Where Do We Grow From Here? Podcast
Through streams of tears, this question arose… after saying goodbye to my sweet, dear, friend for the last time. This was our last healing session together, our last visit, our last time looking into each other’s eyes, our last shared smile, our last embrace. For over two years, I had watched ALS ravage his body, and in that moment I was still in disbelief that I would never see him again, that he had gone downhill so quickly and steadily. He was a doctor who devoted his life to generously helping others, and with incredible grace he reached out to receive care when he started feeling off. I was one of the healers on his care team, entrusted to hold space for him and his process. It was simultaneously a blessing and absolutely awful. I don’t know if ALS has ever touched your life, but it’s a horrific disease. My friend was totally open with me, allowing me to be with him as he was, and I witnessed the support, and strength, that a lifetime of spiritual practice could provide during sickness and suffering. As his body and its functions began to fade, his heart remained open and strong. He held space for immense fear, anger, sadness, pain, and vulnerability - the full spectrum of what was happening - without losing his quirky sense of humor, even when speaking through a machine. Our time together during those years was precious. It challenged me deeply and expanded my capacity, not only as a healer, but as a friend and fellow human. I wanted to show up for him AND honor my personal feelings, as I watched this person I loved fall apart before my eyes, and in my hands. I learned so much from him, as he fully opened his lifetime of knowledge and wisdom to me during our sessions and visits. He let me see him, and as heartbreaking as it was, it was also a tremendous gift. I would pray in the car on my way to him, asking for blessings so that I could be there fully and be as much help as possible. Instinctively, I knew that I needed help to care for him with my heart wide open, not blocking uncomfortable feelings, or hiding from what was happening. He was getting worse and worse… he was dying. My heart’s wish was to be there for him, care for him, love him, help him receive what he wanted, and let my feelings flow freely. One day when I arrived, there was a sign on the door letting people know that he was no longer receiving visitors. I had never seen anyone do this before, and I smiled. Until that moment, it hadn’t occurred to me that part of dying with dignity could include drawing boundaries, creating a sacred and intentional space. At a time when he was most vulnerable, he had to trust his loved ones to carry out and protect his wishes. During his last week I was blessed to be with him twice. This time was precious, and I will always remember it. Somehow I knew how to be with it all, and these last two sessions were profound. I started singing the mantras and prayers that were dear to his heart to him, which created even deeper connection and intimacy. When I left him that last day I was wrecked. My heart was broken open. I received so much from our friendship, from this experience. Through all this suffering, he left his nearest and dearest with gifts… with blessings, wisdom, love and true compassion, with guts and strength that helped us to increase our capacity to give and receive. It was only natural as my tears flowed that I began to wonder “Who will be there for me when I die?” In those moments it was a desperate, raw, visceral question. Who will be there for me? I saw how much care he needed and received, and I was looking at all the people in my life, wondering… Who will care for me when I need help? Who will carry out and protect my wishes? What are my wishes? These questions drew me deeper into my grief and left me feeling incredibly exposed, unprepared, and uncertain. I withdrew strongly, curled up in a ball, snuggled with my dog Rubin, and attempted to nurse my weeping heart and process what I had witnessed. As a healer, I knew part of my gift was the capacity to be with others and hold space when they were sick and dying. It wasn’t the first time I was called upon to do this work, but it was the first time I held that space while ALS destroyed someone I loved so much. This experience changed me, and it’s taken me years to be able to write about it because I am still digesting it. Right away I recognized this question as a true and magnificent gift, but I had no idea the journey it was about to take me on. What began as an immediate mirror being held up in front of me, creating a sense of importance and urgency, turned into a living, breathing, contemplation, that I will return to again and again. In the years since his passing, “Who will be there for me when I die?” has become a part of me. It’s as much a reflection about life as it is about death, and it helps me to pay attention to how I am living and what I am pouring my energy into. As I started exploring who would be there for me when I die, I asked myself: “Who is here for me while I live?” What relationships are strong enough, loving enough, to help me through life’s challenges? Who encourages and supports me to be my best, and who loves me, without judgment, when I am at my worst? Who am I able to be myself fully with? Who do I let in? Who will hold my heart with care when I’m totally exposed and vulnerable? When I’m afraid? When I’m a wreck? When I’m unable to care for myself? When I can’t keep holding it all together? Who will carry out and protect my wishes? It goes beyond the people though. I also receive a tremendous amount of support and care from other sources of unconditional love in my life… my dog Rubin, nature, my heart and its wisdom, my spiritual practice, and my spiritual capital, that boundless, inexhaustible, resource that we all share. How am I living? How can I do the work that only I can do to be here for myself now and when I am sick and dying? Now is the time for me to gather and build a strong connection to my heart, faith, and spiritual capital. I want to intentionally establish and strengthen these transcendent connections now so they enhance the quality of my life, my relationships, and are there for me when I need it most. I am learning how to be here for myself emotionally, to trust my heart and to rely on it and my vast spiritual wealth for what is beyond my capacity. This is my instant and internal source of support in life, sickness, incapacity, and death. The questions kept coming as I began to turn my attention from my life and how I was living to what I might want when I am sick and dying. How will I die well when I have no idea of how or when death will come for me? Even though I knew that I couldn’t truly plan for my sickness and death, I could still explore and make aspirations for what I would like. I knew that I would be there for myself, best I can. My spiritual wealth would support me, and I would require help from others. Would I be able to let go, open up and receive well? What would help me receive well? Contemplating my death wasn’t new to me. When I was very sick with Lyme disease in my early thirties, there was a time when my doctor told me he couldn’t tell if I was going to get