Prof. Havi Carel - Phenomenology of illness

Conversations as Interventions with Professor Marie Williams

Episode 5: Conversations as Interventions with Professor Marie Williams In this episode Dr Ann Hutchinson talks to Professor Marie Williams Show Notes: The importance of How we explain breathlessness The dichotomy of patient perspective and  medical practitioner perspective on breathlessness Belief and expectations Predictability Pathology vs multifactorial diagnosis The long reaching consequences of how we explain breathlessness What Marie is working on BIo Professor Marie T Williams is a physiotherapist who leads the Persistent Breathlessness stream in the Innovation, Implementation And Clinical Translation in Health (IIMPACT)  research concentration, University of South Australia.  Her research interests include evidence-based approaches to chronic breathlessness including assessment, interventions (exercise, psychological and novel approaches) and education as an intervention for people/carers living with chronic breathlessness and clinicians. https://twitter.com/ohhmariet [https://twitter.com/ohhmariet] References in this podcast Understanding dyspnoea by its language -https://erj.ersjournals.com/content/25/2/380.long [https://erj.ersjournals.com/content/25/2/380.long]G. Scano, L. Stendardi, M. Grazzini Quantification of dyspnoea using descriptors: development and initial testing of the Dyspnoea-12 - https://thorax.bmj.com/content/65/1/21.long [https://thorax.bmj.com/content/65/1/21.long] J Yorke, S H Moosavi, C Shuldham, P W Jones Breathlessness Podcast Episode Ep3 - Apple Podcasts - https://podcasts.apple.com/gb/podcast/long-covid-managing-breathlessness-and-fatigue/id1523315873?i=1000493632603 [https://podcasts.apple.com/gb/podcast/long-covid-managing-breathlessness-and-fatigue/id1523315873?i=1000493632603] Spotify - https://open.spotify.com/episode/2P78OsUTpWOhMOH4HSnrl7?si=krKF4pceQh6KrJPYNVH4sA [https://open.spotify.com/episode/2P78OsUTpWOhMOH4HSnrl7?si=krKF4pceQh6KrJPYNVH4sA] Please email thebreathlessnesspodcast@gmail.com [https://thebreathlessnesspodcast@gmail.com/]with any comments or queries The Breathlessness Podcast is sponsored by the Dyspnea Society. To become a member please go their website for details  - The Dyspnea Society [http://dyspneasociety.com/Dyspnea_Society/The_Dyspnea_Society.html]and contact Professor Andrew Binks This podcast is produced by RogueSpirit podcasting - please email david@roguespirit.co.uk [https://david@roguespirit.co.uk/]with any enquiries.

The Muscular Origin of Breathlessness - Dr's Jensen & Lewthaite

Episode 4:The Muscular Origin of Breathlessness In this episode Dr Sara Booth talks to Dr Dennis Jensen and Dr Hayley Lewthaite Show Notes The physiology of breathlessness How past experience affects the psychology of breathlessness Fear and the mismatch between ventilation expectation and physical capability. Exercise: The cause and the treatment Improving the effective dimensions of breathlessness The benefit and problems  of individualised research Peer & supported exercise experiences After care models Bios Dennis Jensen is an Associate Professor at the Dept of Kinesiology & Physical Education, McGill University; Canada Research Chair in Clinical Exercise & Respiratory Physiology. Dennis's research  focuses on identifying the causes of activity-related breathing discomfort (dyspnea) and exercise intolerance in health, variants of health (e.g., elderly, obesity) and in patients with chronic cardiorespiratory disease, specifically chronic obstructive pulmonary disease. https://twitter.com/drj9378 [https://twitter.com/drj9378] https://www.mcgill.ca/cerpl/dennis-jensen-phd [https://www.mcgill.ca/cerpl/dennis-jensen-phd] Hayley Lewthwaite is a postdoctoral research fellow at the Clinical Exercise and Respiratory Physiology Laboratory of McGill University, Montreal, Canada. Hayley's research focuses on optimising the assessment and management of activity-related breathlessness in people with chronic lung conditions. Hayley has a particular interest in exploring novel adjunctive therapies to exercise training for the management of breathlessness. https://www.linkedin.com/in/hayleylewthwaite [https://www.linkedin.com/in/hayleylewthwaite] https://twitter.com/hlewthwaite [https://twitter.com/hlewthwaite] Please email thebreathlessnesspodcast@gmail.com [https://thebreathlessnesspodcast@gmail.com/]with any comments or queries The Breathlessness Podcast is sponsored by the Dyspnea Society. To become a member please go their website for details  - The Dyspnea Society [http://dyspneasociety.com/Dyspnea_Society/The_Dyspnea_Society.html]and contact Professor Andrew Binks This podcast is produced by RogueSpirit podcasting - please email david@roguespirit.co.uk [https://david@roguespirit.co.uk/]with any enquiries.

