About IBD

Elizabeth Coldrick, a nutritional therapist and breathwork facilitator living with IBD and a permanent ostomy shares her experiences living in Bali, the challenges and benefits of managing IBD abroad, and the importance of nutrition and breathwork for mental and physical health. She explains how breathwork can reduce stress and inflammation, offers a simple breathing exercise, and discusses her new nutrition e-book for people with ostomies. The episode highlights self-care, community, and practical strategies for living well with IBD.   Episode highlights * The connection between breathwork and mental health, particularly for individuals with inflammatory bowel disease (IBD). * The significance of breathwork in managing stress and promoting overall well-being. * Personal experiences of living with IBD and an ostomy, including challenges faced while living abroad. * The impact of lifestyle changes, such as diet and exercise, on health while living in a different country. * The physiological effects of breathwork, including its ability to lower cortisol levels and reduce inflammation. * Different types of breathwork practices and their emotional and physical effects. * The importance of finding qualified breathwork practitioners and creating a safe environment for participants. * The role of nutrition in managing IBD and the development of resources tailored for individuals with ostomies. * The benefits of community support for individuals living with chronic health conditions. * A simple breathing exercise to encourage listeners to incorporate breathwork into their daily routines.   Find Elizabeth Coldrick and Wildly Brave Wellness at: * Web: https://wildlybravewellness.com/  [https://wildlybravewellness.com/] * Instagram: @wildlybravewellness_ [https://www.instagram.com/wildlybravewellness_/?hl=en] * Free Happy Gut Guide: https://go.wildlybravewellness.com/happy-gut-guide [https://go.wildlybravewellness.com/happy-gut-guide] * Stoma Recipe eBook: https://wildlybravewellness.com/delicious-stoma-ibd-recipe-nutrition-ebook [https://wildlybravewellness.com/delicious-stoma-ibd-recipe-nutrition-ebook] * Sound Healing Videos: https://www.youtube.com/watch?v=62yWpuNrSgI  [https://www.youtube.com/watch?v=62yWpuNrSgI]   Find Amber J Tresca at: * AboutIBD.com [http://aboutibd.com/]: About IBD [http://aboutibd.com/] * Verywell: Verywell Health [https://www.verywellhealth.com/amber-j-tresca-1941541] * Facebook: @aboutIBD [https://www.facebook.com/aboutIBD] * Twitter: @aboutIBD [https://twitter.com/aboutIBD] * Pinterest: @aboutibd [https://www.pinterest.com/aboutibd/] * Instagram: @about_IBD [https://www.instagram.com/about_IBD/] * YouTube: @AboutIBD [https://www.youtube.com/@AboutIBD] * Threads: @about_IBD [https://www.threads.net/@about_ibd]   Find Mac Cooney (mix, sound design, and theme music) at: * Facebook: @maccooneycomposer [https://www.facebook.com/maccooneycomposer]  * Instagram: @maccooneycomposer [https://www.instagram.com/maccooneycomposer/] * Web: Cooney Studio [https://cooneystudio.com/] * YouTube: @MacCooneyComposer [https://www.youtube.com/@MacCooneyComposer] * Theme music, IBD Dance Party [https://maccooney.bandcamp.com/track/ibd-dance-party-single], is from ©Cooney Studio.   Episode transcript and more information at: https://bit.ly/AIBD177   These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Jonathan Stewart, co-founder of Evergreen Adventures, a nonprofit focused on connecting the chronic illness community with outdoor activities, shares his journey with type one diabetes, ulcerative colitis, and sarcoidosis. Jonathan emphasizes the importance of staying active despite health challenges, describes the need for planning outdoor adventures, and encourages everyone to find joy in nature, no matter the circumstances.   