Leaks, Laughs & Life with a Urostomy

Mental Health After Bladder Removal

14 min · 26 apr 2026
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Beschrijving

Mental health after bladder removal is something many people experience, but few fully understand until they are living it. In this episode, I share the emotional side of recovery. The anxiety, grief, body image shifts, and the quiet moments where everything feels heavier than expected. I talk about what it felt like to navigate those early days without the support I needed, and the isolation that came with trying to figure it all out in real time. This is not about the physical side of recovery. This is about the part that happens internally. The moments where you feel disconnected, exhausted, and unsure how to move forward. I also share what helped me begin to shift out of that space, including recognizing the signs of depression, allowing myself to meet myself where I was, and finding small ways to move forward without pressure. If you are preparing for surgery, newly navigating life with a urostomy, or finding yourself in that quiet, heavy space, this episode is for you. You can also find Leaks, Laughs & Life with a Urostomy: The Handbook and The Plot Twist Journal on Amazon. Together, they support those preparing for or living with a urostomy, as well as those supporting them.

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Mind the Gap: What Doctors Don’t Always See

This week on Leaks, Laughs & Life with a Urostomy, we’re talking about the gap between what doctors know medically and what patients learn by actually living with a urostomy every single day. Doctors understand surgery, anatomy, labs, and complications. But patients learn the real-life side of this journey through experience... the leaks, skin irritation, product failures, anxiety before appointments, travel stress, and all the small details that never seem to make it into a chart. In this episode, I share my thoughts on self-advocacy, journaling, communicating with providers, and why lived experience matters in healthcare conversations. I also share a moment with my surgeon after she flipped through my book Leaks, Laughs & Life with a Urostomy: The Handbook and realized there were still things about daily urostomy life she had never considered before. This is not about “patients versus doctors.” It is about bridging the gap between clinical knowledge and real-life experience so patients feel more seen, heard, and understood. You can find my book, journal, podcast episodes, and additional resources at LeaksLaughsLife.com.

28 mei 20268 min