A Body Rebels: A Chronic Illness Podcast

MiniCast: The Hidden Side Effects of Prednisone No One Warns You About

6 min · 29 de may de 2026
Portada del episodio MiniCast: The Hidden Side Effects of Prednisone No One Warns You About

Descripción

Sometimes it is not the big symptoms that stop you in your tracks. It is the quiet ones. The bruises you cannot explain. The skin that tears a little too easily. Living with sarcoidosis and long term prednisone use means learning how your body changes in ways no one really prepares you for. In this episode, I talk about those small but unsettling moments, the kind that make you pause and ask what is happening to me now. Because chronic illness is not just about survival. It is about adapting to a body that keeps rewriting the rules. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

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88 episodios

Portada del episodio Kindness in Healthcare and Chronic Illness Care

Kindness in Healthcare and Chronic Illness Care

In this episode, I’m talking about kindness in healthcare, bedside manner, chronic illness care, and why the emotional side of medical appointments can follow me long after I leave the room. Living with sarcoidosis means I’ve spent years around scans, charts, vitals, instructions, and waiting rooms, but I also remember tone, patience, eye contact, and small moments of steadiness. I’m thinking through why basic kindness is not a luxury in medical care, especially when my body is already tired before the appointment begins. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

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Portada del episodio The Fake Chinese Song That Became a Chronic Illness Poem

The Fake Chinese Song That Became a Chronic Illness Poem

In this episode, I’m talking about a silly song I sing to my dogs, a language I don’t actually speak, and the strange AI surprise that came back when I finally let technology listen. I’m reflecting on ancestry, imagination, chronic illness, memory, and the little rituals that sneak into daily life when my body is tired but my mind is still wandering. It starts with puppies, a tug toy, and nonsense sounds, but it opens a door I didn’t expect. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

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Portada del episodio Childhood Memories, Chronic Illness, and the Cousin I Never Forgot

Childhood Memories, Chronic Illness, and the Cousin I Never Forgot

In this episode, I talk about my cousin Jenny, a childhood memory I’ve carried for more than fifty years, and the way grief can return through laughter before it ever knows what to do with itself. I’m reflecting on family distance, ovarian cancer, chronic illness, and what it feels like when my body keeps me far from a goodbye I wish I could attend. It’s about cousins, memory, regret, love, and the strange little details that keep people alive inside us. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

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Portada del episodio Race-Colored Glasses and the Stories We Tell Ourselves

Race-Colored Glasses and the Stories We Tell Ourselves

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30 de jun de 202616 min