Let's Talk MS

Let's Talk MS

Podcast door Young People's Network

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Over Let's Talk MS

Welcome to 'Let's Talk MS' a podcast series created by young minds for young minds and proudly presented to you by the European Multiple Sclerosis Platform. In this podcast, we unpack the intricacies of living life as a young adult while navigating the challenges that come with Multiple Sclerosis (MS) and MS-related disorders (like NMO and MOGAD). From dating to nutrition or dealing with the MS stigma, we navigate it all through expert insights and personal stories. This podcast is a project of the European Multiple Sclerosis Platform. This activity was co-founded by Merck, Roche, Sanofi-Genzyme, Novartis, Horizon Therapeutics and Janssen who do not have any influence on the content of the project and their financial support does not constitute endorsement by EMSP of any of the companies’ products or services. We thank them for their generosity and support.

Alle afleveringen

7 afleveringen
episode S01E07 | Facing NMOSD and MOGAD: More than a diagnosis artwork
S01E07 | Facing NMOSD and MOGAD: More than a diagnosis

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we explore what it truly means to live with NMOSD and MOGAD, explaining what these conditions are and the vital role that community plays in the journey. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:  * Souad Mazari, patient advocate and founder of NGO Rare Mais Ensemble in France. * Aida Fuentes, journalist, teacher, and the first person with NMOSD to join EMSP’s Young People’s Network (YPN). Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon.   Stay tuned and thank you for being part of our community!

10 jul 2025 - 35 min
episode S01E06 | Life with MS: Overcoming Stigma & Discrimination artwork
S01E06 | Life with MS: Overcoming Stigma & Discrimination

Welcome to Let’s Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we discuss the stigma and discrimination faced by people with multiple sclerosis and related conditions, as well as the misjudgement of symptoms when they are both visible and invisible. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Elizabeth Cunningham, a health communications consultant and Senior Communications Manager at the European Federation of Neurological Associations (EFNA). Emma Rogan, a brain health campaigner who has worked at EMSP for over a decade. She has spent her career addressing employment issues, job retention and returning to work for people diagnosed with MS and/or living with a disability.   Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram [https://www.instagram.com/eumsplatform/] and Twitter [https://twitter.com/eumsplatform] @eumsplatform for more about MS.   If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp].   Stay tuned and thank you for being part of our community!

12 jun 2025 - 43 min
episode S01E05 | Living with MS: Navigating Mental Health Challenges artwork
S01E05 | Living with MS: Navigating Mental Health Challenges

Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we discuss the emotional impact of an MS diagnosis on young people. Our guests share personal experiences, tips on asking for help, the importance of small daily victories and support, and much more. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Yolanda Higueras, a PhD neuropsychologist with over 20 years of experience who has collaborated with EMSP on several occasions, including the previous edition of the Young People’s Festival. Janneke Knol is a member of the Young People’s Network (YPN) from the Netherlands, where she also coordinates the Youth Group within the national MS society.   Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram [https://www.instagram.com/eumsplatform/] and Twitter [https://twitter.com/eumsplatform] @eumsplatform for more about MS.   If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp].   Stay tuned and thank you for being part of our community!

08 mei 2025 - 37 min
episode S01E04 | Parenting with MS: Pregnancy and Family Planning artwork
S01E04 | Parenting with MS: Pregnancy and Family Planning

Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode we'll talk about family planning, pregnancy and what comes after when you have the baby, learning the importance of expressing your self and don’t be afraid to talk and ask your questions to healthcare specialists.   Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Vicki Mathews, a nurse from the UK who has dedicated her career to the care of MS, as well as two members of the Young People’s Network: Iris Magnúsdóttir from Iceland, who has recently become a mom, and Nik Miskovic from Slovenia, a father of two.   Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram [https://www.instagram.com/eumsplatform/] and Twitter [https://twitter.com/eumsplatform] @eumsplatform for more about MS.   If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp].   Stay tuned and thank you for being part of our community!

10 apr 2025 - 56 min
episode S01E03 | MS & The Power of Community artwork
S01E03 | MS & The Power of Community

Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode we'll explore the power of community and why people with MS need each other to foster a sense of resilience, advocate for change and create a sense of belonging. Alongside host Simina Peterfi, we introduce our guests Tania Pilz: a youth advocate, member of the EMSP’s Young People’s Network, content creator and the founder of the first International Multiple Sclerosis Community in Austria. She will be joined by Amy Thompson, founder & CEO of MS Together, winner of National Diveristy Award, freelance content creator and disability advocate.  Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp]. Stay tuned and thank you for being part of our community!

04 dec 2024 - 40 min
Super app. Onthoud waar je bent gebleven en wat je interesses zijn. Heel veel keuze!
Super app. Onthoud waar je bent gebleven en wat je interesses zijn. Heel veel keuze!
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Rated 4.7 in the App Store

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3 maanden voor € 1,00

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