HealthCare UnTold

Pam Cusick, Senior Vice President of Rare Patient Voice (RPV): Advancing Health Together — Patients, Caregivers, and Researchers

18 min · 5. maalis 202618 min
jakson Pam Cusick, Senior Vice President of Rare Patient Voice (RPV): Advancing Health Together — Patients, Caregivers, and Researchers kansikuva

Kuvaus

Our guest today is Pam Cusick Senior Vice President of Rare Patient Voice. Rare Patient Voice is a national community that connects patients and caregivers with researchers who genuinely want to learn from their lived experiences. Through this work, RPV ensures that people living with rare and chronic conditions have a direct voice in shaping studies, treatments, and health innovations. Their model is built on trust, respect, and fair compensation, creating a space where stories become data that can drive meaningful change. Pam Cusick is a leader in patient engagement with more than three decades of experience in research design, implementation, and advocacy. As Senior Vice President of Rare Patient Voice (RPV), she works to ensure that patient and caregiver experiences help shape the future of medical research. Beyond RPV, Pam contributes to the advancement of women in healthcare through her work with Women in Research (WIRe), the Healthcare Businesswomen’s Association (HBA), and the International Society for Patient Engagement Professionals (ISPEP). She continues to mentor emerging leaders who share her dedication to connecting patient advocacy with meaningful scientific progress.

Kommentit

0

Ole ensimmäinen kommentoija

Rekisteröidy nyt ja liity HealthCare UnTold-yhteisöön!

Aloita nyt

3 kuukautta hintaan 3,99 €

Sitten 7,99 € / kuukausi · Peru milloin tahansa.

  • Podimon podcastit
  • 20 kuunteluaikaa / kuukausi
  • Lataa offline-käyttöön
Aloita nyt

Kaikki jaksot

239 jaksot

jakson Luz Sotelo, Youth Advocate and Community Leader-Pajaro Valley Prevention and Student Assitance Services kansikuva

Luz Sotelo, Youth Advocate and Community Leader-Pajaro Valley Prevention and Student Assitance Services

HealthCare UnTold is excited to release our new podcast episode today in collaboration with PODCASTHON.ORG — a global charity event mobilizing thousands of podcasts to support an incredible range of nonprofit organizations. For this year’s event, we are proud to uplift and support Pajaro Valley Prevention and Student Assistance (PVPSA) in Watsonville CA by highlighting the inspiring work of Luz Sotelo. Luz Sotelo is a dedicated youth advocate serving as Youth Program Manager at Pajaro Valley Prevention and Student Assistance in Watsonville.CA. These are challenging times for our communities and for the organizations that stand beside us. You can make a meaningful difference by supporting groups like PVPSA.org through your generous donations. Together, we help ensure that youth and families continue receiving the vital support they deserve. Please donate to: PVPSA.org #PVPSA.org #YouthEmpowerment #CommunityWellness #PreventionMatters #PodcastForGood

18. maalis 202626 min
jakson Pam Cusick, Senior Vice President of Rare Patient Voice (RPV): Advancing Health Together — Patients, Caregivers, and Researchers kansikuva

Pam Cusick, Senior Vice President of Rare Patient Voice (RPV): Advancing Health Together — Patients, Caregivers, and Researchers

Our guest today is Pam Cusick Senior Vice President of Rare Patient Voice. Rare Patient Voice is a national community that connects patients and caregivers with researchers who genuinely want to learn from their lived experiences. Through this work, RPV ensures that people living with rare and chronic conditions have a direct voice in shaping studies, treatments, and health innovations. Their model is built on trust, respect, and fair compensation, creating a space where stories become data that can drive meaningful change. Pam Cusick is a leader in patient engagement with more than three decades of experience in research design, implementation, and advocacy. As Senior Vice President of Rare Patient Voice (RPV), she works to ensure that patient and caregiver experiences help shape the future of medical research. Beyond RPV, Pam contributes to the advancement of women in healthcare through her work with Women in Research (WIRe), the Healthcare Businesswomen’s Association (HBA), and the International Society for Patient Engagement Professionals (ISPEP). She continues to mentor emerging leaders who share her dedication to connecting patient advocacy with meaningful scientific progress.

5. maalis 202618 min