Disability Rewritten: Amplifying the Voices of Rare Patients with Dan Pezzetta

Disability Rewritten: Amplifying the Voices of Rare Patients with Dan Pezzetta

Sharing Our Stripes - Episode 1 Disability Rewritten: Amplifying the Voices of Rare Patients with Dan Pezzetta Dan Pezzetta is a 23-year-old patient advocate living with Aortic Stenosis. Dan is currently attending George Washington University for Legislative Affairs, where he hopes to always make a tremendous impact in everything he does. Dan has had the pleasure to speak at M.I.T., Harvard, Rare Disease Week on Capitol Hill, and virtually during YARR's Summer Series. Dan recently started a passion project called Disability Rewritten where he talks about issues that disabled people have faced, historical moments or figures in the community, and highlighting people of today who have a story to share. You can find Dan on Instagram @disability.rewritten. Resources Mentioned: https://everylifefoundation.org/ [//EveryLife Foundation for Rare Diseases] https://globalgenes.org/ [//Global Genes] https://www.instagram.com/disability.rewritten/ [//Disability Rewritten] Connect With Laura: https://www.instagram.com/sharingmystripes/ [//Sharing My Stripes] https://twitter.com/ShareMyStripes Are you a rare patient between the ages of 18-30? Are you interested in sharing your story? Email sharingmystripes@gmail.com for more information!