What It’s Really Like to Live with an Autoimmune Disease in Your 50s

Could Your Eyes Be Warning You? Vision Changes, Optic Neuritis, and Neurological Conditions Explained

Send us Fan Mail [https://www.buzzsprout.com/2520158/fan_mail/new] Could your eyes be trying to tell you something about your brain? Many people associate neurological diseases with symptoms like weakness, numbness, fatigue, or balance problems. But for many—including Michele Weston—vision changes are one of the earliest warning signs. In this eye-opening solo episode of Beyond My Diagnosis, Michele shares her personal experience with optic neuritis, the symptom that ultimately led to her multiple sclerosis diagnosis more than 25 years ago. She explains why sudden vision changes should never be ignored and explores how the eyes often provide some of the earliest clues that something may be happening within the nervous system. This episode isn't intended to create fear. It's designed to help you become a more informed and empowered advocate for your own health. Because information is power. In This Episode You'll Learn * Why vision changes can be early signs of neurological disease * What optic neuritis is and why it's often associated with multiple sclerosis * Symptoms that should never be ignored * How inflammation affects the optic nerve * The connection between heat and neurological vision symptoms * Why MS isn't the only neurological condition that affects vision * Conditions including neuromyelitis optica (NMO), Parkinson's disease, stroke, migraines with aura, idiopathic intracranial hypertension (IIH), brain tumors, and giant cell arteritis * When to seek immediate medical attention * How to advocate for yourself if symptoms don't seem right Common Vision Symptoms Michele Discusses Vision changes don't always mean you need a stronger eyeglass prescription. Sometimes they can be your nervous system asking for help. Symptoms may include: * Blurred vision * Eye pain, especially with eye movement * Double vision * Temporary vision loss * Loss of color vision * Blind spots * Floaters * Difficulty focusing * Eyes that don't seem to work together * Involuntary eye movements (nystagmus) * Episodes where vision becomes unusually dark—or unusually bright Because nearly half of the brain is involved in processing vision, neurological conditions frequently affect how we see. What Is Optic Neuritis? Optic neuritis is inflammation of the optic nerve—the pathway that carries visual information from your eyes to your brain. It's one of the most recognized neurological eye conditions and is commonly associated with multiple sclerosis, although it can also occur with neuromyelitis optica (NMO), lupus, infections, and other autoimmune diseases. Common symptoms include: * Pain when moving the eye * Blurred vision * Faded or dim colors * Blind spots * Temporary vision loss (often in one eye) Many people recover much or most of their vision, although some changes may remain. Heat and Vision Changes Because this episode was inspired by the extreme summer heat, Michele also explains why rising body temperature can temporarily worsen neurological symptoms. She shares practical tips to help reduce heat-related flare-ups, including: * Wearing a hat outdoors * Using cooling neck wraps or cooling vests * Drinking cold beverages * Avoiding prolonged heat exposure * Paying attention to how your body responds when moving between hot and cold environments For people living with MS and other neurological or autoimmune conditions, these small strategies can make a meaningful difference during the summer months. Michele's Story Michele reflects on the fear she experienced when optic neuritis first affected her vision and shares the importance of finding specialists who truly listen. She recounts her experience with neuro-ophthalmologist Dr. Kupersmith, whose compassion and commitment to urgent patient care reinforced just how important it is to take unexplained vision changes seriously. Her message is clear: Don't ignore your symptoms. Be curious. Ask questions. Seek second opinions when something doesn't feel right. You are an essential member of your healthcare team. Michele's Closing Message Our diagnosis may shape our lives. But it never defines our potential. There is still joy to experience. Purpose to pursue. And a future worth planning for. Living with a chronic illness isn't just about managing symptoms. It's about managing your life. 🔗 RESOURCES MENTIONED National Multiple Sclerosis Society https://www.nationalmssociety.org/ [https://www.nationalmssociety.org/] American Academy of Ophthalmology https://www.aao.org/ [https://www.aao.org/] National Eye Institute https://www.nei.nih.gov/ [https://www.nei.nih.gov/] American Academy of Neurology https://www.aan.com/ [https://www.aan.com/] National Institute of Neurological Disorders and Stroke https://www.ninds.nih.gov/ [https://www.ninds.nih.gov/]

How to Age Well with a Chronic Illness: Healthy Aging, Independence, and Living Beyond Your Diagnosis

