Candid Hearts: Conversations and CHD

Mezzion & FUEL-2: A New Chapter of Hope with John Pressor, Margaret Sarah Alexander, and Meg Didier

43 min · 27 apr 2026
aflevering Mezzion & FUEL-2: A New Chapter of Hope with John Pressor, Margaret Sarah Alexander, and Meg Didier artwork

Beschrijving

Today, we’re joined by members of Mezzion, a pharmaceutical company focused on improving outcomes for those living with single ventricle heart conditions. In our conversation with John, Margaret Sarah, and Meg, we learn more about their mission to bring hope to the CHD community through their FUEL-2 study. FUEL-2 is exploring a potential new medication called udenafil, designed to help children and teens who have undergone the Fontan procedure. The study is looking at whether this treatment can improve energy levels, exercise capacity, and daily functioning, while also evaluating its safety. Join us as they share more about Mezzion’s work, the population they serve, and how studies like FUEL-2 could make a meaningful difference for the single ventricle community. https://mezzion.com/ [https://mezzion.com/] https://www.fuel2study.com/ [https://www.fuel2study.com/] https://www.linkedin.com/company/mezzion [https://www.linkedin.com/company/mezzion] If you or someone you know would like to be part of the podcast you can message both Meagan and Amy at:  candidhearts25@gmail,com Find our journey’s on Facebook: My HLHS Diary- Amy Erhart Cunningham My HLHS Story- Meagan Houpt

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aflevering The Beginning of Adult Heart Camp- with Amy Erhart Cunningham and Meagan Houpt artwork

The Beginning of Adult Heart Camp- with Amy Erhart Cunningham and Meagan Houpt

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aflevering Icing Smiles: Creating Joy, One Cake at a Time artwork

Icing Smiles: Creating Joy, One Cake at a Time

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aflevering Living Both Sides of CHD with Mia Johnson artwork

Living Both Sides of CHD with Mia Johnson

Today, Mia joins us to share her incredibly unique story. Born with a congenital heart defect of her own, Mia has lived a healthy and vibrant life. When she and her husband decided to grow their family, she knew there were potential risks after  conversations with her medical team. At her 21-week fetal ultrasound, they learned that her son would also be born with a congenital heart defect. In this episode, Mia vulnerably walks us through her pregnancy journey — the emotions, the unknowns, and the strength it took to move forward with courage. She shares how she advocated for specialized care, made critical decisions for both herself and her baby, and prepared for a birth that would require a carefully coordinated medical team. Join us as we talk about generational CHD, maternal intuition, advocacy, and the powerful resilience of a heart mom who has lived both sides of the story — as a patient and now as a parent. If you or someone you know would like to be part of the podcast you can message both Meagan and Amy at:  candidhearts25@gmail,com Find our journey’s on Facebook: My HLHS Diary- Amy Erhart Cunningham My HLHS Story- Meagan Houpt

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