MPN Voices Out Loud

Listen to patients impacted by myeloproliferative neoplasms (MPNs) discuss the importance of speaking up and spelling out how their MPNs affect them. Understand why saying they were “fine” was not enough for their MPN journeys. Tune in to discover patient stories, real life experiences, and useful tips to have informed conversations with your Healthcare Professional. * Get the FINE Communication Workbook at fineisnotenough.com  [https://www.fineisnotenough.com/]

Listen to a Healthcare Professional, Incyte Oncology Clinical Nurse Educators, and patients discuss the rare, chronic blood cancers called myeloproliferative neoplasms (MPNs) and why informed conversations are important for proper patient care. Learn that when patients tell their MPN healthcare team how their condition affects their lives, they help ensure they get the care and support they need. Hear about telehealth and how regular check-ins are key for people with MPNs. Hear conversation tips to use at healthcare appointments and find out how being specific about your MPN experience can lead to more informed discussions. * Register now [http://voicesofmpn.com/register] for useful MPN information and resources

For people living with a myeloproliferative neoplasm (MPN), such as polycythemia vera (PV), essential thrombocythemia (ET), or myelofibrosis (MF), it is not uncommon to sometimes feel alone on the MPN journey. That’s because MPNs are considered rare diseases. Connecting with an MPN peer to share information, insights, and experiences may help reinforce that you’re part of a greater community—and that you’re not alone on your journey.  Hear from Matt and Josh, two members of the MPN Community who recently had the opportunity to connect with each other through CHAMPN Connections, a peer-to-peer program that provides MPN patients and caregivers with the opportunity to connect one-on-one with a peer who shares a similar experience. Listen as these two individuals connect for the first time and have a conversation about their individual PV journeys, from initial diagnosis and beyond. Find out what they had in common—and how they were able to inform, inspire, and empower each other. Learn how to connect one-on-one with a member of the MPN community by registering for CHAMPN Connections at voicesofmpn.com/connections [https://www.voicesofmpn.com/connections]. The content presented is brought to you by Incyte Corporation. The content presented in this podcast is not medical advice and should not replace a conversation with your Healthcare Professional, who is the best source of medical information about your individual diagnosis and management plan.

Listen to MPN expert Dr. Krisstina Gowin, Assistant professor of medicine in the division of Hematology/Oncology at the university of Arizona Cancer Center, and renowned comic book artist J.G. Jones discuss important topics for those living with an MPN, like the value of education and ways to work with your Healthcare Professional to be an advocate for your health. Dr. Gowin, J.G. Jones, and host, Gina, will also discuss the value of an individualized approach for patients with MPNs. * Register now [http://VoicesOfMPN.com/register] for useful MPN information and resources  * See the Rare Reflections: MPNs Unmasked series  [http://VoicesOfMPN.com/rare]

Hear from an MPN expert—plus a group of real MPN patients! Learn about polycythemia vera, myelofibrosis, and essential thrombocythemia—the rare, chronic blood cancers known as myeloproliferative neoplasms, or MPNs.  Listen to Andrea Larson from Incyte Corporation talk with Incyte oncology clinical nurse educator Paul Larson about important topics for people living with MPNs, like tracking symptoms to watch for signs of disease progression. Also hear from Wilma, Marilyn, Dave, and other members of the Voices of MPN community who share their own personal MPN experiences. * Learn more about tracking your MPN [https://www.voicesofmpn.com/mpn-tracker-tools.aspx?utm_medium=referral&source=buzzsprout&campaign=mpnvoiceoutloud] over time  * Receive resources [https://www.voicesofmpn.com/register.aspx?utm_medium=referral&source=buzzsprout&campaign=mpnvoiceoutloud] to help you better understand and promote awareness of MPNs  The content presented in this podcast is not medical advice and should not replace a conversation with your Healthcare Professional, who is the best source of medical information about your individual diagnosis and management plan.