Let's Talk MS

S02E02. Keep Moving: The Power of Sport with MS and related conditions

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). The MS Awareness Run is taking place the 2nd November in the framework of the 20th Edition of Brussels Airport Marathon and Half Marathon, a great opportunity to come together, raise awareness, run and celebrate the strength and resilience of the MS community.  That’s why we’re excited to discuss about sports and their impact on Multiple Sclerosis and related conditions. Today, we’ll explore how physical activity can support you throughout your diagnosis journey, its key benefits, and share some practical tips and insights along the way. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:  * Felipe Balisteiri, 32, from Brazil, was diagnosed with multiple sclerosis 10 years ago while studying physical education. The diagnosis inspired him to research the disease, leading him to complete a master’s in movement science. Since 2021, he has been pursuing a PhD in rehabilitation science at the University of Hasselt, Belgium, focusing on how people with multiple sclerosis control their movements and walking through brain activity analysis. * Eline-Sofie, 24, from Norway, is a qualified nurse and a digital marketing student. She was diagnosed with MS at the age of 23, last year. Since then she has been a vocal advocate for raising awareness about MS and the needs of young people with the condition as an active member of YPN. She documents her journey as a person with MS on TikTok. Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp].   Stay tuned and thank you for being part of our community! ---------------------------- You can find all the resources and documents mentioned in this episode below: * Webinar [https://www.youtube.com/watch?v=ddvDLFPLVnI&t=896s] about Movement with MS * Information [https://donate.emsp.org/event/ms-awareness-run-2025%20] MS Awareness Run. Thanks for supporting our fundrasing efforts!

S02E01 | Paediatric MS: Growing, learning and adapting

Welcome back to the new season of Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). We’re excited to be back and to open this season with a special episode focusing on children with MS and their families as they go back to school. In this episode, we explore the unique challenges that paediatric MS brings, from school life and friendships to health and family relationships. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:  * Emily Blosberg is the founder of Mr Oscar Monkey, an NGO that helps children living with MS. After being diagnosed with MS herself at the age of 15, Emily discovered her passion for helping children, teenagers and young adults with MS to connect with each other. * Eleanor Kitson, a graphic designer from the UK, was also diagnosed with MS at 15. She is a member of the EMSP Young People's Network. Her MS journey has taught her resilience and creativity, and has shown her the importance of finding her voice and showing that life with MS can still be full of colour, purpose and possibility.   Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp].   Stay tuned and thank you for being part of our community!

S01E08 | Aida's Story: Strength, Positivity, Challenges and NMOSD

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). After introducing NMOSD and MOGAD in our previous episode, today we take a more personal approach. We’ll hear a real-life story, learn more about the symptoms, and reflect on the power of positivity and mindset when navigating health challenges. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:  * Aida Fuentes is back in our podcast, journalist, teacher, and the first person with NMOSD to join EMSP’s Young People’s Network (YPN). Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp].   Stay tuned and thank you for being part of our community!

S01E07 | Facing NMOSD and MOGAD: More than a diagnosis

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we explore what it truly means to live with NMOSD and MOGAD, explaining what these conditions are and the vital role that community plays in the journey. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:  * Souad Mazari, patient advocate and founder of NGO Rare Mais Ensemble in France. * Aida Fuentes, journalist, teacher, and the first person with NMOSD to join EMSP’s Young People’s Network (YPN). Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon.   Stay tuned and thank you for being part of our community!

S01E06 | Life with MS: Overcoming Stigma & Discrimination

Welcome to Let’s Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we discuss the stigma and discrimination faced by people with multiple sclerosis and related conditions, as well as the misjudgement of symptoms when they are both visible and invisible. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Elizabeth Cunningham, a health communications consultant and Senior Communications Manager at the European Federation of Neurological Associations (EFNA). Emma Rogan, a brain health campaigner who has worked at EMSP for over a decade. She has spent her career addressing employment issues, job retention and returning to work for people diagnosed with MS and/or living with a disability.   Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram [https://www.instagram.com/eumsplatform/] and Twitter [https://twitter.com/eumsplatform] @eumsplatform for more about MS.   If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp].   Stay tuned and thank you for being part of our community!