better or worse. He lovingly sent me home that day with the suggestion that I get my affairs in order and make any amends or connections I needed to be at peace in my heart. At that point it was more a matter of being incapacitated than dying. Life as I had known it had already been interrupted, and I understood that there might come a day that I wouldn’t be able to care for myself or my consciousness could shift from all the neurological symptoms. Following his prescription, I realized I knew my parents would care for me, and beyond that I just needed to know my dog Tewa would be taken care of. Of course it wasn’t as simple as it sounds here. I was very scared and in a lot of pain, but when I went through this process I really felt my spiritual practice and wealth support me… giving me strength, peace, compassion, and like my friend, keeping my sense of humor intact. But things are different now. I am older and my parents are elders, and I carry the wisdom of what I witnessed with my friend. My journey with Lyme taught me I could face uncertainty with my spiritual practice as support, but my friend showed me something more… that dying could be met with intention, clarity, and deep care. I want that for myself. Not just knowing my dog Rubin would be cared for, but understanding what would help me receive well, what would allow me to open my heart fully even in my most vulnerable state. I want to meet my death the way I want to live… awake, connected, and held. As I thought about what I wanted, I started to write it down… who to call, prayers I want read to me, music, where I would like to be, the reminder that nature is healing to me. Then it occurred to me that it was time to create my living will, something I could craft in my own words and return to as my life and wishes evolved. It became a practice of love - articulating boundaries of care, expressing how I want my body honored, naming my wish for an outdoor celebration. Every time I revisit it, I smile because it feels good to do this for myself and for the people who will care for me. While writing this piece, a marvelous idea came to me! I’m going to make a video to accompany my living will. My intent is to help my loved ones and care takers connect to my life and what’s most important to me. It would serve as a support for them as they navigate my care, make decisions, and carry out and protect my wishes. Creating my living will felt good and satisfying, but in my heart it still felt incomplete. What good was capturing my wishes, if I didn’t sit down with my loved ones and share them face to face? Taking this next step felt pretty scary. It was time to put myself out there, ask for help, and trust I would be received well. So I gathered up the strength of my heart, and I adventured into these conversations. At this time in my life, it’s just me and my dog Rubin. No partner, no kids. Hoping I would outlive my parents, I looked towards my nearest and dearest who are younger than me. First, I went to my parents, mostly about my wishes if something were to happen to me and I was unable to make my own decisions. Yes, it’s in my living will, but I wanted them to hear it from me. It was hard initially because they are my parents. They gave me life, and here I am having to talk to them about what I want if something were to happen to me. As the words came out I felt the tightness and anxiety in my body release into a gentle sense of ease and relief. In some ways, the conversation with my parents was the hardest and most emotional. It went so well that it gave me courage to continue on. When I thought about who else I wanted to talk to, I knew it had to be a very strong relationship, whether friend or family… someone who would stand up for what I wanted even if there was resistance and who understood my spiritual life enough to help support the deepening of my practice and devotion. Three dear friends, and a whole family of loved ones, came to mind. So off I went, and one by one I told them this story, my wishes and concerns. I felt incredibly vulnerable, like I was carefully carrying my heart towards each of them, revealing it fully, as I looked into their eyes. In these moments, something beyond words passed between us. I wasn’t just sharing. I was asking for help. If you are able to, would you be there for me when I get old and need care? It’s a big ask of someone, but the energy was more of a heartfelt invitation vs asking for a commitment. All the conversations were extremely well received, as I sensed they would be. I felt loved. Warmth permeated my entire being when they each confirmed that I would have a place with them. It was like receiving a huge hug that said, “we love you and we got you.” I am in tears as I write this, recalling those moments. Along with contemplating my sickness and death, I discovered that I wanted to make aspirations and plans for myself as I grew older as well. If I were still on my own, I wanted to make sure I was around loved ones, connected, engaged, and able to contribute. I want to live in a community where people are living meaningful spiritual lives, where we support each other’s well being and sacred aspirations. So it wasn’t just will you help me carry out and protect my wishes for sickness and death. It was also about helping myself live well and flourish, while continuing to benefit others. I certainly don’t know what’s going to happen or how my life will unfold, and I know that I can’t plan for the unknown. But I do know that having these conversations brought peace and ease to my heart, and reminded me that I was loved… really loved. Feeling loved is different from being told I am loved. Not one of these people needed to tell me that they loved and cared for me because the feeling was unmistakable. These conversations are just the beginning. Life will continue to evolve and unfold, and there will be more talks along the way. Nothing is set in stone, yet I feel loved and relieved knowing that I took the time to explore this gift. “Who will be there for me when I die?” has become a living reflection that I return to again and again. I keep the question on a post it in my space, so I see it almost everyday. It reminds me to stay aware of how I am living, to treasure and nourish the precious relationships in my life, to have the guts to reveal my heart to others, and to continue down my spiritual path. My dear friend would be grinning from ear to ear knowing where this question has taken me, thrilled that I am sharing it with all of you, and if this inspires you to embark on your own journey… even better! His generosity and love carries on! I am so grateful to him for this magnificent gift, to Scott Peppet for encouraging me to write about it, and to all my nearest and dearest who are here for me everyday. This week I turned 52 and it’s the two year anniversary of Where do we grow from here? Thank you for supporting me and taking the time to read and listen. It feels like the perfect time to share this piece that is so dear to my heart. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit jenlaun.substack.com [https://jenlaun.substack.com?utm_medium=podcast&utm_campaign=CTA_1]
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