Behind the Capes Podcast

Who Regulates the Regulator? Solo Episode with Kari

When you’re a medical parent, you become everyone’s steady hand—the calm voice in chaos, the problem-solver in emergencies, the one who holds it together when everything feels like it’s unraveling. In medical motherhood, there’s an even more heightened need for co-regulation with our children. Our kids often depend on us to help their nervous systems settle in ways that are constant, intense, and non-stop. But what happens when the person doing all the regulating is running on empty? In this solo episode, Kari talks openly about the invisible emotional labor of medical motherhood—the ongoing co-regulation with our children, the nervous system overload that comes with care giving, and the truth that we don’t always have the energy to regulate ourselves in the moment. Sometimes, we need help from others to come back down too. She explores what it looks like to notice your own stress while you’re actively trying to calm your child, why our bodies can stay stuck in survival mode long after the crisis passes, and why leaning on support systems isn’t a weakness—it’s a necessity. This isn’t about perfect coping strategies or adding one more thing to your list. It’s about awareness, compassion, and giving yourself permission to be human in a role that demands so much regulation from you. Because even the regulator needs regulation—and sometimes, that regulation has to come from outside of us.

From Heart to Action: Special Needs Parenting and AI-Powered Advocacy

In this episode, we sit down with Adrienne, a special needs mom from Virginia, to hear her family's journey, the lessons she's learned along the way, and her experiences advocating for her child. Adrienne shares the realities of raising a child with disabilities, navigating medical, educational, and support systems, and the importance of finding your voice as a parent. We also talk about the importance of finding your tribe. Special needs parenting can sometimes feel isolating, and the support you're looking for may not always be found in your local community. Adrienne shares how families often have to get creative in building connections, finding support through online groups, social media communities, and relationships with other parents who truly understand the journey. These connections can provide encouragement, practical advice, and a sense of belonging when you need it most. We also explore a newer tool that many families are beginning to use: artificial intelligence. Adrienne shares her perspective on how AI can help parents organize their thoughts, prepare for meetings, draft emails, research resources, and feel more confident when advocating for their children. While technology can never replace a parent's expertise and intuition, it can be a valuable tool for helping families communicate effectively and stay organized. Join us for an honest and encouraging conversation about special needs parenting, advocacy, finding community, and using every available resource to support our children. Whether you're just beginning your journey or have been advocating for years, Adrienne's story offers practical insights, hope, and inspiration for families navigating the world of special needs parenting. 🎙️💙✨

Life Lately with Medical Mom: Check in Time!

Life lately has been full of the beautiful, exhausting, emotional, and unpredictable moments that come with raising medically complex children. In this episode, we’re sitting down for an honest check-in about where our families are right now — the challenges we’ve been facing, the wins we’re celebrating, and the realities of medical motherhood behind the scenes. From appointments, therapies, and the emotional weight we carry as moms, this conversation is a real and vulnerable look at the season we’re currently navigating. We’re also reflecting on how far this journey has come as we look forward to celebrating the 1-year anniversary of the podcast — something we never could have imagined when we first started. Whether you’re in survival mode, finding moments of joy, or simply trying to make it through the week, we hope this episode reminds you that you’re not alone.

Inside the World of Service Dog Training:Interview with Shawna, Certified Service Dog Coach

What really goes into training a service dog—and how do these incredible dogs change life for medical families? In this episode, two medical moms sit down with certified service dog coach Shawna for an honest conversation about the world of service dog training. We talk about what service dogs actually do, the intense training behind them, common misconceptions, and the emotional realities families face when deciding if a service dog is the right fit. From medical alerts and public access training to the deep bond between handler and dog, this episode offers both professional insight and real-life perspective from families living the journey every day. Whether you are beginning to explore service dogs, currently in the process, or simply want to better understand the role these dogs play in the disability and medical community, this conversation is filled with education, honesty, and hope. Topics we cover: * What qualifies a dog to become a service dog * The training process and timeline * Misconceptions about service animals * Public access challenges * How service dogs support children and medical families * The emotional impact of having a service dog * What families should know before starting the journey This episode is for every family searching for support, understanding, and a little hope on hard days.

NICU Mom Life: What No One Tells You

No one prepares you for motherhood to begin under fluorescent lights, surrounded by monitors, medical terms, and constant uncertainty. In this episode, we’re talking about the real side of NICU life as a medical mom—the fear, guilt, exhaustion, isolation, and strength that so many parents carry silently. We discuss what it feels like to bond with your baby through incubator walls, the trauma of living from update to update, and the invisible emotional weight families take home long after discharge. We also talk about the unexpected things the NICU teaches you: resilience, advocacy, community, and a love that grows fiercely in the hardest places. Whether you’re currently in the NICU, years removed from it, or supporting someone who has walked this road, this episode is a reminder that you are not alone—and that behind every NICU stay is a parent learning how to survive while loving their child through the unimaginable.