The Zebra Chronicles
Sociologist Maria Kefalas discusses the experience of rare disease as a parent, spouse and advocate during the pandemic.
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4 episodes
Mercies in Disguise: Amanda's Story
Amanda Kalinsky shares her journey of discovering the cause of a family history of early and traumatic deaths and her decision to confront it head on.
Fighting To Be Seen: Maria's Story
Don't Call Me Old: Laura's Story
In this episode, high school senior Laura Masciola shares her experiences living with Juvenile Idiopathic Arthritis.
Martian Feet: Julia's Story
In this episode, University of Vermont freshman Julia Cohen shares her experience living with an Ehlers Danlos Syndrome diagnosis.
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