DoubleVision Podcast (by DoubleVision Blog)

When Kindness Gets Complicated: A Conversation with Rebekah Taussig on Motherhood, Messiness & Magic

Expanding on a conversation Joy and Jenelle began in an earlier episode, “How to Handle Over-Helpers”, [https://podcasts.apple.com/us/podcast/doublevision-podcast-by-doublevision-blog/id1843010484?i=1000753385848] they are joined by one of their favorite authors, Rebekah Taussig, for her first appearance on the podcast. Together, they dig into surprisingly similar stories, from growing up with internalized shame around disability to the awkwardness of being prayed for in public to delicately navigating well-meaning people and organizations. Along the way, they unpack the layers inside stories that are sometimes uncomfortable, sometimes funny, and always deeply human. Rebekah Taussig is a writer, speaker, and author of the bestselling memoir Sitting Pretty and We Are the Scrappy Ones. Connect with Rebekah Taussig: * Instagram [https://www.instagram.com/sitting_pretty/] * Substack [https://rebekahtaussig.substack.com/] * Website [https://www.rebekahtaussig.com/]

Beyond the Cure Question: Treatment, Identity, and the Future of Vision Care

> Join us as Dr. Kierstyn Napier-Dovorany, an optometrist specializing in low vision rehabilitation, shares her journey into eye care, her work supporting individuals with vision impairment, and her insights into emerging treatments and clinical trials. > > With over 20 years of experience, Kierstyn brings a unique perspective as both a practitioner and a clinical researcher. She helps us explore the intersection of lived experience, mobility, and the evolving science of vision care, while also offering practical guidance for navigating resources and opportunities in the field. > > In this conversation, we dive into topics such as: > > * Why many people are not hearing about clinical trials from their eye doctors > * How to find and evaluate clinical trials > * The role of low vision rehabilitation in supporting independence and quality of life > * The balance between identity, self-acceptance, and advancements in treatment > * How Dr. Kierstyn approaches conversations with individuals who feel strongly connected to their blind identity and may not wish to pursue treatment > * What’s on the horizon in research for genetic retinal conditions > > This episode weaves together science, accessibility, and real-world insight in a way that is both informative and deeply human. > > Resources Mentioned: > > * ClinicalTrials.gov [http://ClinicalTrials.gov]: https://clinicaltrials.gov [https://clinicaltrials.gov] > * Foundation Fighting Blindness: https://www.fightingblindness.org [https://www.fightingblindness.org] > * Ray Therapeutics: https://raytherapeutics.com [https://raytherapeutics.com] > > Guest: > Dr. Kierstyn Napier-Dovorany is an optometrist who has practiced low vision rehabilitation for twenty years. She is a vision scientist specializing in vision impairment and mobility and currently works as a clinical researcher at Ray Therapeutics, a company developing treatments for genetic retinal diseases.

The Cure Question: Is It Okay To Want One... Or To Not Want One?

What would you do if someone offered you a cure tomorrow? For Joy and Jenelle, that question is anything but simple. In this episode, they explore the deeply personal tension between accepting who you are and wanting something more, unpacking cure culture, disability identity, and the vulnerability that comes with allowing yourself to hope. Plus, a sneak peek at their upcoming conversation with Dr. Kirstyn Dovorany.

How to Handle Overhelpers

We've all been there — someone swoops in to help before you've even asked, grabs something out of your hands, or insists on doing something for you when you were handling it just fine. It's well-meaning. It can also be exhausting. In this episode, Jenelle and Joy get into the messy, nuanced world of helping — when it's welcome, when it crosses a line, and how to handle it when it does. Drawing from their own lived experiences as people with disabilities, they unpack why our culture tends to put helpers on a pedestal, and what gets lost when the focus shifts from the person being helped to the person doing the helping. In this episode: * Why everyone needs help sometimes — and why that's not a disability thing, it's a human thing * How apps like Be My Eyes flip the script on what "helping" can look like when it's actually mutual * The difference between helping someone and taking over for them (and why that distinction matters) * Unsolicited touching, moved belongings, and other "helpful" behaviors that can feel anything but * Where the fear of being a burden comes from — and why it's worth examining * The gap between good intentions and real impact, and how to have the repair conversation when harm happens * Practical ways to set boundaries without feeling like you have to justify yourself * What it actually means to see someone as a whole person — not just their disability If you've ever struggled to speak up when help crosses a line, or wondered how to offer support without overstepping, this one's for you. Resources: "How to Handle Overhelpers" on DoubleVisionBlog [https://doublevisionblog.com/2016/02/18/how-to-handle-over-helpers/]

Chicken Thunder: Advocacy and Storytelling with the ASPECT Program

Blind and unemployed is still the statistical norm in America. So what actually changes that? In this episode, we talk about the advocacy skills most blind and low-vision people are never formally taught, and why storytelling often moves policy faster than data ever could. We unpack the persistent employment gap, the power of learning how to speak your lived experience in professional spaces, and how programs like ASPECT are equipping blind advocates to influence real change. Joined by Janetta Price and Julie Grutzmacher from Prevent Blindness, the conversation explores the history behind the name, the tension between statistics and human stories, and what it takes to shift public perception. If you care about employment, equity, or learning how to advocate more effectively for yourself or others, this episode gets practical and personal. We close with a powerful spoken word piece from Janetta Price that reminds us why voice matters. For more info on the ASPECT program visit the Prevent Blindness website [https://preventblindness.org/aspect-patient-engagement-program/] and their YouTube Channel. [https://www.youtube.com/channel/UC1IdlM_CmWTfJkkVPM8IMqQ?themeRefresh=1]