The Secret Life of Sibs

Episode 5: Kaitlyn's Experience

27 min · 20. joulu 2021
jakson Episode 5: Kaitlyn's Experience kansikuva

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Learn about Kaitlyn's experience with her younger sister, diagnosed with 1p36 deletion syndrome. She discusses how being a sibling led to qualities that she employs in her career, sheds light on her sister's rare genetic disorder, and shares how she dealt family health issues as a teenager. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!  If you or someone you know is affected by 1p36 deletion syndrome, here is a link to some resources: http://www.1p36dsa.org/online-community/. Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode.  (Transcript coming soon!)

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Kaikki jaksot

9 jaksot

jakson Episode 8: Amanda's Experience kansikuva

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Learn about Amanda's experience with her younger brother, who has various disabilities following an accident at an early age. She discusses raising children alongside caregiving for her brother, when family can and can't be there for you, and how siblings might maintain their sense of individuality and self-worth while caregiving. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!  Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode.  (Transcript coming soon!)

18. huhti 202247 min
jakson Episode 6: Brandon's Experience kansikuva

Episode 6: Brandon's Experience

Learn about Brandon's experience with his younger sister, diagnosed with Krabbe disease. He discusses how his family dealt with a dire prognosis, talks about the guilt that comes from being a sib, and shares what he would tell his younger self. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!  If you or someone you know is affected by Krabbe Disease, Krabbe Connect is a non-profit working to raise awareness and conduct research about the disorder: https://krabbeconnect.org [ https://krabbeconnect.org]. Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode.  (Transcript coming soon!)

20. joulu 202130 min
jakson Episode 5: Kaitlyn's Experience kansikuva

Episode 5: Kaitlyn's Experience

Learn about Kaitlyn's experience with her younger sister, diagnosed with 1p36 deletion syndrome. She discusses how being a sibling led to qualities that she employs in her career, sheds light on her sister's rare genetic disorder, and shares how she dealt family health issues as a teenager. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!  If you or someone you know is affected by 1p36 deletion syndrome, here is a link to some resources: http://www.1p36dsa.org/online-community/. Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode.  (Transcript coming soon!)

20. joulu 202127 min