The Roadmap to Rare

Podcast by CSNK2A1 Foundation Podcast

English

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About The Roadmap to Rare

This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap.Every rare disease journey is different, but no family should have to navigate it alone.On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.Together, these conversations shine a light on the experiences that unite the rare disease community: resilience, determination, and hope for the future.

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Trailer: Roadmap to Rare

This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between. Subscribe so you can stay updated for new episodes! Your ideas help shape the conversations that matter most to the rare disease community. Feel free to submit us questions and topics of interest us at podcast@csnk2a1foundation.org [podcast@csnk2a1foundation.org]. Or on our webpage https://www.csnk2a1foundation.org/roadmap-to-rare-podcast [https://www.csnk2a1foundation.org/roadmap-to-rare-podcast]! Follow us on Instagram: @csnk2a1_foundation [https://www.instagram.com/csnk2a1_foundation/] Follow us on Facebook: CSNK2A1 Foundation [https://www.facebook.com/csnk2a1/] Follow us on LinkedIn: CSNK2A1 Foundation [https://www.linkedin.com/company/csnk2a1-foundation/]

19 Apr 2026 - 54 s

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