Long Covid: Managing Breathlessness and Fatigue - Dr Anna Spathis

Episode 3: Long Covid: Managing Breathlessness and Fatigue Dr Anna Spathis is a  Consultant in Palliative Care and Consultant Lead for Breathlessness Intervention Service [https://www.cuh.nhs.uk/breathlessness-intervention-service-bis]-  and you can learn more about her here - https://www.phpc.cam.ac.uk/people/pcu-group/pcu-senior-academic-staff/anna-spathis/ [https://www.phpc.cam.ac.uk/people/pcu-group/pcu-senior-academic-staff/anna-spathis/] Show Notes In this episode Dr Spathis talks with podcast host Dr Sara Booth about :- The Effects of Covid Exploring the different types of patient being treated The difficulties of Long Covid Managing symptoms Vicious Cycles of emotional responses Remote working Evaluating outcomes - The variety of referral services consequences of the lack of understanding on the patient group The importance of Transdiagnosis Papers mentioned in this podcast Spathis A, Booth S, Moffat C, Hurst R, Ryan R, Chin C, Burkin J. The Breathing, Thinking, Functioning clinical model: a proposal to facilitate evidence-based breathlessness management in chronic respiratory disease. NPJ Primary Care Respiratory Medicine 2017; 27(1):27. DOI: 10.1038/s41533-017-0024-z [http://rdcu.be/rvp8] Please email thebreathlessnesspodcast@gmail.com [https://thebreathlessnesspodcast@gmail.com/]with any comments or queries The Breathlessness Podcast is sponsored by the Dyspnea Society. To become a member please go their website for details  - The Dyspnea Society [http://dyspneasociety.com/Dyspnea_Society/The_Dyspnea_Society.html]and contact Professor Andrew Binks This podcast is produced by RogueSpirit podcasting - please email david@roguespirit.co.uk [https://david@roguespirit.co.uk/]with any enquiries.

Opioids & Chronic Breathlessness - Assoc. Prof. Natasha Smallwood

Episode 2 - Opioids & Chronic Breathlessness - Assoc. Prof. Natasha Smallwood Assoc.  Professor Natasha Smallwood is a consultant respiratory physician at  the Royal Melbourne Hospital in Australia, where she established and  leads an integrated respiratory and palliative care service for people  with advanced non-malignant respiratory illnesses. She is a principal  research fellow at the University of Melbourne and holds various  research grants to understand the perception of breathlessness and  investigate new treatments for severe chronic breathlessness. IN this episode she reviews and discusses the clinical use of opioids in people living with chronic breathlessness with host Dr Sara Booth Please rate and review the show on iTunes and don't forget to let us know your opinion on social media or at thebreathlessnesspodcast@gmail.com [thebreathlessnesspodcast@gmail.com] This podcast is sponsored by The Dyspnea Society. To become a member please visit http://dyspneasociety.com/Dyspnea_Society/The_Dyspnea_Society.html [http://dyspneasociety.com/Dyspnea_Society/The_Dyspnea_Society.html]and contact Professor Andrew Binks This podcast is produced by RogueSpirit Podcast - email david@roguespirit.co.uk [david@roguespirit.co.uk] for any enquiries

Prof. Havi Carel - Phenomenology of illness

Prof Havi Carel - Phenomenology of illness Dr Sara Booth in discussion with Professor Havi Carel Havi Carel studied for a BA and MA at Tel-Aviv University [https://en.wikipedia.org/wiki/Tel-Aviv_University]and was awarded her PhD by the University of Essex [https://en.wikipedia.org/wiki/University_of_Essex]. She was lecturer at the University of the West of England [https://en.wikipedia.org/wiki/University_of_the_West_of_England]then moved to the University of Bristol [https://en.wikipedia.org/wiki/University_of_Bristol]as a senior lecturer and later promoted to professor. Her research interests include philosophy of medicine [https://en.wikipedia.org/wiki/Philosophy_of_medicine], phenomenology [https://en.wikipedia.org/wiki/Phenomenology_(philosophy)], philosophy of death [https://en.wikipedia.org/wiki/Philosophy_of_death], epistemic injustice [https://en.wikipedia.org/wiki/Epistemic_injustice]and health, illness, and children, and film and philosophy. Carel is best-known for her work on the phenomenology of somatic illness, and has led AHRC-funded project on concepts of health, illness, and disease (2009–11), a Leverhulme Trust [https://en.wikipedia.org/wiki/Leverhulme_Trust]-funded the lived experience of illness, a British Academy [https://en.wikipedia.org/wiki/British_Academy]Mid-Career Fellowship and currently has a Wellcome Trust [https://en.wikipedia.org/wiki/Wellcome_Trust]Senior Investigator Award funded project, 'The Life of Breath' In 2006, Carel was diagnosed with lymphangioleiomyomatosis [https://en.wikipedia.org/wiki/Lymphangioleiomyomatosis], a life-limiting lung disease, and much of her academic work reflects her own lived experiences as an ill person. Show Notes 00m - intro to Havi and the study of phenomenology 2m - Havi’s own experience of breathlessness 4m the difference between normal and pathological breathlessness 6m the politics of breathlessness  and symptom discordance 9m The Wellcome Trust Life of Breath investigation 15m Improving care for people with breathlessness - Exploring the holistic nature of breathlessness treatment 16m attitude towards illness. Is it a norm rather than an aberration? 21m - Her book Illness and it’s influences  and the geography of illness, social architecture of  our lives 27m -  belief systems, perspective and the benefit of philosophy 33m -  testimonials -  effecting lasting change in medical practice Find out more about the Wellcome Investigation - https://lifeofbreath.org/ [https://lifeofbreath.org/]