Finding Hope on the Spectrum
Brooke interviews Vicki Christensen, founder of Blue Glasses Advocacy and mother of 21-year-old Luke, who has a rare partial trisomy of chromosome 14 and global developmental delays, and 17-year-old Everett, who has ADHD and an IEP. Vicki describes Luke’s early diagnosis, intensive therapies, and how he defied early “he may never” predictions, developing walking and verbal communication in his own time. She explains how an IEP meeting prompted her to earn a special education advocacy certificate, leave pharmaceutical sales, and advocate for families navigating IDEA, IEPs, and implementation fidelity. Vicki distinguishes 504 plans from IEPs, offers tips for monitoring services and requesting assessments, and emphasizes meaningful inclusion in schools and the community. She also discusses her book,“Uniquely, Fully, Enough: The Neurodivergent Parenting Journey - A Memoir and Handbook” combining a memoir and practical lessons, and encourages overwhelmed parents to find a supportive community early. 00:00 Welcome to the Podcast 00:44 Meet Vicki Christensen 02:12 Luke’s Early Diagnosis 04:02 Emotional Rollercoaster 07:03 Finding Parent Support 08:40 IEP Wake Up Call 11:43 Advocacy Philosophy 14:37 Everett’s ADHD Journey 20:45 504 vs IEP Explained 24:15 Ensuring IEP Fidelity 26:56 Requesting School Assessments 31:02 Who Luke Really Is 33:43 Luke’s Joyful Spirit 34:33 Support Needs and Internship 35:46 How Much Therapy Is Enough 37:44 Meaningful Inclusion Defined 41:47 Changing Minds on Inclusion 42:56 Inclusive Assemblies Impact 46:06 Why She Wrote the Book 48:26 Finding Your Village 52:23 Advocacy as a Long Game 56:05 Transitioning to Adulthood 58:27 Advice for New Diagnoses 01:01:16 Where to Find Her 01:02:30 Closing Thanks and Goodbye Connect with Finding Hope on the Spectrum: www.findinghopeonthespectrum.com Email: bwagner@findinghopeonthespectrum.com [bwagner@findinghopeonthespectrum.com] Facebook: https://www.facebook.com/profile.php?id=61574918739411 [https://www.facebook.com/profile.php?id=61574918739411] Linkedin: https://www.linkedin.com/in/brooke-wagner-4819233a/ [https://www.linkedin.com/in/brooke-wagner-4819233a/] Instagram: @findinghopeonthespectrum TikTok: Findinghopeonthespectrum Guest Contact: https://www.blueglassesadvocacy.com/ [https://www.blueglassesadvocacy.com/] Instagram: @blueglassesadvocacy
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