Concepts discussed on this episode: * Personal experiences with chronic illnesses, including ulcerative colitis and type one diabetes. * The journey of misdiagnosis and the challenges of managing chronic conditions. * The emotional impact of surgical decisions, such as colectomy and living with an ileostomy. * The importance of community support and advocacy for individuals with chronic illnesses. * The significance of restroom access and related laws for those with inflammatory bowel disease (IBD). * The role of outdoor activities in promoting physical and mental well-being for people with chronic conditions. * The founding and mission of Evergreen Adventures to facilitate outdoor experiences for the chronic illness community. * The complexities of living with multiple overlapping health conditions. * The importance of self-advocacy and collaboration with healthcare providers. * Encouragement to redefine personal adventures and find joy in small moments despite health challenges.   Information on Restroom Access Laws: * Digital I Can't Wait Card [https://www.bladderandbowel.org/free-just-cant-wait-card/] via Bladder and Bowel Support Company * I Can't Wait Card [https://www.crohnscolitisfoundation.org/get-involved/become-member/individual-membership] with membership via the Crohn’s & Colitis Foundation * This Can’t Wait [https://gutscharity.org.uk/advice-and-information/this-cant-wait-card/] card via Guts UK Charity * What is The Restroom Access Act? [https://www.ostomy.org/restroom-access-act-2/] via United Ostomy Associations of America * Help Pass a Local Restroom Access Law in Your Community [https://www.crohnscolitisfoundation.org/patientsandcaregivers/get-involved/be-an-advocate/restroom-access] via the Crohn’s & Colitis Foundation * State Legislature Websites [https://www.congress.gov/state-legislature-websites]   Find Jonathan Stewart and EverGreen Adventures at: * Web: https://www.egadventures.org/ [https://www.egadventures.org/] * Instagram: @evergreen_adventures_mt [https://www.instagram.com/evergreen_adventures_mt/]   Find Amber J Tresca at: * AboutIBD.com [http://aboutibd.com/]: About IBD [http://aboutibd.com/] * Verywell: Verywell Health [https://www.verywellhealth.com/amber-j-tresca-1941541] * Facebook: @aboutIBD [https://www.facebook.com/aboutIBD] * Twitter: @aboutIBD [https://twitter.com/aboutIBD] * Pinterest: @aboutibd [https://www.pinterest.com/aboutibd/] * Instagram: @about_IBD [https://www.instagram.com/about_IBD/] * YouTube: @AboutIBD [https://www.youtube.com/@AboutIBD] * Threads: @about_IBD [https://www.threads.net/@about_ibd]   Find Mac Cooney (mix, sound design, and theme music) at: * Facebook: @maccooneycomposer [https://www.facebook.com/maccooneycomposer]  * Instagram: @maccooneycomposer [https://www.instagram.com/maccooneycomposer/] * Web: Cooney Studio [https://cooneystudio.com/] * YouTube: @MacCooneyComposer [https://www.youtube.com/@MacCooneyComposer] * Theme music, IBD Dance Party [https://maccooney.bandcamp.com/track/ibd-dance-party-single], is from ©Cooney Studio.   Episode transcript and more information at: https://bit.ly/AIBD176 [https://bit.ly/AIBD176]   These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses her diagnosis experience, the challenges of navigating healthcare, and the need for better patient advocacy. Victoria highlights the organization's growth, its initiatives like the IBD Nurse Helpline leaflets, and the significance of connecting patients with healthcare providers. She emphasizes the importance of funding to expand their services and create more opportunities for support, while also reflecting on the personal connections that drive her passion for this work.   Topics covered on this episode: * Personal journey with ulcerative colitis and diagnosis experience * Emotional and physical challenges of living with inflammatory bowel disease (IBD) * Importance of community support and connection for individuals with chronic illnesses * Founding and evolution of the organization "GetYourBellyOut" * Advocacy and awareness efforts for IBD and its impact on patients * Family dynamics and the effects of IBD on relationships * Role of social media in connecting individuals with IBD * Challenges of being a public figure in the IBD community * Importance of patient feedback in improving care