Man With Hereditary Cerebellar Ataxia, James Tot

Penny Surgery Update, No guest this week

Listen to hear a short update about Penny's upcoming surgery and learn a little more about what life with her is like.    We are looking for more guests to interview on the podcast.   If you know someone who is a part of the special needs community, please help out by encouraging them to contact us for an interview! We'd love to have the chance to hear and share more stories.  Our email is: specialfamiliespodcast@gmail.com Check out our website: https://www.snfamilies.com

Man With Hereditary Cerebellar Ataxia, James Tot

James Tot is one of the sons of Jackie and Martin Tot, who were interviewed in last week's episode.  He gives us some insights to life in a wheelchair and his interest in acting.   For those who would like to see James in his upcoming Zoom play, it will be available online from April 22 till April 30th at: https://www.showtix4u.com/event-details/63474 Our email is: specialfamiliespodcast@gmail.com Check out our website: https://www.snfamilies.com

Parents of Hereditary Cerebellar Ataxia Sons, Jackie and Martin Tot

Jackie and Martin Tot share some of their stories and wisdom regarding their lives in raising their three sons, two of which have hereditary cerebellar ataxia.  They explain the importance of having a good support network and fervently celebrating achievements, no matter how small. Our email is: specialfamiliespodcast@gmail.com Check out our website: https://www.snfamilies.com

Father of Downs Syndrome Son, Sevrin Hamilton

Sevrin Hamilton, a father to a son with Downs Syndrome, shares some of his story about life raising a son with this disability. Despite the initial surprise and struggle that this disability presented, his describes his son as "exactly what we needed", a reminder of love and the importance of relational connection, and encourages others facing the addition of a special need in their families to view it not as Plan B, but as a blessing. The website of the organization that Sevrin works for: https://theguidelight.org/ Our email is: specialfamiliespodcast@gmail.com Check out our website: https://www.snfamilies.com

Introduction | Jeremy Egberts (Down Syndrome)

My first podcast episode! Where I introduce myself, tell my personal story of how I became part of the special needs community, and explain why I started this podcast. For those wishing to contact me, please email at: specialfamiliespodcast@gmail.com