Bag It

Bag It E12: Carly Boos Executive Director at CLL Society & Kitty Silverman Uterine Cancer Program Director at SHARE Cancer Support

Mindy's guests Carly Boos, CLL Society Executive Director and Uterine Cancer Program Director at SHARE Cancer Support, Kitty Silverman talk about their Partnership with Bag It and valuable services and programs offered for individuals with CLL or uterine cancer. BIO ~ Carly Boos I was born and raised in the Kansas City area but relocated to San Diego in 2021. I have worked in health care-related nonprofits since 2009. I have a Master of Education in Adult Education and an MBA from the University of Kansas. After an early career in various industries, I found my calling working in health-care related nonprofits in 2009, when I joined the Continuing Medical Education Division of the American Academy of Family Physicians (AAFP), where I led teams in educational design and technology, accreditation and compliance. After nearly a decade at AAFP, I went to work for the American Society of Clinical Pharmacology and Therapeutics as a Senior Director of Education & Meetings prior to joining CLL Society in 2018, where I serve as Executive Director. CLL Society is an inclusive, patient-centric, physician-curated nonprofit organization that addresses the unmet needs of the chronic lymphocytic leukemia and small lymphocytic lymphoma (CLL/SLL) community through patient education, advocacy, support, and research. In 2005, when Dr. Brian Koffman was diagnosed with CLL, he and his wife, Patty, sought to define and acquire the best possible care for one CLL patient: Brian. Uncovering critical, unmet needs within the CLL community, they created the non-profit CLL Society to function as a conduit, making vital support and credible, cutting-edge treatment information available to all CLL patients and their caregivers. Today, CLL Society serves tens of thousands of CLL patients and their families and caregivers, as well as the CLL medical community around the world Company / Organization Website URL: www.cllsociety.org [http://www.cllsociety.org] Company or Guest LinkedIn URL: https://www.linkedin.com/company/cll-society/?viewAsMember=true [https://www.linkedin.com/company/cll-society/?viewAsMember=true] Company or Guest Twitter URL: https://twitter.com/CllSociety [https://twitter.com/CllSociety] Company / Org Facebook Page URL: https://www.facebook.com/CLLsociety [https://www.facebook.com/CLLsociety] Personal Bio ~ Kitty Silverman Uterine Cancer Program Director SHARE Cancer Support I was born and raised in New York City, and have a degree in English Literature from New York University. I have been working in the women's cancer arena for over 25 years. I served as the executive director of the Women At Risk breast cancer program at NY Presbyterian/Columbia University Medical Center which provided programs benefiting women at high risk for breast cancer and women with breast cancer. I then opened and managed the New York City Chapter of the National Ovarian Cancer Coalition, where I directed all of the Chapter's programs and fundraising activities. Prior to my work in women's cancers, I worked in the special events field both in the for profit and not for profit sectors. At SHARE, I oversaw the development of the new uterine cancer program in 2020, and currently manage all aspects of the program. ksilverman@sharecancersupport.org [ksilverman@sharecancersupport.org] Company Phone: (646) 817-3303 Company / Organization Website URL: https://www.sharecancersupport.org/ [https://www.sharecancersupport.org/] Company or Guest LinkedIn URL: https://www.linkedin.com/in/kittysilverman/ [https://www.linkedin.com/in/kittysilverman/] Company or Guest Twitter URL: https://twitter.com/SHAREsupport [https://twitter.com/SHAREsupport] Company / Org Facebook Page URL: https://www.facebook.com/SHARECancerSupport [https://www.facebook.com/SHARECancerSupport]

