Only 180 People Have This Condition | Pure Autonomic Failure & Raising Awareness

From Caring to Creating Change | National Disability Card Scheme Director’s Interview

Director Edward Herbert shares the personal story that inspired the creation of the scheme. From supporting his sister Millie, who has cystic fibrosis, to building a national initiative helping hundreds of thousands of people, Edward talks about the everyday challenges carers and disabled people face, and how something as simple as a card can make a real difference. We discuss... - How the experience of hidden disability and caregiving led to the creation of the scheme - The stressful situations where a simple card can make all the difference - Why we worked with a banknote designer - Exciting developments we're working on to make everyday life even easier for card holders ❤️ Apply for the National Carers Card: nationalcarerscard.org.uk [http://nationalcarerscard.org.uk] 💙 Apply for the National Disability Card: disabilityid.co.uk [http://disabilityid.co.uk]

Only 180 People Have This Condition | Pure Autonomic Failure & Raising Awareness

Today we’re interviewing Eddie and Suzie, who are raising awareness of PAF (Pure Autonomic Failure), a rare condition that only around 180 people in the UK live with. In this episode we discuss… - What it’s like to live with a rare condition - Setting up their own support group and the importance of a supportive network - Going from caregiving to being cared for - Travel insurance when you have a rare condition - How the National Disability Card helps on days out and at theatres - How the National Carers Card helps carers get recognition and assistance 💜 Join Suzie & Ed's PAF Support Group: https://www.facebook.com/groups/869025589357423 [https://www.facebook.com/groups/869025589357423] 💙 Apply for the National Disability Card: disabilityid.co.uk [http://disabilityid.co.uk] ❤️ Apply for the National Carers Card: nationalcarerscard.org.uk [http://nationalcarerscard.org.uk]

What it’s Really Like as a Young Carer | Boundaries, Burnout & Missing Out

Cici became a carer for her dad in her teens, and is now working to support other young carers. In this episode, we discuss... - Cici’s journey to becoming a young carer after her dad’s rare dementia diagnosis - The hidden challenges of identity, guilt, and growing up while caring at home - Why recognising yourself as a carer can change everything - including access to support - The lasting impact of caregiving on boundaries, relationships, and mental health - How to support other young carers. Learn more about Cici’s work: www.seeingdementiadifferently.com [http://www.seeingdementiadifferently.com] Apply for the National Disability Card: disabilityid.co.uk [http://disabilityid.co.uk] Apply for the National Carers Card: nationalcarerscard.org.uk [http://nationalcarerscard.org.uk]

Stomababe Interview | What People Don’t Understand About Hidden Disabilities

Holly Fleet, who you might know as @stomababe, is an online creator who has built a following around sharing her experiences of living with ulcerative colitis. In this episode we discuss… - Why a stoma bag isn’t the worst case scenario - What most people don’t understand about hidden disability - Finding community when you have disabilities - How to let your employer know you're disabled - How Holly uses her National Disability Card 💙 Apply for the National Disability Card: disabilityid.co.uk [http://disabilityid.co.uk] ❤️ Apply for the National Carers Card: nationalcarerscard.org.uk [http://nationalcarerscard.org.uk] 💖 Follow Holly on YouTube, Instagram & Tiktok: @stomababe

Caregiver’s biggest successes | 17 years’ experience in less than 30 mins

Jason Busby was a private carer for 17 years before joining the National Disability and Carers Card Scheme. In this episode Jason discusses… - The one thing Jason wishes he had known about at the start of his caregiving journey - Calling the fire brigade to help a client and his mobility scooter out of a ditch! - The little-known rewards of being a carer - Boundaries and saying ‘no’ as a caregiver - Self-care and getting support as a carer 💙 Apply for the National Disability Card: disabilityid.co.uk [http://disabilityid.co.uk] ❤️ Apply for the National Carers Card: nationalcarerscard.org.uk [http://nationalcarerscard.org.uk]