Episode 2: Frankie’s Story

Episode 1: Carly's Story

In this episode, we hear from Carly, Chief Research and Innovation Officer of #LupusChat, member of the National Institute of Health’s COVID-19 treatment guidelines panel as well as a research lead and liaison with the COVID-19 Global Rheumatology Alliance. Carly offers her unique perspective and valuable insight as a person living with lupus and asthma. Among the highlights in this episode: 01:47- Sarah introduces today’s guest, Carly 02:24- Carly shares the earliest memory of having an asthma attack 04:47- Sarah asks Carly if her mother, who also has asthma, prepared her for dealing with asthma attacks 06:33- Carly tells Sarah what love and support mean to her as it relates to asthma care 07:24- Sarah asks Carly if asthma has ever interfered with her relationships with loved ones 10:22- Carly talks about the people in her life who also have asthma 11:50- Carly shares the conversations she’d had with her partner about asthma preparedness and why it’s important to be open about chronic illness 16:32- Sarah asks Carly about how the LGBTQ+ community has supported her asthma journey 17:40- Carly talks about the support she’s received from her social media community #LupusChat 19:54- To close out the episode, Carly shares advice for those newly diagnosed with asthma See omnystudio.com/listener [https://omnystudio.com/listener] for privacy information.

Episode 2: Frankie’s Story

In this episode, we hear from Frankie Lee, a trans asthma patient who works in tech support and enjoys streaming. Frankie talks to us about the importance of support, listening to your body, and the value of self-advocacy when it comes to getting proper asthma care.   Among the highlights in this episode: 01:07- Sarah introduces today’s guest, Frankie Lee 01:55- Frankie recalls his earliest memory of having an asthma attack 02:55- Frankie tells Sarah about the various activities asthma prevented him from doing as a kid 05:35- Sarah asks Frankie if his asthma is now managed as an adult 06:07- Sarah and Frankie talk about what love and support means in relation to asthma care 07:54- Frankie tells Sarah how asthma plays a part in his relationship 09:57- Frankie reveals what he’s gained back since advocating for better asthma treatment 13:15- Sarah and Frankie discuss how being a part of the LGBTQ+ community helped Frankie in his asthma journey 17:26- Frankie offers insight on how to make doctors’ offices safer and more accepting of gender-affirming and LGBTQ+ care 23:34- To close out the episode, Frankie shares advice for those newly diagnosed with asthma See omnystudio.com/listener [https://omnystudio.com/listener] for privacy information.