Send us Fan Mail [https://www.buzzsprout.com/2520158/fan_mail/new] Can you age well while living with a chronic illness? It's a question many of us don't ask when we're first diagnosed. In the beginning, we're focused on getting through today, understanding our symptoms, navigating treatments, and simply figuring out what life looks like now. But eventually another question begins to emerge: How do I continue living well as I grow older? In this inspiring solo episode of Beyond My Diagnosis, Michele Weston shares what she's learned after more than 25 years of living with multiple sclerosis, nearly two decades after bariatric surgery, and years of working as a health and wellness coach and patient advocate. Drawing from current research, her personal experiences, and practical coaching strategies, Michele explores how healthy aging is absolutely possible—even with a chronic illness. This isn't about pretending chronic illness is easy. It's about learning to adapt, advocate for yourself, and make daily choices that support your health, independence, and quality of life. Because while many of us cannot control our diagnosis, we can influence many aspects of our health through the choices we make every day. In This Episode You'll Learn * How chronic illness changes as we age * Why healthy aging is still possible with autoimmune disease and MS * The difference between lifespan and healthspan * How to preserve your independence * Why movement matters—even if it looks different than it used to * How mindfulness and stress management support long-term health * The importance of disease self-management * Why personalized nutrition becomes increasingly important as we age * How to build a healthcare team that supports your goals * Why resilience, purpose, and adaptability are essential for living well Michele's Biggest Message Aging with a chronic illness is not simply a story of decline. It's also a story of: * Adaptation * Resilience * Growth * Wisdom * Purpose * Joy As Michele reminds listeners: A diagnosis may be part of your story, but it is never your whole story. Living well isn't about turning back the clock. It's about continuing to move forward with intention, caring for the body you have today, and creating a meaningful life—one choice at a time. Practical Strategies Michele Shares This episode is filled with practical, evidence-informed strategies that listeners can begin using immediately, including: ✔ Staying active with realistic movement goals—even 4,500 daily steps can improve health. ✔ Building strength through activities like Pilates, yoga, resistance bands, or swimming. ✔ Working with your healthcare team to personalize nutrition for your specific condition. ✔ Prioritizing quality sleep and stress reduction. ✔ Using mindfulness and meditation to improve resilience. ✔ Following your prescribed treatment plan and staying engaged with your medical team. ✔ Focusing on healthspan—how well you live—not simply how long you live. ✔ Taking an active role in your own disease self-management. Memorable Quotes "Healthy aging is still possible." "A diagnosis may be part of our story, but it is never our whole story." "It's not just about living longer. It's about living well." "Science is finally catching up to what patients have known for years. Living with a chronic illness isn't just about managing symptoms. It's about managing a life." RESOURCES MENTIONED Centers for Disease Control and Prevention – Chronic Disease https://www.cdc.gov/chronicdisease/ [https://www.cdc.gov/chronicdisease/] National Institutes of Health https://www.nih.gov/ [https://www.nih.gov/] National Institute on Aging https://www.nia.nih.gov/ [https://www.nia.nih.gov/] National Council on Aging https://www.ncoa.org/ [https://www.ncoa.org/] Better Choices, Better Health® https://www.selfmanagementresource.com/programs/small-group-programs/better-choices-better-health/ Stanford Chronic Disease Self-Management Program https://patienteducation.stanford.edu/programs/cdsmp.html Benjamin Rose Institute on Aging https://www.benrose.org/ [https://www.benrose.org/] MyFitnessPal https://www.myfitnesspal.com/ [https://www.myfitnesspal.com/]

The Future of Nutrition: Why One Diet Doesn't Work for Everyone and the Rise of Personalized Nutrition

