RARENETIC
What are Rare Diseases and What Does Being Undiagnosed Mean?
Kuvaus
Hey! It's our first episode, all about rare disease specifics, being undiagnosed, and a Q&A at the end! I promised the website links to the resources I mentioned in the episode, so they're down below. Enjoy the episode! RESOURCE LINKS * Genetic and Rare Disease Information Center [https://rarediseases.info.nih.gov/] * Rare Disease Clinical Network [https://www.rarediseasesnetwork.org/] * National Organization for Rare Disorders [https://rarediseases.org/] * Rare Diseases International [ https://www.rarediseasesinternational.org/] * Rare Undiagnosed Network [https://rareundiagnosed.org/] * Undiagnosed Diseases Network [https://undiagnosed.hms.harvard.edu/] * Undiagnosed Diseases Network International [https://www.udninternational.org/] SOCIALS * Instagram [//instagram.com/rareneticpod] * Twitter [//twitter.com/rareneticpod]
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