Cover image of show Living with & Beyond Cancer

Living with & Beyond Cancer

Podcast by Steve Pointon

English

Health & personal development

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About Living with & Beyond Cancer

Most cancer survivors learn to live with the shadow of the disease. But what happens when fear, systems failure, and personal trauma collide? In this deeply authentic episode, twice-diagnosed kidney cancer patient and counselor Steve Pointon shares his extraordinary journey from shock to resilience—and how he’s now turning his pain into purpose.You’ll discover the raw truth about the mental and practical battles cancer patients face—covering everything from life-saving treatments like immunotherapy (IL-2), to navigating the crushing bureaucracy of benefits and employment systems, and the loneliness of waiting on scans. Steve dives into the often-overlooked emotional toll, the importance of peer support, and the power of storytelling in healing and advocacy.We break down:The moment doctors dropped a terminal diagnosis on Steve, and how he fought to find hopeThe hidden struggles of returning to work after cancer and fighting for workplace justiceWhy systemic failures in healthcare, benefits, and employment make survival even harderHow community support, charities, and real stories can be lifelines during the darkest timesThe inspiring ways Steve is giving back—becoming a counselor, patient advocate, and international speakerThis episode is perfect for anyone fighting their own cancer battle, supporting loved ones, or advocates pushing for systemic change. If you’re ready to hear the unfiltered truth about what it really takes to survive—and rewrite the narrative of beyond cancer—hit play now.Steve Pointon is a cancer survivor, counselor, and advocate for patient rights. His story of resilience, advocacy, and transformation highlights the importance of community, systemic reform, and hope.Don’t miss this raw, empowering conversation—because survival is more than remission; it’s a journey we all share.

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9 episodes

episode Episode 9 - From moving in together to heart brake: How Love and Loss Unfolded in Just 5 months artwork

Episode 9 - From moving in together to heart brake: How Love and Loss Unfolded in Just 5 months

The podcast episode features Tracy's journey as a carer for her partner, Graham, who faced challenges with remote diagnosis, delayed diagnosis, and a lack of support and care in the healthcare system. The story unfolds with the transition to a new living accommodation, Graham's health decline, a hospital ordeal, a terminal diagnosis, financial and work challenges, and the lack of compassion and care in some aspects of the healthcare system. The conversation delves into the journey of resilience and emotional support in the face of adversity. Tracy's experiences highlight the importance of closeness, emotional support, and the challenges faced in the healthcare system. The story also emphasizes the significance of anticipatory grief and the coping strategies adopted during difficult times. Takeaways * Remote diagnosis challenges * Impact of delayed diagnosis * Lack of support and care in healthcare system Resilience in the face of adversity * The importance of support and closeness in difficult times Chapters * 00:00 Introduction and Podcast Overview * 06:25 Challenges with Remote Diagnosis and Care * 13:57 Hospital Ordeal and Lack of Support * 21:11 Terminal Diagnosis and Emotional Impact * 27:28 Financial and Work Challenges * 33:53 Lack of Compassion and Care in Healthcare System * 39:12 Coping and Emotional Support * 44:46 Challenges and Christmas * 50:25 Marriage and Emotional Moments * 58:44 Challenges with Hospice Staff

24 May 2026 - 1 h 0 min
episode Episode 8 - From Caregiver to Patient - Richard Barker artwork

Episode 8 - From Caregiver to Patient - Richard Barker

The Living With and Beyond Cancer podcast features Richard Barker's journey with kidney cancer, including his experience as a caregiver, post-operative recovery, and life changes. Richard shares his challenges, coping mechanisms, and advocacy for cancer patients, along with his plans for life after cancer. Takeaways * Caregiver support is crucial * Post-operative recovery can be challenging * Advocacy and support are essential for cancer patients Chapters * 00:00 Introduction to Living With and Beyond Cancer Podcast * 08:48 Caring for a Loved One with Cancer * 17:08 Post-Operative Recovery and Life Changes * 29:15 Challenges and Coping Mechanisms * 43:45 Support and Advocacy for Cancer Patients * 53:18 Life After Cancer and Future Plans

