Podcast Launch: Embracing Inclusion and Overcoming Challenges with Charlotte and Her Family
In Part 2 of this meaningful conversation on So Let’s Be Friends, Charlotte continues her discussion with Kasey Walsh, diving deeper into the long-term realities of caregiving and the importance of caregiver voices in the world of rare disease. Kasey shares how lived experience — the knowledge gained through daily care, observation, and love — is often missing from structured medical data and research, and how that gap impacts trust, understanding, and progress for families. She also talks about her mission in founding a venture philanthropy startup focused on advancing therapeutics for rare diseases, helping bring caregiver-informed insight into the future of research and innovation. This episode highlights the power of listening to families, valuing their experiences, and building a future where every voice matters. ⸻ 💛 Charlotte’s Quote “Listening to caregivers can change the future for families who are still searching for answers.” 💛 ⸻ ✨ What You’ll Learn in This Episode 💡 Why caregiver insights matter in research and healthcare 🧩 The gap between lived experience and medical data 🌍 How advocacy can shape the future of rare disease support 🚀 A vision for advancing therapeutics through caregiver-informed work 🫶 Hope and encouragement for families navigating long-term care ⸻ 🌐 Now streaming on Spotify, Apple Podcasts, Amazon Music, Audible, and YouTube For more about inclusion and our mission, visit www.merrillbudz.org 🎵 (Music written and performed by Kalicia Merrill)
29 episodes
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