Building Joy, Dignity and Community: Inside WA’s First Children’s Hospice

Building Joy, Dignity and Community: Inside WA’s First Children’s Hospice

In this episode of Keeping Up with the PaSCE, Tim speaks with Dr Lisa Cuddeford and Carrick Robinson about the Sandcastles Project, Western Australia’s first dedicated children’s hospice. Together, they explore the realities of paediatric palliative care, the importance of supporting whole families, and how Sandcastles has been designed to provide respite, connection, symptom management and compassionate end-of-life care in a home-like environment. This moving conversation highlights the power of community, dignity and creating joy for children and families facing life-limiting illness. Cover image courtesy of Perth Children's Hospital Foundation ---------------------------------------- Hosted on Acast. See acast.com/privacy [https://acast.com/privacy] for more information.

AI and Neurodegenerative Disorders

In this episode of the PaSCE Podcast, I am joined by Lok, an Occupational Therapist from North District Hospital in Hong Kong, to explore the intersection of artificial intelligence, palliative care and Motor Neuron Disease (MND). Our conversation begins with the unfortunate reality of living with MND, its impact on the social, emotional and physical wellbeing of suffers and their loved ones. Lok shares what drew him to this work and introduces his framework, “The Four Things That Matter Most,” which guides his approach to end-of-life care. Together, we unpack how emerging technologies—such as voice banking, digital twins, eye-gaze control, powered voice synthesis and wearable technologies to support communication, autonomy and dignity throughout the course of the illness. It creates access when communication becomes inaccessible.   Looking ahead, Lok reflects on the future of healthcare and what the next frontier of technology may offer people living with MND and other life-limiting illness. Breaking the forth wall- will need to discuss the what’s next- it sounds groundbreaking.   ---------------------------------------- Hosted on Acast. See acast.com/privacy [https://acast.com/privacy] for more information.

Grief Australia

In this episode, Tim is joined by Chris Hall, psychologist and CEO of Grief Australia, Australia’s government-funded specialist bereavement service. With nearly two decades leading national grief support—and decades more in practice—Chris brings deep expertise in grief and bereavement, including child and adolescent grief, complex loss, and the impact of grief in workplaces and organisations. Together, they explore what grief really is, how our understanding of it is changing, and what a more grief-literate Australia could look like in practice. Chris also reflects on emerging trends, the role of government, and what gives him hope for the future of grief support in Australia. ---------------------------------------- Hosted on Acast. See acast.com/privacy [https://acast.com/privacy] for more information.

Health Economics

In this episode of the PaSCE Podcast, we’re joined by Associate Professor Chris Schilling, health economist and Principal Research Fellow at the University of Melbourne, to unpack how health economics shapes the decisions that influence care, equity and sustainability across Australia’s health system. Chris breaks down health economics in practical terms, explores the real-world implications for aged care and palliative care, and reflects on the economic challenges facing the system amid rapid reform, workforce shortages and shifting government priorities. We discuss how concepts like value, resource allocation and quality of life are understood (and sometimes misunderstood), and what Chris sees that others may not. References discussed throughout: Association of advance care planning with hospital use and costs at the end of life: a population-based retrospective cohort study | BMJ Open [https://bmjopen.bmj.com/content/14/11/e082766] Measures of health and health care for Australia and similar countries - Australian Institute of Health and Welfare [https://www.aihw.gov.au/reports/international-comparisons/international-health-data-comparisons] and Australia (EN) [https://www.oecd.org/content/dam/oecd/en/publications/reports/2025/07/health-at-a-glance-2023_39bcb58d/australia_b7b1b4e8/2711eb4d-en.pdf] 2023 OECD Report ---------------------------------------- Hosted on Acast. See acast.com/privacy [https://acast.com/privacy] for more information.

International Men's Day- Celebrating Men and Boys

In this International Men’s Day (19 Nov 2025) episode, we’re Celebrating Men and Boys with Matt Oke, facilitator at Kai-Fella, a WA charity working to prevent youth suicide and build emotional resilience. Matt shares his journey from international athlete and DJ to mental-health advocate — and how learning to open up helped him guide young men to do the same. A truly inspirational and dedicated young man. 👉 kai-fella.com.au [kai-fella.com.au] ---------------------------------------- Hosted on Acast. See acast.com/privacy [https://acast.com/privacy] for more information.