S2EP6: The Impact of Race on Sickle Cell Disease

S2EP6: The Impact of Race on Sickle Cell Disease

In this episode of #ThroughTheGenes, hosts  Wunmi Bakare, Christelle Salomon, and Dima Hendricks, engage in a profound conversation with Dr. Sharl Azar, Medical Director at Massachusetts General Hospital, about the racial disparities in sickle cell disease treatment and advocacy. The discussion delves into the historical context of race in medicine, the challenges faced by sickle cell warriors, and the systemic barriers in healthcare. Dr. Azar shares insights on the importance of advocacy, the role of healthcare providers, and the future of gene therapy for sickle cell disease. We hope you enjoy this conversation, leave a comment below to share your thoughts and ask your questions about gene and cell based therapies and treatment for sickle cell disease. #sicklecelldisease #racialdisparities #healthcareadvocacy #genetherapy, #systemicbias #sicklecellawarenessmonth

S2EP5: The Role of Donors In Transplants

In this episode of the Through the Genes podcast, hosts Wunmi Bakare and Christelle Solomon explore the complexities of sickle cell disease and the transformative role of stem cell donation. They engage with Dr. Akshay Sharma, a pediatric bone marrow transplant physician, who provides insights into the donor's perspective, the HLA screening process, and the various methods of stem cell collection. The conversation also touches on the emotional and physical challenges faced by donors, the importance of blood group compatibility, and the need for diverse donor registries. Personal reflections from Dapo Bakare, Wunmi's brother and donor, highlight the family bonds and support systems that play a crucial role in the transplant journey. The episode concludes with a call to action for listeners to consider joining donor registries and participating in clinical research to help advance treatments for sickle cell disease. #ThroughTheGenes #TTGS2 #TTGPodcast #GeneTherapy #TTGxBeam #TTGxSynthego #TTGxUCSF #TTGxSCP #SickleCellDisease #TransformativeTherapiesForSickleCell #SickleCellAwareness #SickleCellEducation

S2EP4: Support Systems in the Transformative Process With Maite Rodriguez

In this episode of the #ThroughTheGenes [https://www.youtube.com/hashtag/throughthegenes] podcast, hosts Wunmi Bakare and Christelle Salomon engage in a heartfelt conversation with Maite Rodriguez about her daughter Alessia's journey with sickle cell disease and the transformative therapies they pursued. The discussion covers the emotional and practical challenges of caregiving, the decision to have another child as a potential donor, and the complexities of preparing for a bone marrow transplant. Maite shares her family's experiences, the support they received, and their hopes for Alessia's future post-transplant, emphasizing the importance of community and open communication throughout their journey. Don't forget to subscribe and share with someone that needs to hear it.

What Happens To The Body In Gene Therapy? Part 2

To conclude our discussion on the topic "What Happens To The Body In Gene Therapy", our hosts - Wunmi Bakare and Christelle Salomon - sat down with Dr. Elizabeth Krieger, who is a pediatric hematologist-oncologist specializing in bone marrow transplant and cellular therapies. Discover why chemotherapy is carried out for these therapies, the side effects of chemotherapy, and why some protocols require radiation and others do not. #ThroughTheGenes [https://www.youtube.com/hashtag/throughthegenes] #TTGS2 [https://www.youtube.com/hashtag/ttgs2] #TTGPodcast [https://www.youtube.com/hashtag/ttgpodcast] #GeneTherapy [https://www.youtube.com/hashtag/genetherapy] #TTGxBeam [https://www.youtube.com/hashtag/ttgxbeam] #TTGxSynthego [https://www.youtube.com/hashtag/ttgxsynthego] #TTGxUCSF [https://www.youtube.com/hashtag/ttgxucsf] #TTGxSCP [https://www.youtube.com/hashtag/ttgxscp] #SickleCellDisease [https://www.youtube.com/hashtag/sicklecelldisease] #TransformativeTherapiesForSickleCell [https://www.youtube.com/hashtag/transformativetherapiesforsicklecell] #SickleCellAwareness [https://www.youtube.com/hashtag/sicklecellawareness] #SickleCellEducation [https://www.youtube.com/hashtag/sicklecelleducation]

What Happens To The Body In Gene Therapy? Part 1

In this episode of #ThroughTheGenes [https://www.youtube.com/hashtag/throughthegenes], we delve into the transformative role of fetal hemoglobin in treating sickle cell disease. Join hosts - Wunmi Bakare and Christelle Salomon - as they explore groundbreaking gene therapy advancements with Dr. Matt Porteous, Co-founder of Kamau Therapeutics. Discover how genome editing techniques are being used to reactivate fetal hemoglobin, offering new hope for patients by reducing the severity of sickle cell symptoms. We explore the FDA-approved therapies, Lyfgenia and Casgevy, and discuss the transformative potential these treatments hold. Discover the science behind these therapies, the journey from concept to approval, and the impact on patients' lives. Tune in to learn how gene therapy is reshaping the future for those living with sickle cell disease. #throughthegenes [https://www.youtube.com/hashtag/throughthegenes] #sicklecell [https://www.youtube.com/hashtag/sicklecell] #genetherapy [https://www.youtube.com/hashtag/genetherapy] #patientadvocacy [https://www.youtube.com/hashtag/patientadvocacy] #sicklecellwarriors [https://www.youtube.com/hashtag/sicklecellwarriors] #patientexperience [https://www.youtube.com/hashtag/patientexperience] #healthpodcast [https://www.youtube.com/hashtag/healthpodcast] #transformativetherapy [https://www.youtube.com/hashtag/transformativetherapy] #healthcare [https://www.youtube.com/hashtag/healthcare] #experimentaltherapies [https://www.youtube.com/hashtag/experimentaltherapies] #geneticdisorder [https://www.youtube.com/hashtag/geneticdisorder]