COVID-19 & Rare Diseases

COVID-19 & Rare Diseases

Hey guys!! This week, I talk all about how COVID-19 impacted the rare disease world. Hope you enjoyed it! SOCIALS Instagram [//instagram.com/rareneticpod] Twitter [//twitter.com/rareneticpod] Linktree [//linktree.com/rarenetic] rareneticpod@gmail.com

Rare Disease Words and Phrases (that you'll hear me use a lot)

Hey Guys! Thanks for listening to RARENETIC! Today's episode definitely has a lot of info in it, but make sure to follow us on Instagram to get the link. SOCIALS: Instagram [//instagram.com/rareneticpod] Twitter [//twitter.com/rareneticpod] LinkTree [//linktree.com/rarenetic] rareneticpod@gmail.com

What are Rare Diseases and What Does Being Undiagnosed Mean?

Hey! It's our first episode, all about rare disease specifics, being undiagnosed, and a Q&A at the end! I promised the website links to the resources I mentioned in the episode, so they're down below. Enjoy the episode! RESOURCE LINKS * Genetic and Rare Disease Information Center [https://rarediseases.info.nih.gov/] * Rare Disease Clinical Network [https://www.rarediseasesnetwork.org/] * National Organization for Rare Disorders [https://rarediseases.org/] * Rare Diseases International [ https://www.rarediseasesinternational.org/] * Rare Undiagnosed Network [https://rareundiagnosed.org/] * Undiagnosed Diseases Network [https://undiagnosed.hms.harvard.edu/] * Undiagnosed Diseases Network International [https://www.udninternational.org/] SOCIALS * Instagram [//instagram.com/rareneticpod] * Twitter [//twitter.com/rareneticpod]

TRAILER

Welcome, to RARENETIC! Get ready for us to launch on April 29th. Make sure to follow us on Instagram and Twitter, linked below! instagram.com/rareneticpod twitter.com/rareneticpod