and resources * Future goals and initiatives for expanding support and resources for those affected by IBD   Find GetYourBellyOut on: * Web: https://getyourbellyout.org.uk/ [https://getyourbellyout.org.uk/] * Facebook: @getyourbellyout [https://www.facebook.com/getyourbellyout/] * Twitter: @getyourbellyout [https://x.com/getyourbellyout] * Instagram: @getyourbellyout_official [https://www.instagram.com/getyourbellyout_official] * LinkedIn: @getyourbellyout-cic [https://www.linkedin.com/company/getyourbellyout-cic] * Tik Tok: @getyourbellyout_official [https://www.tiktok.com/@getyourbellyout_official] Find Amber J Tresca at: * AboutIBD.com [http://aboutibd.com/]: About IBD [http://aboutibd.com/] * Verywell: Verywell Health [https://www.verywellhealth.com/amber-j-tresca-1941541] * Facebook: @aboutIBD [https://www.facebook.com/aboutIBD] * Twitter: @aboutIBD [https://twitter.com/aboutIBD] * Pinterest: @aboutibd [https://www.pinterest.com/aboutibd/] * Instagram: @about_IBD [https://www.instagram.com/about_IBD/] * YouTube: @AboutIBD [https://www.youtube.com/@AboutIBD] * Threads: @about_IBD [https://www.threads.net/@about_ibd] Find Mac Cooney (mix, sound design, and theme music) at: * Facebook: @maccooneycomposer [https://www.facebook.com/maccooneycomposer]  * Instagram: @maccooneycomposer [https://www.instagram.com/maccooneycomposer/] * Web: Cooney Studio [https://cooneystudio.com/] * YouTube: @MacCooneyComposer [https://www.youtube.com/@MacCooneyComposer] * Theme music, IBD Dance Party [https://maccooney.bandcamp.com/track/ibd-dance-party-single], is from ©Cooney Studio.   Episode transcript and more information at: https://bit.ly/AIBD175   These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Amber and gastroenterologist Dr Neil Parikh discuss technology’s impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers. They also address concerns about data privacy, integrating holistic approaches in patient care, and the potential of wearable technology in gastroenterology.   Find Neil D. Parikh, MD at: * Web: Connecticut GI [https://www.connecticutgi.org/neil-parikh/] * LinkedIn: Neil D. Parikh, MD [https://www.linkedin.com/in/neil-d-parikh-2a551a7b/]   Find The Gut Doctor Podcast at: * RSS feed [https://feeds.buzzsprout.com/814549.rss] * Apple Podcasts [https://podcasts.apple.com/us/podcast/the-gut-doctor/id1605040922] * Spotify [https://open.spotify.com/show/3b37689iOBXHAvAU3EzWwN] * All other podcast apps [https://pod.link/1605040922]   Find Amber J Tresca at: * AboutIBD.com [http://aboutibd.com/]: About IBD [http://aboutibd.com/] * Verywell: Verywell Health [https://www.verywellhealth.com/amber-j-tresca-1941541] * Facebook: @aboutIBD [https://www.facebook.com/aboutIBD] * Twitter: @aboutIBD [https://twitter.com/aboutIBD] * Pinterest: @aboutibd [https://www.pinterest.com/aboutibd/] * Instagram: @about_IBD [https://www.instagram.com/about_IBD/] * YouTube: @AboutIBD [https://www.youtube.com/@AboutIBD] * Threads: @about_IBD [https://www.threads.net/@about_ibd]   Find Mac Cooney (mix, sound design, and theme music) at: * Facebook: @maccooneycomposer [https://www.facebook.com/maccooneycomposer]  * Instagram: @maccooneycomposer [https://www.instagram.com/maccooneycomposer/] * Web: Cooney Studio [https://cooneystudio.com/] * YouTube: @MacCooneyComposer [https://www.youtube.com/@MacCooneyComposer] * Theme music, IBD Dance Party [https://maccooney.bandcamp.com/track/ibd-dance-party-single], is from ©Cooney Studio.   Episode transcript and more information at: https://bit.ly/AIBD174 [https://bit.ly/AIBD174]   These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