BagIT E11: Jessica Somar - Certified Health Educator

Well-being across the dimension of Wellness with Jessica Somar. Mindy's talks with this month's guest, Wellness Expert Jessica Somar about the physical, emotional, social, environmental and financial dimensions of wellness with (or without) a cancer diagnosis. BIO ~ Jessica M. Somar Certified Health Educator - Corporate Well-Being Expert I was raised outside of Madison, WI, and despite being in AZ since 2006, I will forever be a Wisconsin girl at heart. I spent my entire childhood as a competitive gymnast. I went to college at UW - La Crosse, where I graduated with a BS in Community Health. I have held certifications in pilates/yoga (piYo), sports nutrition, Youth Mental Health First Aid and I am a certified health education specialist. My biggest pride in life is my family, my husband, son and 3 bonus (step) daughters. Being a certified health education specialist and having my bachelor’s of science in Health Education, I have spent nearly 17 years in the corporate wellness arena. I started my career as an intern at the fitness center within Motorola, which is what brought me to Arizona. From there, I had the opportunity to develop a comprehensive and robust employee wellness program for a large, nationally located department of defense contractor. It was such a unique experience, not only due to the nature of the organizations' work, but the diverse employee population. The next chapter of my career, I stepped into more of the population health space working for organizations that provided health management services to employers. This shift offered a variety of roles over the last 12 plus years. I spent time telephonic health coaching, developing worksite wellness programs, managing teams of telephonic coaches and onsite well-being coordinators, and most recently, designing well-being and engagement strategies and serving as the director of engagement for a large insurance company. Throughout this time, I also provided sales support to the teams I worked alongside with, serving as the resident wellness expert, contributing to RFPs (requests for proposals), finalist presentations and strategy sessions with new and potential clients. The range of my experience in the wellness industry, has given me broad perspective on how wellness means so many different things to different populations, as well as how to influence human behavior aiming to improve the overall quality of living for individuals. The world of wellness can be overwhelming so my role as a Certified Health Educator is to focus on evidence-based medicine and guidelines to achieve a healthy lifestyle again resulting in positive outcomes for individuals and the companies they work for. I am currently self-employed, which allows the opportunity to pick projects and engagements that align to my passions while providing me the flexibility to focus more priority and time on my family. jessica.m.somar@gmail.com [jessica.m.somar@gmail.com] https://www.linkedin.com/in/jessicamsomar/ [https://www.linkedin.com/in/jessicamsomar/] (602) 524-5944

Bag It E10: Co-Founders of Patient Media Andrew & Esther Schorr

Mindy's guests are Patient Power co-founders - focused on patient community development, relationship-building with medical experts and centers of excellence, pharma, advocacy groups; focus on raising the "patient and care partner voices" to help them actively participate and drive their own healthcare decisions.

