FACEBOOK https://www.facebook.com/remarkablepodcast [https://www.facebook.com/remarkablepodcast] INSTAGRAM https://www.instagram.com/remarkablepodcast [https://www.instagram.com/remarkablepodcast] Thanks so much for listening, Tracey teamjovie.com [http://www.teamjovie.com] --- Send in a voice message: https://anchor.fm/remarkablepodcast/message

Caroline and I have actually known each other for a few years but this was the time first we sat down to talk about how Rett Syndrome has effected her daughter Charlotte and how her divorce has changed their family dynamics. This is Part 1 of our talk - I didn't want to edit out anything as we both felt that someone in the same position as Caroline would benefit from hearing what she had to say. To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast [http://www.teamjovie.com/podcast]. GET IN TOUCH! Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. FACEBOOK https://www.facebook.com/remarkablepodcast [https://www.facebook.com/remarkablepodcast] INSTAGRAM https://www.instagram.com/remarkablepodcast [https://www.instagram.com/remarkablepodcast] Thanks so much for listening, Tracey teamjovie.com [http://www.teamjovie.com] --- Send in a voice message: https://anchor.fm/remarkablepodcast/message

Jodi's 7 year old daughter Avery has Rett Syndrome, but that was not her first diagnosis. After talking with many families, it was apparent that alot of us experience receiving an Autism diagnosis before we reach the correct diagnosis of Rett. I loved hearing about how funny and fun Avery is and I loved hearing about what inspires Jodi to do more for Avery despite Rett Syndrome. To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast [http://www.teamjovie.com/podcast]. GET IN TOUCH! Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. FACEBOOK https://www.facebook.com/remarkablepodcast [https://www.facebook.com/remarkablepodcast] INSTAGRAM https://www.instagram.com/remarkablepodcast [https://www.instagram.com/remarkablepodcast] Thanks so much for listening, Tracey teamjovie.com [http://www.teamjovie.com] --- Send in a voice message: https://anchor.fm/remarkablepodcast/message

Cora's 4 year old twins Charlie and Olivia both have Rett Syndrome. Cora keeps an amazing account of their Rett Syndrome journey on their Instagram and it was great to sit down and have a talk about how Rett effects both girls. We also talked a bit about mental health and mindset, and how the girls are with their new baby sister Madeline. To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast [http://www.teamjovie.com/podcast]. GET IN TOUCH! Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. FACEBOOK https://www.facebook.com/remarkablepodcast [https://www.facebook.com/remarkablepodcast] INSTAGRAM https://www.instagram.com/remarkablepodcast [https://www.instagram.com/remarkablepodcast] Thanks so much for listening, Tracey teamjovie.com [http://www.teamjovie.com] --- Send in a voice message: https://anchor.fm/remarkablepodcast/message