Episode 130 - With Andrea Guse

Episode 130 - With Andrea Guse

A very moving and varied Hirschsprung's journey, as Andrea shares all about her son's Total Colonic Hirschsprung's. During the episode Andrea talks about the complexities of having a child with a weakened immune system and how she navigates public places to give him the most 'normal' life possible. Follow Andrea - @andrearguse [https://www.instagram.com/andrearguse/#]

Episode 129 - With Jodie Mulrainey

Jodie talks about her son Ollie, who has long segment Hirschsprung's Disease. In this episode we talk about plenty of challenges that Ollie has faced over the last 10 years, including multiple bouts of enterocolitis and stoma issues. Later on we talk about how Ollie is getting on with his ACE stoma and how it has improved his quality of life. Follow Jodie - @jodie_mulrainey28 [https://www.instagram.com/jodie_mulrainey28/#]

Episode 128 - With Stephanie Luster

An episode full of twists and turns awaits, as Stephanie joins me to talk about her daughter with Total Colonic Hirschsprung's Disease, this is most certainly not a straightforward case.In this episode we discuss the power of faith to get through difficult moments , as well how a supportive community is incredibly beneficial.Enjoy the episode

Episode 127 - With Zandra Thomas

Today Zandra and I chat about her son, who as well as having Hirschsprung’s Disease was also diagnosed with Autism, Epilepsy and having a genetic mutation with EEF1A2.A very hectic journey, including multiple different hospitals and procedures, ultimately ending in the colostomy that has significantly maintained Zacari's quality of life.Enjoy the episode

Episode 126 - With Laura Rigg

Hirschsprung's Disease UK Trustee, Laura joins me to talk about her daughter's Total Colonic Hirschsprung's.Originally thought to be short segment, until the biopsy found just a few centimetres of colon with living ganglion cells, we talk through the ups and downs of surgery, as well as 2 bouts of enterocolitis.Finally Laura talks about the incredibly important topic of parental mental health, and how the need to be well in yourself is vital for your child.