Bag It E9; "Escape to Thrive" Conference Supports Cancer Advocates

This month Mindy talks with two Escape to Thrive alum during the annual conference about how THRIVE impacted their cancer advocacy and why this conference is so unique and beneficial to cancer advocates. About Andrea Ivory: Andrea Ivory, a 17-year breast cancer survivor, is the founder and Executive Director of The Women's Breast & Heart Initiative, a non-profit organization with a focus on disease prevention and early detection. A Philadelphia, PA native, Andrea is a graduate of Barry University and currently serves and in resides in South Florida. She is happily married to Willie Ivory, who actively supports her endeavors to transform and save lives. Andrea has received the following recognitions for serving her community: Yoplait Champion, L'Oreal Paris Women of Worth, Top 10 CNN Hero, Robert Wood Johnson Community Health Leader, and AARP Purpose Prize, among others. The Women's Breast & Heart Initiative (WBHI) transforms and saves lives while providing at-risk women, low-income populations, and college students with the resources necessary to lead disease deterrent lifestyles. Through targeted door-to-door outreach, workplace wellness, virtual advocacy, college campus clubs, preventive screenings, care coordination, and patient navigation, WBHI lives its mission to advance health equity. Company / Organization Website URL: flbreasthealth.com Company or Guest LinkedIn URL: https://www.linkedin.com/in/andrea-ivory-3921a3a/ [https://www.linkedin.com/in/andrea-ivory-3921a3a/] Company or Guest Twitter URL: @wbhi Company / Org Facebook Page URL: @thewwbhi About Betsy Glosik: Born and raised in Cincinnati Ohio, Betsy attended Miami University and graduated with a BS in Home Economics and Consumer Sciences. At the time, Home Ec was most often an education degree, but Miami allowed a concentration that was more business-oriented and developed to help bridge the gaps in consumerism, marketing, and product development, and that is the area that she pursued. After graduation, her degree and interests allowed her to work in the food industry in Chicago, developing products with a chef from Mexico for food service. After a move to Cleveland, she was able to use her kitchen skills as a recipe tester and contributor to an updated cookbook edition. A career turn took her into the optical world as an optician and eventually frame sales until her diagnosis of a second cancer in 2007. As a direct impact from her personal cancer diagnosis and treatment, Betsy started a non-profit to help support women of any cancer type and their care partners with integrative approaches to help manage disease and treatment side effects. For the last six years, she has worked to build patient advocate representation in the Society for Integrative Oncology, starting from a small task force of six to a full-blown Committee of 25. Advocates in the organization represent multiple cancer types, professions, and advocacy roles to help promote research, construct guidelines and develop patient resources for evidence-informed modalities to be used alongside traditional surgery, chemotherapy, and radiation. These modalities are purposefully used to help promote wellness and ease symptom burden to improve overall quality of life issues both during and after treatment. Betsy has served as the Co-Chair for the Patient Advocate Task Force (now Committee) at SIO from 2016-2021, and continues to sit on the Committee and Board of Trustees. In this role, she has coordinated the Committee’s activities in patient advocate-led research in Integrative Oncology, annual conference planning for the PA segment, growth and outreach. She continues to seek to improve the effectiveness of the PA voice for Integrative Oncology care, as a being a conduit between patients, survivors, care partners, and clinicians to increase awareness of Integrative modalities for improved quality of life. In addition to her work for SIO, she has participated in cancer healthcare advocacy with the National Coalition for Cancer Survivorship. Company / Organization Website URL: https://integrativeonc.org [https://integrativeonc.org] Company or Guest LinkedIn URL: https://www.linkedin.com/in/betsy-glosik-96698530/ [https://www.linkedin.com/in/betsy-glosik-96698530/] Company or Guest Twitter URL:@dhopeinc Company / Org Facebook Page URL: https://www.facebook.com/SocietyForIntegrativeOncology [https://www.facebook.com/SocietyForIntegrativeOncology]

Bag It E8: Victoria Cramer; Three-time cancer survivor shares her life hacks & secrets to surviving cancer

Victoria Cramer shares her life hacks & secrets to surviving cancer. About Victoria Cramer: Victoria is a three-time cancer survivor who is an author, motivational speaker, happiness coach, and recovering global leader in the hotel industry. She is an avid cyclist, scuba diver, snow skier, and past skydiver. She and her husband live in Mesa, Arizona with their twin eight-year-old daughters, 2 dogs, 2 bunnies, and a cat. They spend much of their time traveling the globe or getting outdoors to camp. Victoria is from Germany but is an Arizona Wildcat! Victoria is an inspirational leader who brings dynamism and passion to every engagement, be it strategic planning, business/executive coaching, consulting, facilitating globally or public speaking. Victoria has 30 years’ experience being a transformational leader in the global hospitality space. She has expertise in all aspects of global operations, growth, and strategic planning. She has expertise at the local, national, and global levels as well as with startup and legacy brands. Victoria has successfully steered a hotel management company of 800 employees and 25 Marriott and Hilton hotels through the worst economic downturn in hotel history. As CEO, the company saw its highest profit margins in recorded history. Her experience comes from working at Marriott Hotels, Choice Hotels, and as a consultant for Abbott Labs, Cisco Systems, and Microsoft. Victoria is a people champion. She is a consultant, strategist, coach, author, and public speaker and spends much of her time greening up the human spirit and mentoring the human race on how to find happiness in spite of the epic stuff thrown at us each day. Contact Info: victoria@victoriacramer.com [victoria@victoriacramer.com] Company / Organization Website URL: www.victoriacramer.com [http://www.victoriacramer.com] Company or Guest LinkedIn URL: https://www.linkedin.com/in/portervictoria [https://www.linkedin.com/in/portervictoria] Company / Org Facebook Page URL: https://www.facebook.com/victoria.porter.50 [https://www.facebook.com/victoria.porter.50]