The Healing Journey; a safe space to engage in vulnerable discussions.
Guest Testimonial by Adam Bouse https://www.optimism.coach adam@optimism.coach CJD Resources https://secure.qgiv.com/for/advocd/event/advoc/ https://www.facebook.com/share/g/17oerMMgfT/ https://www.broadinstitute.org/bios/sonia-vallabh In this heartfelt episode of 'The Healing Journey,' the host discusses the rare and devastating condition known as Creutzfeldt-Jakob Disease (CJD). The episode features a deeply personal interview with Adam Bouse, who shares the harrowing experience of his wife's rapid decline and passing from CJD. As Adam recounts the swift and devastating impact of the disease, he emphasizes the importance of community support, emotional resilience, and advocacy. This episode not only provides an educational overview of CJD but also delves into the emotional and practical challenges faced by families navigating such profound loss. Listeners are encouraged to pause, reflect, and honor the stories of those affected by this disease, while also finding hope in ongoing scientific efforts to find a cure. 00:00 Introduction and Personal Connection 02:20 Understanding Creutzfeldt-Jakob Disease (CJD) 04:33 Personal Experience with CJD 06:04 The Impact of CJD on Families 10:39 Interview with Adam Baus: A Personal Story 38:09 Understanding Stacey's Unique Dementia Symptoms 39:09 Navigating Hospice Care 40:59 Making End-of-Life Decisions 41:46 Support Systems and Community Help 43:27 The Role of Hospice and Family Support 51:26 Emotional Intelligence and Coping 57:15 Grief and Community Support 01:04:17 Fundraising and Hope for a Cure 01:13:17 Honoring Stacey and Final Reflections Musical Intro (Comfort) and Outro (Red Punch, Green Punch) by Carbon Leaf [https://www.carbonleaf.com/] Voice Intro and Outro by Marcel Brown [https://marcelbrown.com/], my IT guy with a sexy voice. Executive Producer: Jake Sebok [https://jacobsebok.com/] Producer: Sarah Bland [https://enterpeace.co/]
11 episodes
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