Dear body, I'm listening
Category: Health & Wellness — Chronic Illness / Invisible Illness Support "Sometimes, healing begins when your symptoms finally have a story that makes sense, not a perfect story, and not the only story, but a story that helps you stop blaming yourself." —Donna Piper There's a specific kind of grief that hits when your body has been trying to talk to you for years, and nobody ever handed you the translator. That's where this episode starts, before Donna introduces the book that finally gave her one. This week is a book talk on The Concise Perrin Technique: A Handbook for Patients by Dr. Raymond Perrin, the patient-friendly companion to his larger clinical text. Donna shares why it was the first thing that made her ME/CFS feel less like a mystery and more like a map. In this episode: The body-based theory behind the Perrin Technique, and how a disrupted nervous system and lymphatic drainage create fatigue, brain fog, and crashes that feel random but aren't. Why ME/CFS isn't "just tired," and what post-exertional malaise (PEM) really feels like, including the delayed crash that hits a day or two later. The phrase that changed Donna's relationship with her limits: do half of what you think you can do. What changed at home once her husband read the book, too. A simple daily pacing check-in you can try with no equipment. Who it's for: anyone living with ME/CFS, fibromyalgia, long COVID, POTS, MCAS, hypermobility (including hEDS), lipedema, or any chronic illness involving pacing or nervous system dysregulation, plus the partners and family trying to understand it. Book mentioned: The Concise Perrin Technique: A Handbook for Patients by Dr. Raymond Perrin: https://amzn.to/4h7Vmwa [https://amzn.to/4h7Vmwa] Connect with Donna: Website: https://www.donnapiper.com/ [https://www.donnapiper.com/] LinkedIn: https://www.linkedin.com/in/donnapiper [https://www.linkedin.com/in/donnapiper] Instagram: https://www.instagram.com/lipedema_donna [https://www.instagram.com/lipedema_donna] Facebook: https://www.facebook.com/thedonnapiper [https://www.facebook.com/thedonnapiper] YouTube: https://www.youtube.com/@thedonnapiper [https://www.youtube.com/@thedonnapiper] Episode Highlights: 01:29 The Perrin Technique: A Clearer, More Practical Path 05:01 Real Talk: A Specific Kind of Grief 08:24 Connective Thread: A Patient Handbook 09:58 Takeaway 1-ME/CFS: A Body-Based Explanation 11:57 Takeaway 2-ME/CFS: Not Just About Energy, It's Recovery 13:37 Takeaway 3- The Perrin Technique: Patient Involvement 18:56 Takeaway 4- ME/CFS: Doing Half 20:44 Takeaway 5-Emotionally Validating 24:00 Myth Busters 27:08 Feel Good Flow 32:47 Shared Education & Lived Experience Resources: 🤔Got a question for me? Every month, I do a listener coaching episode—and I'd love to hear from you! Send your questions, stories, or flare-up confessions to donna@donnapiper.com, and you just might hear your answer on the show. 💲Discount Get $20 off the Visible Wrist Band 2.0 Click the link: https://join.makevisible.com/73784699c7db3e [https://join.makevisible.com/73784699c7db3e] **Wearable heart-rate and activity sensor, with charging cable and strap included. 5 days battery life Manufactured by Polar, the world leader in heart-rate monitoring Designed for illness, not fitness HSA/FSA Eligible 💗Springrose Give $20, GET $20 When you share Springrose with friends, they get $20 off their first purchase and you get $20 towards your next purchase!* Share the love. https://oken.do/0l3hpr6v [https://oken.do/0l3hpr6v] 💗Equip Fuel With Real Food Meet Prime Protein, the original beef protein powder, with over 20g of delicious grass-fed beef protein. No junk or fillers https://www.equipfoods.com/DONNA15 [https://www.equipfoods.com/DONNA15] 📖 Book The Concise Perrin Technique: A Handbook for Patients by Dr. Raymond Perrin https://amzn.to/4h7Vmwa [https://amzn.to/4h7Vmwa] The Concise Perrin Technique is described by Hammersmith Books as a practical patient handbook explaining the "why and how" of using the Perrin Technique to support ME/CFS recovery and healthy lymphatic drainage from the brain; the publisher also lists contents including how the technique works, CFS/ME and fibromyalgia, treatment, FAQs, tests, and the Perrin questionnaire. The official Perrin Technique site describes the approach as an osteopathic method developed in 1989 that aims to support drainage from cerebrospinal fluid into the lymphatic system through spinal movement and soft tissue work around the head, neck, back, and chest. The Perrin Technique self-help guide states that at-home routines are intended for patients currently working with a licensed Perrin Technique practitioner and include flexibility, breathing, self-massage, contrast bathing, active head rest, strengthening exercises, and cross crawl. The CDC describes ME/CFS as a complex, chronic, debilitating disease involving reduced ability to function, post-exertional malaise, unrefreshing sleep, and either cognitive impairment and/or orthostatic intolerance. The CDC also defines PEM as worsening symptoms after previously tolerated physical or mental exertion; symptoms often worsen 12 to 48 hours later and can last days or weeks, and pacing is used to help prevent flare-ups and relapses. 🎙️Podcast The Perrin Technique Part 1: https://bitl.to/5uZn [https://bitl.to/5uZn] The Perrin Technique Part 2: https://bitl.to/5uZo [https://bitl.to/5uZo]
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