World of Wishes
In this deeply moving episode of World of Wishes, we are honored to welcome Bryan DeCobo, a Wish Dad whose journey with Make‑A‑Wish has been shaped by love, loss, resilience, and extraordinary courage. Bryan shares the story of his two sons, Ethan and Liam, who were both diagnosed with a rare, life‑shortening condition known as Coats Plus Syndrome. He opens up about the unimaginable reality of parenting two medically fragile children, the grief of losing Ethan at just four years old, and the determination that led his family to fight—not only for their own children, but for every family facing this rare disease. That fight included starting a first‑of‑its‑kind foundation, pursuing experimental treatments, and helping establish a new standard of care that is now stabilizing Liam’s condition. The episode also explores the power of wishes during life’s most painful moments. Bryan reflects on Ethan’s wish—a quiet, deeply personal trip to the mountains of North Carolina that became a sacred time for connection, love, and saying goodbye. He then shares the joy and light of Liam’s wish: traveling to Washington, D.C. to attend John Cena’s final wrestling match, where Liam met his hero and experienced a moment of pure, unforgettable joy. Beyond the wishes themselves, Bryan speaks candidly about fatherhood, vulnerability, and the importance of safe spaces for men navigating grief and fear. He discusses how joy is not just emotional—it can be transformational, even healing—and why Make‑A‑Wish is more than a moment in time; it is a force that brings light into the darkest chapters of a family’s story. This episode is a powerful reminder that every family is carrying something unseen—and that love, purpose, and joy can coexist even in the presence of profound loss. Learn more about how can get involved at https://wish.org/sfla! Be sure to follow us @makeawishsfla on Instagram, Facebook, YouTube, Twitter, TikTok, and LinkedIn! Subscribe, Rate, & Review this podcast to support future episodes that will feature wish kids and parents' past and present, volunteers, donors, referral sources and everyone who contributes to this World of Wishes!
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