How the SAA helps patients with Ankylosing Spondylitis / Axial Spondyloarthritis / axSpA with special guest SEAN EWERT

How these 2025 Nobel Prize winners could impact A.S. patients

A Nobel Prize-winning discovery could change the landscape of Axial Spondyloarthritis / Ankylosing Spondylitis forever. In this episode of AS Info Share, we break down the 2025 Nobel Prize in Medicine and what it means for our community. We’re moving past just "blocking" inflammation and moving toward Treg Therapies—a revolutionary approach that uses the body’s own Foxp3 gene to restore balance and stop the attack on the spine. We discuss: * The Foxp3 Blueprint: Why this "Master Controller" is the key to shutting down the AS fire. * Tregs vs. HLA-B27: How this new science can override our genetic glitches. * The Future of Treatment: From Low-dose IL-2 to "Precision Tregs" currently in clinical trials. * Functional Cures: What it means to "re-educate" your immune system for long-term remission. This discovery may provide the most realistic path to a future without daily pain. Join us as we explore the new blueprint for AS. ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare Support Our Sponsor https:/enXbo.com 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #ASInfoShare ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 ---------------------------------------- Hosted on Acast. See acast.com/privacy [https://acast.com/privacy] for more information.

How the SAA helps patients with Ankylosing Spondylitis / Axial Spondyloarthritis / axSpA with special guest SEAN EWERT

How do you manage the daily realities of life with Ankylosing Spondylitis and Axial Spondyloarthritis? In Part 2 of our series with Sean Ewert from the Spondylitis Association of America (SAA), we look at the support systems available to you. Sean shares his unique perspective on how the SAA is bridging the gap between patients and rheumatologists and offers vital advice for those struggling with the mental health challenges of chronic illness. ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- The SAA Website:spondylitis.org [https://spondylitis.org/] Official WYASO Event Page: spondylitis.org/walk-your-as-off/ [https://spondylitis.org/walk-your-as-off/] Link to join on Zoom for Walk Your AS Off Day May 3rd: https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration [https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration] Create an account to log steps and join a team: https://spondylitis.org/my-account/?spondylitis-steps=1 [https://spondylitis.org/my-account/?spondylitis-steps=1] Donation: https://spondylitis.org/get-involved/donate-to-walk-your-as-off/ [https://spondylitis.org/get-involved/donate-to-walk-your-as-off/] Fundraise: https://spondylitis.raiselysite.com/ Contact Sean for questions: sean.ewert@spondylitis.org 📸 JOIN THE CELEBRATION This is a celebration! Whether you’re walking, stretching, or finding your own unique way to move, we want to see it. Post your photos and videos using: #WalkYourASOff | #WYASO Link to step converter: 💡 PRO TIPS FOR PARTICIPANTS * World AS Day: Remember, World AS Day falls the day before the walk. Wear your orange, share your story, and help make our community visible! * Step Converters: Not walking? No problem. You can use a step converter (search Google for "Activity to Step Converter") to turn yoga, swimming, or even household chores into mileage for your team! ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #SpondylitisAssociationOfAmerica #ASInfoShare #WalkYourASOff | #WYASO ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 ---------------------------------------- Hosted on Acast. See acast.com/privacy [https://acast.com/privacy] for more information.