10 May 2026 - 44 min
episode Episode 7 - Real life treatment struggles - Ali Stripling artwork

Episode 7 - Real life treatment struggles - Ali Stripling

The conversation delves into Ali's journey with anal cancer, from the initial symptoms and diagnosis to the challenges of treatment and its impact on her daily life. It also highlights the importance of patient advocacy and shared decision-making in the treatment process. The conversation covers Ali's journey through cancer treatment, recovery, and the challenges she faced post-treatment. It delves into the emotional struggles, reintegration into society, and the importance of support and awareness. Takeaways * Understanding the impact of cancer on daily life * The importance of patient advocacy and shared decision-making in cancer treatment Cancer treatment and recovery are physically and emotionally challenging * Support and awareness are crucial for post-treatment reintegration Chapters * 00:00 The Journey Begins * 06:00 Acceptance and Realization * 11:22 Challenges and Coping Mechanisms * 22:27 Impact on Daily Life * 30:04 Treatment Challenges and Realization * 35:26 Dietary Challenges and Coping * 41:36 Stigma and Awareness of Anal Cancer * 49:43 Reintegration and Support * 57:36 Emotional Struggles and Relationships

26 Apr 2026 - 52 min
episode Episode 6 - From Cancer worker and Counsellor to Cancer Patient - Amanda Burridge artwork

Episode 6 - From Cancer worker and Counsellor to Cancer Patient - Amanda Burridge

Amanda Burridge shares her journey from working in the cancer field to being diagnosed with bowel cancer. She discusses her transition to becoming a counselor and the impact of her diagnosis on her work. The story highlights the challenges and emotional experiences of a cancer diagnosis and the journey of treatment and recovery. Amanda Burridge shares her personal journey through cancer, from diagnosis to recovery, highlighting the challenges and insights gained along the way. She emphasizes the importance of mindfulness and the value of being fit to cope with the effects of cancer treatment. Takeaways * Cancer diagnosis impact on work * Transition to becoming a counselor * Challenges of cancer treatment and recovery Mindfulness in the midst of illness * The importance of being fit to cope with cancer treatment Chapters * 00:00 Radiotherapy Experience * 52:01 Counseling Modality and Conclusion

12 Apr 2026 - 46 min
episode Episode 5 - Not your ordinary school trip - Sarah Briggs artwork

Episode 5 - Not your ordinary school trip - Sarah Briggs

The podcast episode features a conversation with Sarah Briggs, a cancer patient, and covers her journey from diagnosis to recovery. It explores the impact of the diagnosis, the hospital experience, mental state, and the support offered during the treatment. Sarah's determination and recovery process are also highlighted. Sarah Briggs shares her journey of survival and resilience after being diagnosed with cancer. From desperate determination to return home to living life to the fullest, Sarah's story is one of courage, hope, and finding joy in every day. Despite devastating news and financial challenges, Sarah's mindset and belief to live have been instrumental in her unexplained survival and positive outlook on life. Takeaways * Hospital experience and diagnosis delivery can have a significant impact on the patient's emotional state. * The support offered during the treatment plays a crucial role in the patient's recovery. Resilience and Determination * Finding Joy in Every Day Chapters * 00:00 Introduction and Podcast Overview * 07:01 Hospital Experience and Diagnosis Delivery * 13:19 Impact of the Diagnosis * 23:05 Treatment Plan and Support Offered * 28:47 Mental State and Surgery Preparation * 34:36 Managing Pain and Recovery * 40:16 Bucket List and Determination * 45:38 Navigating the Benefit System * 51:25 Treatment Options and Scans * 58:23 Peer Support and Shared Experiences

29 Mar 2026 - 55 min
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