People with Crohn's disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn't affect the disease. Even today, some patients are still told this, even though there is now significant evidence that diet absolutely matters in IBD. Stacey Collins, MA, RDN/LDN describes how her journey with ulcerative colitis led to j-pouch surgery. Her philosophy as a registered dietician is one of “nutrition by addition" rather than by dietary restriction. Stacey also focuses on the emotional aspects of eating with IBD, including the understandable fear and anxiety around food.   Topics discussed: * The role of diet in managing inflammatory bowel disease (IBD). * Personal experiences with ulcerative colitis and dietary management. * The misconception that diet does not impact IBD management. * The philosophy of "nutrition by addition" versus dietary restrictions. * The importance of individualized dietary approaches for IBD patients. * The impact of food on gut health and bacterial diversity. * Emotional aspects of eating with IBD, including fear and anxiety around food. * The significance of finding joy in cooking and eating. * Practical dietary recommendations for IBD patients, including the Mediterranean diet. * The importance of community support and connection in managing IBD. Find Stacey Collins, MA, RDN/LDN at: * Stacey Collins Nutrition: https://www.staceycollinsnutrition.com/ [https://www.staceycollinsnutrition.com/] * Twitter: @staceynellc_rd [https://x.com/staceynellc_rd] * Instagram: @staceynellc_rd [https://www.instagram.com/staceynellc_rd] * LinkedIn: @stacey-cutler-collins [https://www.linkedin.com/in/stacey-cutler-collins-/]   Publications from Stacey Collins, MA, RDN/LDN: * Scarlata K, Zickgraf HF, Satherley RM, et al. A Call to Action: Unraveling the Nuance of Adapted Eating Behaviors in Individuals with GI Conditions [http://doi.org/10.1016/j.cgh.2024.11.010]. Clin Gastroenterol Hepatol. Published online December 14, 2024. doi:10.1016/j.cgh.2024.11.010 * Collins S, DIGID Inflammatory Bowel Diseases Workgroup. Iron in GI conditions. Patient.Gastro.org [https://Patient.Gastro.org]. 2024. https://patient.gastro.org/iron-in-gi-conditions/ [https://patient.gastro.org/iron-in-gi-conditions/] * Collins S, Castelan VC, Wernick R, et al. Effects of nutrition status and perioperative nutrition supplement completion on postoperative outcomes in patients with inflammatory bowel disease undergoing surgery [https://www.gastrojournal.org/article/S0016-5085(23)05305-2/fulltext]. Gastroenterology. 2024;166(3):S22-S23. doi:10.1053/j.gastro.2023.11.081 * Collins S. Surgery and Nutrition. Crohn’s & Colitis Foundation. 2024. https://www.crohnscolitisfoundation.org/patientsandcaregivers/diet-and-nutrition/surgery-and-nutrition [https://www.crohnscolitisfoundation.org/patientsandcaregivers/diet-and-nutrition/surgery-and-nutrition]. * Nishioka H, Hasegawa Y. Addressing sarcopenia in people with disabilities: definition, assessment, and nutritional care. Medical Nutrition Matters. Reviewed by Collins S. October 1, 2024. https://www.eatrightstore.org/dpg-and-mig-products/dmnt/addressing-sarcopenia-in-people-with-disabilities-definition-assessment-and-nutritional-care [https://www.eatrightstore.org/dpg-and-mig-products/dmnt/addressing-sarcopenia-in-people-with-disabilities-definition-assessment-and-nutritional-care].   Find Amber J Tresca at: * AboutIBD.com [http://aboutibd.com/]: About IBD [http://aboutibd.com/] * Verywell: Verywell Health [https://www.verywellhealth.com/amber-j-tresca-1941541] * Facebook: @aboutIBD [https://www.facebook.com/aboutIBD] * Twitter: @aboutIBD [https://twitter.com/aboutIBD] * Pinterest: @aboutibd [https://www.pinterest.com/aboutibd/] * Instagram: @about_IBD [https://www.instagram.com/about_IBD/] * YouTube: @AboutIBD [https://www.youtube.com/@AboutIBD] * Threads: @about_IBD [https://www.threads.net/@about_ibd]   Find Mac Cooney (mix, sound design, and theme music) at: * Facebook: @maccooneycomposer [https://www.facebook.com/maccooneycomposer]  * Instagram: @maccooneycomposer [https://www.instagram.com/maccooneycomposer/] * Web: Cooney Studio [https://cooneystudio.com/] * YouTube: @MacCooneyComposer [https://www.youtube.com/@MacCooneyComposer] * Theme music, IBD Dance Party [https://maccooney.bandcamp.com/track/ibd-dance-party-single], is from ©Cooney Studio.   Episode transcript and more information at: https://bit.ly/AIBD 173 [https://bit.ly/AIBD%20173]   These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.