Walk Your A.S. Off

Movement is medicine. For those living with Ankylosing Spondylitis (AS) and Axial Spondyloarthritis (AxSpA), staying active isn't just a goal—it’s a vital part of managing the condition. In part one of this special two-part series on AS Info Share, we sit down with Sean Ewert, the Director of Member Engagement for the Spondylitis Association of America (SAA). We dive deep into the origin of the "Walk Your AS Off" (WYASO) event and discuss why this movement is more than just a walk—it’s a celebration of resilience. In this episode, Sean explains how the event can help you stay active throughout the year, how you can be part of the celebration, and the many ways you can support the movement. LET’S DO THIS! ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- The SAA Website:spondylitis.org [https://spondylitis.org/] Official WYASO Event Page:spondylitis.org/walk-your-as-off/ [https://spondylitis.org/walk-your-as-off/] Link to join on Zoom for Walk Your AS Off Day May 3rd: https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration [https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration] Create an account to log steps and join a team: https://spondylitis.org/my-account/?spondylitis-steps=1 [https://spondylitis.org/my-account/?spondylitis-steps=1] Donation: https://spondylitis.org/get-involved/donate-to-walk-your-as-off/ [https://spondylitis.org/get-involved/donate-to-walk-your-as-off/] Fundraise: https://spondylitis.raiselysite.com/ Contact Sean for questions: sean.ewert@spondylitis.org 📸 JOIN THE CELEBRATION This is a celebration! Whether you’re walking, stretching, or finding your own unique way to move, we want to see it. Post your photos and videos using: #WalkYourASOff | #WYASO Link to step converter: 💡 PRO TIPS FOR PARTICIPANTS * World AS Day: Remember, World AS Day falls the day before the walk. Wear your orange, share your story, and help make our community visible! * Step Converters: Not walking? No problem. You can use a step converter (search Google for "Activity to Step Converter") to turn yoga, swimming, or even household chores into mileage for your team! ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr 🐦 X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #SpondylitisAssociationOfAmerica #ASInfoShare #WalkYourASOff | #WYASO ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 ---------------------------------------- Hosted on Acast. See acast.com/privacy [https://acast.com/privacy] for more information.

Mental Health and Late Diagnosis for Women

In our final episode with patient advocate Michael Mallinson, we peel back the layers of the "invisible" side of Axial Spondyloarthritis. Living with a chronic condition isn't just a physical battle; it’s a mental one, too. We discuss the critical role of mental health support and why it should be a standard part of every treatment plan. We also dive deep into a major gap in the healthcare system: the diagnostic challenges women face. From being dismissed by doctors to waiting years longer than men for an accurate diagnosis, we explore why the female experience with AxSpA is often misunderstood and what needs to change. ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- ASIF - Axial Spondyloarthritis International Federation Canadian Spondyloarthritis Association http://www.sparthritis.ca NASS - National Axial Spondyloarthritis Society http://www.actonaxialspa.com Spondylitis Association of America http://www.spondylitis.com ASAS - Assessment of Spondyloarthritis International Federation http://www.asas-group.org EULAR - European Alliance of Associations for Rheumatology http://www.eular.org ACR - American College of Rheumatology http://www.rheumatology.org SPARTAN - Spondylarthritis Treatment and Training Network https://spartangroup.org/ Axial Spondyloarthritis Resources https://www.facebook.com/profile.php?id=100089425921229 PubMed https://pubmed.ncbi.nlm.nih.gov/ Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023 https://amzn.to/3NnXbKW ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr 🐦 X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #ASDiets #ASInfoShare ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 ---------------------------------------- Hosted on Acast. See acast.com/privacy [https://acast.com/privacy] for more information.

Fear of biologics and opinions on A.S. diet trends.

Biologics: life-changing medicine or something to fear? And can a specific diet really 'cure' an autoimmune condition? On this episode, we’re cutting through the noise. AxSpA patient advocate Michael Mallinson is back with us to tackle the anxiety surrounding medication and the dietary myths that flood our social feeds. You don’t want to miss this. ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- ASIF - Axial Spondyloarthritis International Federation http://www.asif.info Canadian Spondyloarthritis Association http://www.sparthritis.ca NASS - National Axial Spondyloarthritis Society http://www.actonaxialspa.com Spondylitis Association of America http://www.spondylitis.com ASAS - Assessment of Spondyloarthritis International Federation http://www.asas-group.org EULAR - European Alliance of Associations for Rheumatology http://www.eular.org ACR - American College of Rheumatology http://www.rheumatology.org SPARTAN - Spondylarthritis Treatment and Training Network https://spartangroup.org/ Axial Spondyloarthritis Resources https://www.facebook.com/profile.php?id=100089425921229 PubMed https://pubmed.ncbi.nlm.nih.gov/ Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023 https://amzn.to/3NnXbKW ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr 🐦 X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #ASDiets #ASInfoShare ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 ---------------------------------------- Hosted on Acast. See acast.com/privacy [https://acast.com/privacy] for more information.