Send us Fan Mail [https://www.buzzsprout.com/2520158/fan_mail/new] Why does the exact same diet work for one person and completely fail for another? If you've ever followed a nutrition plan perfectly and still didn't get the results you expected, this episode may completely change how you think about food, health, and wellness. In this episode of Beyond My Diagnosis, Michele Weston explores one of the most exciting emerging areas in healthcare: personalized nutrition and precision health. Drawing on research from the National Institutes of Health (NIH), Michele discusses why scientists are beginning to move away from one-size-fits-all nutrition advice and toward nutrition recommendations tailored to an individual's genetics, lifestyle, culture, environment, and health history. This episode is especially relevant for people living with: * Multiple sclerosis (MS) * Autoimmune disease * Diabetes * Rheumatoid arthritis * Inflammatory bowel disease (IBD) * Obesity * Heart disease * Other chronic health conditions Because what if your body simply responds differently than someone else's? And what if that difference matters? In This Episode, Michele Discusses: * Why one diet doesn't work for everyone * The emerging field of personalized nutrition * Precision health and individualized healthcare * Why genetics influence nutrition responses * The impact of culture, environment, and health history on food choices * Why two people can eat the same meal and have completely different outcomes * The NIH Nutrition for Precision Health Study * The NIH All of Us Research Program * Personalized nutrition and chronic illness * Future advances in nutrition science * How personalized healthcare may improve outcomes * Why diverse health research matters Why Personalized Nutrition Matters One of the most fascinating concepts Michele explores is that two people can eat the exact same food and experience completely different biological responses. One person may: * Experience stable blood sugar * Feel energized * Digest the meal easily While another person may: * Experience a blood sugar spike * Feel sluggish * Have digestive symptoms Researchers are now studying why these differences occur and how nutrition recommendations may eventually become personalized to the individual. The Nutrition for Precision Health Study Michele highlights the NIH's Nutrition for Precision Health Study, an ambitious research initiative designed to understand why people respond differently to food. Researchers are examining factors including: * Genetics * Lifestyle * Culture * Environment * Medical history * Existing health conditions The goal is to create more personalized nutrition recommendations rather than relying solely on broad population guidelines. The All of Us Research Program The episode also explores the NIH's groundbreaking All of Us Research Program, one of the largest and most diverse health studies ever conducted in the United States. Since launching, more than 880,000 participants have enrolled, helping researchers better understand: * Disease risk * Medication responses * Diabetes outcomes * Cardiovascular health * Cognitive health * Personalized medicine "What if recommendations could better reflect different genetic backgrounds, different health conditions, and different life stages?" Michele's Biggest Takeaway This episode isn't really about diets. It's about possibility. It's about recognizing that our differences matter. And it's about creating a future where nutrition and healthcare become more precise, more inclusive, and more effective for everyone. For those of us living with chronic illness, that's an exciting future to imagine. Resources Mentioned in This Episode NIH Nutrition for Precision Health Study https://commonfund.nih.gov/nutritionforprecisionhealth [https://commonfund.nih.gov/nutritionforprecisionhealth] All of Us Research Program https://www.joinallofus.org/ [https://www.joinallofus.org/] National Institutes of Health (NIH) https://www.nih.gov/ [https://www.nih.gov/] Contact the All of Us Research Program 📞 844-842-2855  📧 help@joinallofus.org 🌱 Michele's Message If you've ever felt like your symptoms were dismissed, or you've spent years experimenting with diets, elimination plans, supplements, and nutrition approaches without clear answers, you're not alone. The future of nutrition may not be about finding the perfect diet. It may be about discovering what works best for your unique body. "Wellness isn't about perfection. It's about learning, adapting, and discovering what helps your unique body flourish and thrive."

Food Is Not the Enemy: Autoimmune Nutrition, Anti-Inflammatory Foods, and Better Health with Chronic Illness

Send us Fan Mail [https://www.buzzsprout.com/2520158/fan_mail/new] Can food improve your quality of life when you're living with a chronic illness? If you've ever felt overwhelmed by conflicting nutrition advice, you're not alone. One expert tells you to cut carbs. Another says avoid fat. Someone recommends the Mediterranean diet. Someone else says eliminate entire food groups. For people already managing autoimmune disease, chronic illness, medications, appointments, fatigue, and daily symptoms, trying to figure out the "perfect diet" can feel exhausting. In this solo episode of Beyond My Diagnosis, Michele Weston shares an evidence-informed and empowering perspective on nutrition, chronic illness, autoimmune disease, and sustainable wellness. Drawing on her experience as a health and wellness coach, patient advocate, and someone who has lived with multiple sclerosis and maintained a 130-pound weight loss following bariatric surgery, Michele explores a simple but powerful truth: Food is not the enemy. Food is one of the most powerful health tools available to us. And while food may not cure autoimmune disease, it can influence many aspects of our health and quality of life. In This Episode, Michele Discusses: * Why food should be viewed as nourishment instead of restriction * The difference between dieting and sustainable wellness * Anti-inflammatory nutrition principles * Nutrition and autoimmune disease * How food affects energy, digestion, sleep, and overall health * Why protein becomes increasingly important as we age * The truth about carbohydrates and why they're not the enemy * Why fiber may be one of the most overlooked nutrition tools * The connection between gut health and immune health * Healthy fats and brain health * Practical nutrition strategies for chronic illness * Small lifestyle changes that create long-term results Food Is a Tool, Not a Cure One of Michele's most important messages is that food should never be viewed as a miracle cure. Instead, food is a powerful tool that supports: * Energy levels * Blood sugar balance * Digestive health * Weight management * Cardiovascular health * Immune function * Healthy aging "Food isn't a cure. It's a tool." And for many people living with chronic illness, nutrition is one of the few areas where we can actively make choices that support our well-being. Michele's Key Nutrition Priorities Prioritize Protein Michele explains that many people unintentionally under-eat protein. Protein helps support: * Muscle maintenance * Recovery * Immune health * Strength * Healthy aging Especially when fatigue is already part of daily life, maintaining strength becomes increasingly important. Stop Blaming Carbohydrates Carbohydrates are the body's preferred source of energy. Instead of fearing carbs, Michele encourages listeners to focus on nutrient-dense options such as: * Oats * Beans * Lentils * Sweet potatoes * Whole grains * Fruit These foods provide fiber, vitamins, minerals, and sustainable energy. Increase Fiber If Michele could recommend one nutrition habit, it would be increasing fiber intake. Fiber supports: * Gut health * Blood sugar balance * Cholesterol management * Digestive health * Immune health "Your gut is your second brain." Don't Fear Healthy Fats Healthy fats support: * Brain health * Nervous system function * Cell health * Cardiovascular health Examples include: * Salmon * Sardines * Walnuts * Chia seeds * Olive oil * Avocados Michele's Most Important Message This episode delivers a simple but empowering reminder: While many of us cannot control our diagnosis, we can influence many aspects of our health through the choices we make every day. "Nutrition is not about being perfect. It's about nourishing the body you have today." Living well with chronic illness isn't built on one perfect meal. It's built on thousands of small choices that support your well-being over time. 🔗 RESOURCES MENTIONED Centers for Disease Control and Prevention (CDC) https://www.cdc.gov [https://www.cdc.gov] National Institutes of Health (NIH) https://www.nih.gov [https://www.nih.gov] MyPlate Nutrition Resources https://www.myplate.gov [https://www.myplate.gov]

