Lung Cancer Voices of Hope

Making the Most of Your Healthcare Visits

How do you make the most of your visits with your healthcare team? In this episode, lung cancer survivor Bill Morris shares his experience with lung cancer and how he approaches his healthcare visits now. Oncology nurse practitioner Rasheda Persinger shares her insights after 20 years of working with patients. Hosts Ann and Dr. Shields discuss with Bill and Rasheda what they wish every patient knew, from writing down questions before an appointment to asking about biomarker testing to why recording your visit can make all the difference. “It’s always on the ride home that I thought of the perfect question to ask.” - Bill Morris, lung cancer survivor What You'll Hear: * Bill's experience navigating appointments as a stage IIIB lung cancer patient * How to prepare before your visit and why it matters * Why you should ask to record your appointment * When and how to bring up biomarker testing * The importance of shared decision-making and seeing the whole patient Resources & Support: * LUNGevity Patient Gateways [https://gateway.lungevity.org/] — Resources and latest news for your specific cancer type * What to Ask Your Doctor [https://www.lungevity.org/patients-care-partners/navigating-your-diagnosis/what-to-ask-your-doctor] — Questions to guide your treatment conversations at every step * Biomarker Testing [https://www.lungevity.org/patients-care-partners/navigating-your-diagnosis/biomarker-testing] — What it is and why it matters for your treatment * Virtual Meetups [https://www.lungevity.org/patients-care-partners/support-services/virtual-meetups] — Connect with other lung cancer patients and survivors, including LUNGevity's weekly Tuesday calls

Why Community Matters in Lung Cancer Care

Why does finding community matter in lung cancer care? In this episode, lung cancer survivor and advocate Jill Feldman shares her experience, from losing multiple family members to lung cancer to her own diagnosis, as well as her work building patient communities around the world. Jill discusses how connecting with others has shaped her journey and why community is important for support, information, and advocacy. Hosts Ann Steagall and Dr. Misty Shields explore with Jill how patients and families can find community, the role of advocacy, and how care teams can support patients and families. " I always say that no amount of therapy could have ever helped me through my losses and then my own diagnosis, like my involvement with the lung cancer community." -Jill Feldman, lung cancer survivor and advocate What You'll Hear: * Jill's experience and advocacy journey * The role of community in navigating diagnosis * How patients can find support after diagnosis * Addressing stigma in lung cancer Resources and Support: * LUNGevity Virtual Meetups [https://www.lungevity.org/patients-care-partners/support-services/virtual-meetups] https://www.lungevity.org/patients-care-partners/support-services/virtual-meetups– Join a live video group to connect with others living with lung cancer * LifeLine Peer-to-Peer Support [https://www.lungevity.org/patients-care-partners/support-services/peer-to-peer-mentoring] – Get matched 1-to-1 with a survivor or caregiver mentor with a similar experience. * LUNGevity Online Communities [https://www.lungevity.org/patients-care-partners/support-services/online-communities] – Connect with other people who've been where you are * EGFR Resistors [https://egfrcancer.org/] – Join the patient-led community founded by Jill Feldman and dedicated to EGFR-positive lung cancer * LUNGevity Patient Gateways [https://gateway.lungevity.org/] – Find information and resources specific to your lung cancer type

Lung Cancer Diagnosis: What Happens Next

What happens after a lung cancer diagnosis? In this first episode of LUNGevity’s Lung Cancer Voices of Hope podcast, lung cancer survivor Lisa Bistline shares her experience, from initial scans and biopsies through multiple treatments, and the moment a later biopsy revealed a biomarker that led to a targeted therapy. Hosts Ann Steagall and Dr. Misty Shields then speak with Yale University thoracic oncologist Dr. Anne Chiang about what patients can expect at their first visit, including how doctors determine the type and stage of cancer, plan treatment, and approach care. Together, they discuss how lung cancer research and treatment options continue to evolve, and the pace of progress in recent years.  "I just gaped and said, 'I have lung cancer?' and I looked over at my husband and I said, ‘I have lung cancer?’” - Lisa Bistline, lung cancer survivor What You'll Hear: * Lisa’s diagnosis and treatment journey * What happens at a first oncology visit * How biomarkers guide treatment decisions * The role of support systems and community Resources and Support: * The LUNGevity Foundation [https://www.lungevity.org/] – Support programs, education, and patient resources. * Patient Gateways [https://gateway.lungevity.org/] – Resources specific to your lung cancer type. * LifeLine Support Program [https://www.lungevity.org/patients-care-partners/support-services/peer-to-peer-mentoring/lifeline-support-partners] – 1-on-1 peer mentorship for patients and survivors. * Search Clinical Trials [https://connect.careboxhealth.com/en-US/partner/lcctal] – Tool to find relevant trials and research. * Small Cell SMASHERS [https://sclc.lungevity.org/small-cell-smashers-fireside-chat-whos-next] – Learning series for small cell lung cancer (SCLC). * Recently Diagnosed Guide [https://www.lungevity.org/patients-care-partners/navigating-your-diagnosis/recently-diagnosed] https://www.lungevity.org/patients-care-partners/navigating-your-diagnosis/recently-diagnosed– Providing the information you need right away

Lung Cancer Voices of Hope: Meet Your Hosts

Meet the hosts behind LUNGevity Foundation's new podcast, Lung Cancer Voices of Hope. In this introductory episode, Ann Steagall and Dr. Misty Shields share their personal and professional connections to lung cancer and what led them to this work. Ann reflects on more than 30 years as a thoracic oncology nurse supporting patients across care settings, and Dr. Shields shares how her father’s diagnosis shaped her path to becoming a thoracic oncologist and physician scientist. They also share what listeners can expect from the podcast, including patient stories and expert insights to help navigate a lung cancer diagnosis. "Hope is really here to stay." -Dr. Misty Shields, co-host and thoracic oncologist

Introducing Lung Cancer Voices of Hope

After a lung cancer diagnosis, there are two things most people want: information -- and to hear from people who've been there. Lung Cancer Voices of Hope is a podcast that brings together people living with lung cancer and experts in lung cancer care, so that those navigating this diagnosis and their care partners have support they need from people who truly understand. Hosted by Ann Steagall, an oncology nurse and head of Patient Services at LUNGevity Foundation, and Dr. Misty Shields, a thoracic medical oncologist, each episode shares stories and insights that reflect the latest in lung cancer care -- and the hope that comes from hearing from others on a similar journey. Starts April 23. This show is brought to you by LUNGevity Foundation.