The Lyme+ Podcast
Justin Carlson lived with unexplained fatigue from the time he was in school. Six years ago, everything escalated. Over a period of months he developed inflammatory and neurological symptoms severe enough to leave him bed-bound for weeks at a time, unable to drive, while every standard test came back completely normal. A urine mycotoxin test finally broke the case open. His levels were extremely high, and that result led him to mold illness, Chronic Inflammatory Response Syndrome (CIRS), and the Shoemaker protocol. Living in Marquette, Michigan, in the remote Upper Peninsula, Justin had no local specialists. He pieced together his care through telemedicine with Shoemaker-certified doctors and spent over a year and a half learning his own body's limits, taking steps forward and steps back, and discovering the hard way that trying to rush recovery only made it take longer. Then he started building. First came a Discord healing community for people navigating CIRS and toxic mold exposure, which grew to over 500 members and was intentionally designed to be the opposite of the negativity that dominates so many chronic illness spaces. Then came Mold Map, a crowd-sourced platform where users rate and review hotels, apartments, and vacation rentals so people with mold illness, mast cell activation, allergies, and asthma can find safe places to stay. The MVP launched this spring, and future versions will personalize ratings to your individual sensitivity level. Justin also walks us through Mold Guide AI, a tool that predicts mold risk for nearly any address using factors like the year a building was built, flood damage likelihood, neighborhood characteristics, and local humidity. And he shares the project he once thought was impossible: Airlume, a handheld real-time mold sensor inspired by how mold detection dogs work, now the subject of an NIH SBIR Phase 1 grant proposal. Woven through it all is the mindset piece. Justin opens up about fear and distrust of his own body, how resisting symptoms kept him stuck in a defensive state, and the meditation practice that gave him relief from his fatigue within twenty minutes. Today he is biking, running, hiking the trails around Marquette, and lifting weights for the first time in 15 years. His message: it is possible to heal from virtually anything, but you have to build beliefs that run contrary to what your body is telling you, and surround yourself with people who believe it too. To find Mold Map visit: https://moldmap.io/ on Facebook: https://www.facebook.com/moldmap/ & Instagram: https://www.instagram.com/moldmap.io/
34 episoder
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