What happens when autoimmune disease meets real life?

Send us Fan Mail [https://www.buzzsprout.com/2520158/fan_mail/new] A diagnosis is one thing. Living with it every day is something entirely different. In this deeply personal solo episode of Beyond My Diagnosis, Michele Weston shares what she's learned after more than 25 years of living with multiple sclerosis and decades of working as a patient advocate and healthcare navigator. From navigating healthcare barriers and managing symptoms to finding purpose, meaningful work, and personal fulfillment, Michele explores what happens after the diagnosis—when chronic illness becomes part of everyday life. This conversation is for anyone living with: * Multiple sclerosis (MS) * Lupus * Rheumatoid arthritis (RA) * Psoriatic arthritis * Graves' disease * Fibromyalgia * Other autoimmune or chronic health conditions 💡 In This Episode, Michele Discusses: * How to navigate healthcare systems and advocate for yourself * Common barriers to care for people with chronic illness * Why patient advocacy matters * How autoimmune disease impacts work and career choices * Finding purpose after a life-changing diagnosis * Managing fatigue, brain fog, and fluctuating energy * Redefining success after chronic illness * Building resilience and emotional well-being * Why asking for help is not failure * How to pace yourself and protect your energy * Rebuilding confidence and self-sufficiency * Turning lived experience into advocacy and support for others 🧠 One of the Biggest Questions Michele Explores How do you rebuild your identity after diagnosis? Michele shares that many people living with chronic illness struggle with redefining who they are when life no longer looks the way they expected. She discusses: * Redefining achievement * Adjusting expectations * Finding meaningful goals * Pursuing purpose while honoring your body's limits * Creating a life that works with your condition instead of against it "You need to encourage yourself to think about how can I be independent." ⚡ Managing Energy and Avoiding Burnout One of the most practical sections of the episode focuses on recognizing when you're pushing too hard. Michele discusses warning signs such as: * Persistent fatigue * Worsening autoimmune symptoms * Disrupted sleep * Increased anxiety * Depression * Frequent flare-ups She encourages listeners to build routines, use tools like calendars and reminders, pace themselves, and learn how to say "no" when necessary. "No is not a dirty word." ❤️ Purpose Matters Research continues to show that people living with chronic illness often experience greater psychological well-being when they find meaning and purpose despite adversity. For Michele, purpose came through: * Patient advocacy * Coaching * Education * Mentoring * Sharing stories through Beyond My Diagnosis And she encourages listeners to explore their own path toward fulfillment, whether through work, volunteering, creativity, family, or community involvement. 🔗 RESOURCES MENTIONED IN THIS EPISODE Immune Confident Institute Founded by Kara Wada Immune Confident Institute International Multiple Sclerosis Management Practice (IMSMP) IMSMP Program [https://www.imsmp.org/?utm_source=chatgpt.com] Positive Psychology Resources Martin Seligman Positive Psychology Center at University of Pennsylvania [https://ppc.sas.upenn.edu/?utm_source=chatgpt.com] Mindfulness-Based Stress Reduction (MBSR) Developed by Jon Kabat-Zinn Center for Mindfulness and MBSR Resources [https://www.umassmed.edu/cfm/?utm_source=chatgpt.com] Narrative Medicine Created by Rita Charon Columbia Narrative Medicine Program [https://www.narrativemedicine.org/?utm_source=chatgpt.com]